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Just Diagnosed, Constant Tingling Pain In Left Hand...? Allergies?
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Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

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Hi Annie. I am new here but I have a few thoughts for you. First, congrats on being gluten free. As you have probably read, there are many afflictions that can be attributed to celiac. However, there are also many that are not. Sometimes I think to many people think all their issues will resolve by going gluten free. I believe this is a misconception because of research finding links (in some people) to other medical conditions. I'm not saying this isn't the case only stating that celiac is not a catch all. If it were me, I would get a referral to a neurologist who can have very simple tests ordered that can identify and nerve damage or a neurological issues. See where that takes you. We should always question medical issues we have and do our best to resolve them. Resting on our laurels helps nothing. I sincerely hope you figure out what's going on. Be Well.

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You have only recently been diagnosed and it does take some time to heal. The low B12 is likely the cause of the tingling in your hands but since it has gotten worse after the shot call your doctor about it and see what they say. Personally I would give yourself time to heal before seeing a neuro. If the issues don't resolve in a few weeks then do explore other possibilities.

Is your home gluten free? If not be sure you have gotten a new toaster for just the gluten free members of the family. You would also need a new strainer and things like condiments, nut butters etc need to replaced for just the gluten free eaters. You also cannot bake or cook with flour for others safely. IF others eat bread or cakes it is best to have them come into the house premade.

It is also a good idea to drop dairy products until you are feeling better. I hope things get better soon and do check out the Celiac 101 thread in the Coping section and the home page info on safe and unsafe products. If you have any questions don't hesitiate to ask.

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the worsening tingles may be healing. Make sure you have enough potassium in your diet.

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Thanks so much for taking the time to reply, everyone! I really hope it's just part of the healing process, it's so annoying and painful at times. I will look at getting some potassium also.

What happens if you accidentally eat a food that you are allergic to? Do you have symptoms of glutening...?

Thanks again!

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Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

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I have a tomato allergy and red food coloring does not like me. Things seem to "pop" up once a major culprit is removed.

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Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

Have you been tested for celiac? If not make sure you stay on gluten until that is done and do get tested ASAP. Celiac can cause nerve issues beyond the ones caused by B12 deficiency.

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How I think that allergies can be created by Celiac. I think that the small intestine gets damaged. Perhaps it even gets deteriated enough so that food stuffs leak out. The body discovers these particles and attacks them as foreign. They do not belong there. The body is designed to make antibodies which attack these particles anywhere in the body. . Then when you take in food with the same particles the body will attack.

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    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
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