Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Question About Eating Out
0

4 posts in this topic

Hello,

I am newly-diagnosed and am traveling for work right now, and it is apparent that I'm still navigating the learning curve!

I tried to bring some gluten-free snacks with me but found myself at the train station, preparing to head home, and still needed to eat lunch. I had a choice - I could buy junky gluten-free snacks at the Hudson News, or I could look for a more balanced/nutritious option at one of the train station's restaurants. Wanting to keep my blood sugar level and get an actual meal, I went for the latter and headed to a deli that looked very clean on the inside. Everything seemed very contained, and the prep area seemed very clean. They had some tuna salad that they said was gluten-free and contained only tuna, mayo and celery. Okay, so far so good, maybe...but maybe I should have double-checked the mayo? It seemed like they made the tuna in-house, but should I have double-checked that?

I then asked if the tuna salad was touched with a knife that was used to make sandwiches and explained that I needed to be extremely careful about CC. They said that no knives came into contact with the tuna salad and explained that the salad was only touched with a metal spoon that was dedicated to that item. I made it doubly clear that any cross-contamination would be unsafe for me, and they seemed to sort of get it but without a true understanding of gluten intolerance. I bought it and ate it but was uncomfortable -- such a Catch-22 -- and felt like maybe I had made an unsafe decision, OR that maybe I was actually worrying too much about something that was safe.

So, my question is whether I did a good job scoping out the deli and asking questions, or if I was sloppy, possibly for the sake of getting a balanced meal...please be honest. I really appreciate your feedback, as this is a real source of stress and confusion for me right now. Some folks on here never eat out; meanwhile, others seem to navigate the eating-out world rather well and seem so comfortable. Being newly-diagnosed, I feel scared about eating out but realize that my lifestyle is such that I will sometimes have to do so and need to develop the judgement to do it safely. Thank you for your help!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I don't think you are going to encounter a gluten problem with mayo; soy, yes, but not gluten. If the tuna had a dedicated spoon and then used a clean knife and gloves, then I think you did all that you could do. Sometimes we just have to take a risk - for some of us the risk of not eating is greater than the risk of a small amount of cc, though no cc is of course the goal. I think you did fine.

The degree of concern amongst our posters usually matches their degrees of sensitivity. Those who are the most sensitive to gluten worry the most. :)

2

Share this post


Link to post
Share on other sites

I don't think you are going to encounter a gluten problem with mayo; soy, yes, but not gluten. If the tuna had a dedicated spoon and then used a clean knife and gloves, then I think you did all that you could do. Sometimes we just have to take a risk - for some of us the risk of not eating is greater than the risk of a small amount of cc, though no cc is of course the goal. I think you did fine.

The degree of concern amongst our posters usually matches their degrees of sensitivity. Those who are the most sensitive to gluten worry the most. :)

Thanks a lot, mushroom. It is so helpful to get feedback from someone who has developed "celiac judgment". I am really trying to figure out how safe is safe enough without driving myself batty. On some level I guess i'm really struggling with the concept of varying sensitivity in celiac. Do we all get sick from the same amount of gluten, or do some really need to be more careful than others? Is it that, ultimately, we all have the same auto-immune response but some are more in touch with it than others because their auto-immune fallout is more apparent (i.e. they have worse symptoms)? It doesn't help that I'm in the early healing phase. With my body still feeling a bit all over the place, i think it adds to my confusion...

0

Share this post


Link to post
Share on other sites

Tuna salad isn't always safe because for some strange reason some places put bread crumbs in it. But this place said it was safe. All you can do is go with what they say.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,313
  • Topics

  • Posts

    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
    • Thanks for sharing with me.  I really appreciate it.  Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year!  The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight.  Our recent vacation to Europe was worth the risk  as we traveled with our entire extended family, but we were extra cautious and ate only at celiac-approved places.  Otherwise, we "dined" at markets or ate the food we brought from home.  Thankfully, we did not get glutened (at least we don't think so!)  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,122
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined