Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Just Diagnosed, Constant Tingling Pain In Left Hand...? Allergies?
0

9 posts in this topic

Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Annie. I am new here but I have a few thoughts for you. First, congrats on being gluten free. As you have probably read, there are many afflictions that can be attributed to celiac. However, there are also many that are not. Sometimes I think to many people think all their issues will resolve by going gluten free. I believe this is a misconception because of research finding links (in some people) to other medical conditions. I'm not saying this isn't the case only stating that celiac is not a catch all. If it were me, I would get a referral to a neurologist who can have very simple tests ordered that can identify and nerve damage or a neurological issues. See where that takes you. We should always question medical issues we have and do our best to resolve them. Resting on our laurels helps nothing. I sincerely hope you figure out what's going on. Be Well.

0

Share this post


Link to post
Share on other sites

You have only recently been diagnosed and it does take some time to heal. The low B12 is likely the cause of the tingling in your hands but since it has gotten worse after the shot call your doctor about it and see what they say. Personally I would give yourself time to heal before seeing a neuro. If the issues don't resolve in a few weeks then do explore other possibilities.

Is your home gluten free? If not be sure you have gotten a new toaster for just the gluten free members of the family. You would also need a new strainer and things like condiments, nut butters etc need to replaced for just the gluten free eaters. You also cannot bake or cook with flour for others safely. IF others eat bread or cakes it is best to have them come into the house premade.

It is also a good idea to drop dairy products until you are feeling better. I hope things get better soon and do check out the Celiac 101 thread in the Coping section and the home page info on safe and unsafe products. If you have any questions don't hesitiate to ask.

0

Share this post


Link to post
Share on other sites

the worsening tingles may be healing. Make sure you have enough potassium in your diet.

0

Share this post


Link to post
Share on other sites

Thanks so much for taking the time to reply, everyone! I really hope it's just part of the healing process, it's so annoying and painful at times. I will look at getting some potassium also.

What happens if you accidentally eat a food that you are allergic to? Do you have symptoms of glutening...?

Thanks again!

0

Share this post


Link to post
Share on other sites




Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

0

Share this post


Link to post
Share on other sites

I have a tomato allergy and red food coloring does not like me. Things seem to "pop" up once a major culprit is removed.

0

Share this post


Link to post
Share on other sites

Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

Have you been tested for celiac? If not make sure you stay on gluten until that is done and do get tested ASAP. Celiac can cause nerve issues beyond the ones caused by B12 deficiency.

0

Share this post


Link to post
Share on other sites

How I think that allergies can be created by Celiac. I think that the small intestine gets damaged. Perhaps it even gets deteriated enough so that food stuffs leak out. The body discovers these particles and attacks them as foreign. They do not belong there. The body is designed to make antibodies which attack these particles anywhere in the body. . Then when you take in food with the same particles the body will attack.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,618
  • Topics

  • Posts

    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
    • You could ask the allergist to give you a starting point for an elimination diet. You would start out with 5 or so foods and then add in one new food a week to see if you react. If you react you of course drop that food. It is a bit of a pain as everything has to be basically single ingredient to start.  My allergist felt that was the best way to go and more accurate than blood testing.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined