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Fooding And Appointment Issues


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10 replies to this topic

#1 dani nero

 
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Posted 15 May 2012 - 02:32 PM

I'm not sure about it yet, but I think that the cashews were what was making me aggressively irritated. I haven't had them for a week and was feeling fine, then had a few this morning and snapped at hubs when he got home from work, then had anxiety for most of the day. If it really was the cashews, would they be having this effect so quickly? I ate them at 10am, and got irritated at around 4pm, then anxious after that.
I am also wondering.. WHY cashews?!

On a side note, I was feeling so hopeless and couldn't take the fatigue and lousiness any longer, so I called the clinic a week ago, and asked them if that appointment I took some time in march (which they said was going to be in april, and then somewhere in may) was ever going to happen.. and it wasn't going to happen until June because "the queue was really long" X( So we complained so much until they gave me a squeeze-in appointment on the 23rd.

Now that it's a squeeze in appointment, I feel that the doctor will be under so much pressure that I will have to make the best of what little time I'm going to have to explain my problems to him / her.. and what if they tell me nothing's wrong.. then I'll have to wait another quarter of a year to get another appointment with another clinic X(

Just a week left and I'm completely anxious about it, so I've developed a plan. Regardless of the test results, I'll be talking the doc into giving me suitable probiotics that are gluten and lactose free.. and I'll be telling my family that I've been diagnosed.
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

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#2 Alwayssomething

 
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Posted 15 May 2012 - 02:46 PM

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?
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#3 dani nero

 
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Posted 15 May 2012 - 02:52 PM

I pieced together today that cashews were bothering me too! I realized it a week or so ago, but thought it was the brand that they were cross contaminated, so I waited a week and tried another brand and flavor (first ones were honeyroasted) it had no cross cantamination warning and no wheat ingredients ate some yesterday and today and had a reaction both days. It is the only thing I can associate with it, so no more cashews for me. What I wonder for me is it a Iodine issue?


I don't think cashews are high in iodine.. maybe the salted ones might be?
The ones I've been eating are sold raw and plain.. I either ate them the way they were or roasted them myself in sunflower oil and ate them unsalted.
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#4 squirmingitch

 
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Posted 15 May 2012 - 03:14 PM

Dani is right. Cashews in & of themselves are very low iodine. Dani --- are you sure your cashews (even though raw) have not been cc'd anywhere along the line? And yes, cashews could be your problem as could any food. you know how celiacs come up with the darndest food issues. This may pass in time or it could remain -- who knows?

I think it's a capital idea to tell your family you have been diagnosed in light of the resistance they have had to the idea of your having celiac. That will take a lot of stress off of you on that score.
You realize that b/c you've been gluten-free that the tests are more likely to be neg, than anything else right?

I understand your apprehension about being squeezed in. Just make careful notes of your symptoms as well as your gluten-free trial & results. Along with the probiotic you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#5 Alwayssomething

 
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Posted 15 May 2012 - 03:46 PM

Thanks for the iodine information Dani and squirmingitch.
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#6 squirmingitch

 
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Posted 15 May 2012 - 04:17 PM

Anytime, any question Alwayssomething. And if we can't answer it someone else can.Posted Image
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#7 JaneWhoLovesRain

 
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Posted 15 May 2012 - 04:22 PM

I just posted something about cashews before reading your post. I've been feeling off a few days and looked at all my labels to make sure I wasn't getting any gluten in me. The cashew label says "may contain trace amounts of . . . . wheat." I would guess there is some cc in manufacturing.
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Gluten free since 2010 when it was suggested that my vertigo/dizzy problems may be from gluten. Tested negative for DH in April of 2012. However I'm not convinced I don't have DH as pictures and description pretty much match what I have.
11/2012 tested positve for 1 of the 2 celiac genes

#8 dani nero

 
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Posted 17 May 2012 - 01:10 PM

you need to think of anything else you will need a script for from the doc. Such as gluten-free & salicylate free Acetaminophen &/or Naproxen for those times when you need a pain reliever.


Critically true! I had actually forgotten about that because I haven't been getting headaches recently, so thanks :-)))

I don't have any of the cashews at home atm, so I'll check for contamination next time I'm at the market. I don't think I was getting glutened though because it goes away quickly when I stop them, and it doesn't agitate my DH.
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#9 squirmingitch

 
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Posted 17 May 2012 - 01:17 PM

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 dani nero

 
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Posted 17 May 2012 - 01:29 PM

YVW Dani. And pain relievers aren't just for headaches. Who knows when one is going to twist an ankle or whatever & need the med.


I'm also going to ask for a doctor's note stating that I need to bring my own food .. I thought it would be a good idea after reading the thread about sea-world :-)
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Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#11 squirmingitch

 
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Posted 17 May 2012 - 02:26 PM

You are right. Good thinking!
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 





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