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My Itchy Sking
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This has become quiet a journey for me.. here are few pics of my itchy skin still having to work with dr's for a DX sorry if the size is big..

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this is both of my sides.... again still learning how to post the pics

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Okay, that looks like what I have now --- after going gluten-free for some time. I still get the little water blisters sometimes which eventually turn into stuff like your photos. I went back & checked your posts so I could better understand your history rather than ask you to explain all over again but it wouldn't be a bad idea for you to do so anyway so other people will be able to read it all here in this thread & better be able to help you.

You've been gluten-free for a month. So testing is going to require you to go back on gluten. That applies either way --- blood tests & endoscopy or biopsy of dh. Do you want to do that? Your dh is likely to come back with a vengeance. 2 to 3 months of gluten for the tests.

You mentioned having been on steroids before & when you went off the rash came back like rip. That happens with dh & steroids. That's sort of the reaction you can expect from going back on gluten.

Question is --- how badly do you want/need a dx?

Are you in or very near a major city where you would have access to lots of derms &/or GI's to chose from?

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for a little back ground info...this itchy skin started in full force Jan / Feb

by mid Feb I headed to the dr as it was not going away.. since we live out in the country and go hiking I thought well its something i got into...by the time i went to the dr i was in tears it hurt/burned This is the 1st misdiagnoses... treated with a steriod shot and then a pack for a week... oh what joy no rash no itching... i was in heaven... fast forward to my 2 week follow up... went in again in tears its was back and was worse.... the good dr said you have a food allergy... we need to find a allergist for you... ok .... in the mean time here is another steriod pack rx.. and a strong anti histimne Rx... filled only one and it was not the steriod pack....

here is where i started my research... with a simple google... of what food cause rashes...

so i dropped out peanuts no change, then i found a picture of a wheat rash.... oh this looks like my back, stomach, butt, so gluten free i started got an appt with the allergist( should have called a skin dr) oh well we all learn.. any ways he looked at it ... and i told him i had started a gluten free diet and was seeing improvement...

put me on allerga and zyrtec combo... helped calm the skin down... did a food diary, added peanuts ,,, then the last day of the diary i added gluten foods....NEVER AGAIN WILL I DO THAT WILLINGLY..........

so now im just waiting for the itchy skin to clear up which it is slowly the photos above are about 75%better than were i started from i have been gluten free since mid march

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Oh I'm so, so sorry. I know just how you feel. Lots of us do. Been there, done that. Quite a number of us have been put on super duper steroids combined with super duper antihistamines. Those steroids had me bouncing off the walls & flying around the room 24/7 --- no sleepy for me!

Well, you can forego the dx like I did b/c there is no way on God's green earth was going back on gluten the day I discovered dh & went gluten-free! I wasn't going to wait one more day to get started.

OR you can pursue getting a derm to biopsy but the chances of a positive biopsy are slim.

OR you can try to get a doc --- you don't have to have a GI doc to order the celiac panel for you & hope you get some results from that but celiacs with dh tend to test neg. more often.

Read this & maybe your doc can figure out where & how to order this test for you in the rest of the celiac panel:

http://www.celiac.com/gluten-free/topic/92915-celiac-disease-associated-autoantibodies-in-dh-published-412/

The rest of the celiac panel is here. Scroll down & see Lisa's post for the tests.

http://www.celiac.com/gluten-free/topic/92470-help-me-with-these-tesultsplease/page__pid__792784#entry792784

Read a lot on this forum. You will find much useful info. You may need to go low iodine for a while. You may need to go low salicylate for a while.

Ask any questions at any time. And welcome to the board!

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    • Hi, you can try reporting your own post.  That should alert the site admin of your request.  I don't think they can delete your posts, but changing your user name may be possible.
    • Hi Pablito, Welcome to the forum! You are right, you should keep eating gluten  until the tests are all done.  The skin problems you describe ma be a condition only celiacs get.  The condition is called dermatitis herpetiformis (DH for short),  DH causes an itchy rash that is usually symetrical on the body.  You get the rash on both arms or legs etc.  It makes little blisters on the skin.  They are caused by IgA antibodies in the skin.  There i a test for DH where they take a small skin sample (biopsy) from the skin next to a blister and check it for IgA antibodies.   If they find DH, then you have celiac disease.  The 2 conditions are never separate.  there is a section of this forum dedicated to dermatitis herpetiformis with lots more information. The usual diagnostic process is to do a celiac antibodies blood test first, and then an endoscopy to test for damage to the gut lining.  But with DH, it is better to get the skin biopsy done instead of the endoscopy. Celiac disease is passed on in genes, so your children should be tested also if you are diagnosed.
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