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Possible Celiac 19 Month Old


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#1 sleepyrainfall

 
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Posted 15 May 2012 - 04:16 PM

Okay, so here is where I am just clearing my mind out a little.

18 month appointment was not as expected. Dr. mentioned she had fallen into the 5th % for weight gain. Was told that the loose bm's (with large chunks of undigested food) could be toddler diareah, or due to the virus she got in Feb. which may not have allowed her intestines to heal. Stop drinking milk. It's okay to consume other dairy products. Come back in a month for a check up. OK. I can do that.

19 month check up. Still little to no weight gain. Kid eats everything she sees. Not picky. Rephrase, rarely picky. Eats fruits and veggies with indiffereance. Drinks 1/2 juice and 1/2 water (at most 1xper day). Soy milk has been supplemented. Drinks water throughout day. Likes turkey and chicken. Not a fan of beef. Eats cheese like it's going out of style. Avoids sweets, cakes or breads. Appears to enjoy oatmeal and cereal. Still pooping 1-3 times a day w/chunks of food , occationally bm looks like she's ate sand. 1st bm is more formed. 2nd is partially formed, more "watery" and can leak out of diaper. 3rd is always watery. Smelly. They always smell like what she eats (if that makes sense). Dr. says he wants her to drink 3 pediasures a day (yikes!) and see him in one month. Discontinue if causes diareah to worsen. OK. No problem. Well maybe problem. She didn't like sidekicks, but will do what we must. Dr. mentions Celiac and FTT as possibles if not "fixed" in 1 month. Also says may recomend to GI specialist, as he does not trust blood work.

4 days into pediasure- call Dr. Diareah has increase when Pediasure intake increased. Normal bowls 2-3 per day until day 3. Day three finally convinced her to drink 1.5 pediasure drinks (after withholding her favorite alternative, water) Day 4: she woke in pain @ 7am. Struggled to have BM which quickly became diareah. refused to eat BF 9:30 am loose bm #2. 10:30 a.m. 1/2 after breakast. loose bm #3 still not eatting at L. eats immeadiatly after returning home from BabySitter's. Injests maderine orange and popcorn. Eats little spagetti 15 mins after dinner (@ 6:00) loose bm #4. Day 5 still has serious diareah and does not want to eat. Called Dr. may see him tomorrow if still not eating.

Possible relivant information:
My DX- acid reflux, IBS, Diverticulitus, depression, Gestational Diabeatis when prego with her. 4 lbs gained entier pregancy. Baby's weight at birth 7lbs 14 oz. current weight 21 lbs. also cystic fibrosis gene carrier.

My Mom's DX- acid reflux, IBS, Lactos Intolerance, depression

Husbands DX- Also carrier of cystic fibrosis gene.

Baby was screened at birth for CF. She is not a carrier of the gene

There are some symptoms she is not showing, but from reading the posts (especially about sandy poo and red bottoms)I am more convinced than I want to be that she has this and that my mother and I also suffer from the same thing.
Just from looking up information I feel like I may be onto something. Any advice/stories to share? I know that experiances are varied and differ per case, but I am feeling a little overwhelmed and unprepared.
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#2 squirmingitch

 
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Posted 15 May 2012 - 06:54 PM

There are others on here who are far more versed than I. But, having said that; I think you could well be MORE than onto something!
She needs to be tested, you need to be tested & your mom needs to be tested. And ALL of you have to remain eating gluten until all the tests have been completed.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#3 Mdhriggin

 
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Posted 15 May 2012 - 07:34 PM

Sounds a lot like what my daughter experienced before getting the diagnosis at around the same age. Start with the blood test. If nothing else the smelly diarrhea is a malabsorption of some kind.
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#4 mommida

 
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Posted 16 May 2012 - 06:33 AM

Do not start a gluten free diet for her until testing is done.

To keep some sanity, keep a food journal (it looks like you have started doing that). Keep the amounts of food, time consumed, and BM reactions with any other symptoms.
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#5 sleepyrainfall

 
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Posted 16 May 2012 - 08:07 PM

Do not start a gluten free diet for her until testing is done.

To keep some sanity, keep a food journal (it looks like you have started doing that). Keep the amounts of food, time consumed, and BM reactions with any other symptoms.


My babysitter wanted to start the diet right away, and I saw from everyone's posts that it's not even a good idea to go light before we are tested. She is doing better today. Back to 3 bm's and eating. Also considering she may have had a virus as I got similar symptoms yesterday and then phone call from Babysitter also mentioned same symptoms. Either way were are going to see Dr. on Monday for a follow up and prob. referal for allergy testing as well as stool sample until we get into the GI.

I started keeping a log of her food back when taking away the dairy for a month did not appear to help her reduce amount of BMs. I am used to measuring my food from my gestational diabetes. Thanks to all for support. Sometimes it just helps to hear you are on the right track.
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