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Feel Abnormal
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5 posts in this topic

I have only been recently been tested for celiac disease, but one of the signs my dr took as me having celiac disease was my startling weight GAIN! I gained 36 pounds in less than 3 months. After checking my thyroid (I do have Hypothyroidism) and seeing that being good, she checked my vitamin levels and saw I was deficient in everything. She then sent me to a GI, who I see next week.

I have gained a massive amount of weight in such a short time, and I am already overweight to begin with. Most people here say they were losing weight fast befoer diagnosed...I feel abnormal.

Now I am going to be struggling double to lose this weight. :(

Just ranting.

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Rant away. This is the place.

I think there are just as many overweight celiacs as there are underweight celiacs. some gain weight, some lose weight & some CAN'T gain weight & some CAN'T lose weight pre diagnosis. I think a lot depends too on the stage you're at with the celiac disease. Maybe. This stuff is weird & there's no one size fits all. But I can say you are NOT abnormal.

Now breathe.biggrin.gif

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Im in same boat. I've totally gained on gluten-free diet and don't feel energetic or satisfied from eating. I'm looking out for a diet that will work for me.

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I had unexplained weight gain no matter how hard I exercised before diagnosis. Still struggling to lose it 2 1/2 years later.

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I had unexplained weight gain no matter how hard I exercised before diagnosis. Still struggling to lose it 2 1/2 years later.

Thanks everyone.

I have always been a good 40-50 pounds over weight. Last year, I worked for the Post Office (temp) and walked between 8-9 hours a day, up and down stairs, carrying a 30lb bag, etc. I quickly lost 28 pounds in a few months. I left in Dec and by March, I had gained all 28, plus 5 more. In 3 months.

My Dr agreed that I shouldnt have gained that much..granted the amount of exercise changed, but my diet did not. I ate a little less since I wasn't using so much energy, if anything, but I didnt just sit around eating chips and stuff.

I do have a thyroid issue but my levels have been great.

So frustrating. I honestly thought food allergies happened to other people, not me :(

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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