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Severe Joint Pain In Several Areas At Once


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#1 AusNiki

 
AusNiki

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Posted 15 May 2012 - 03:12 AM

Hi i live in Australia and have had severe joint pain (muscle around the joint) since 1994.
After many visits to doctors (blood tests and X-Rays), specialists and naturopath's they have diagnosed me with Osteoarthritis, Ross River virus and a few more.
They scratched their head for many years and even said it was in my head.

The first few years I took anti inflammatory drugs prescribed then lost faith in most doctors.
Guessing I must diagnose myself when all the professional help has failed to find anything.

I relied on Voltaren, Herron Blue and Neurofen tablets and gel for pain relief, it was extremely crippling and made the every day things hard.
Until the pain relief was not effective at all and the pain was crippling again. The pain is extremely crippling during the night then eases a little when I have bowel movement throughout the day.

I have researched the internet and noticed that gluten products were a major cause of different symptoms, sore joints being one of them.
Over the last few months I have had reoccurring bouts of eczema.
I have been gluten free for 2 weeks now and eczema settled very quickly, joints are still causing problems but it's only early days. I don't feel heavy and bloated and seemed to have lost a little weight.
Today joint pain has narrowed to one joint aching (which I have learned to live with it), normally its three or four at the same time.
Fingers crossed I have finally found the balance for my body...GLUTEN FREE

Would love to hear from people who have similar challenges and would like to read your stories.
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#2 ravenwoodglass

 
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Posted 15 May 2012 - 06:01 AM

Welcome to the board. 2 weeks is very short into the healing phase and it is good that you are seeing results already. For me it was about 6 months before the pain resolved. Complete relief for me required dropping soy also but that may not be the case for you. Celiac is very inflammatory and it seems it can attack any part of the body. It sounds like you are doing well gluten free but do be aware that if you are gluten free they can't test you for celiac. So if you feel you want a doctors diagnosis then you would need to go back on gluten for a couple of months before testing.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)




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