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Hi, I am currently awaiting the results of my enterolab specimen...meanwhile, I started gluten-free diet today...I was diagnosed with Fibromyalgia a yr. ago. I am a nurse and mourned the loss of my career and energy. At 36 I had given up on the idea of ever feeling great again...depression, fatigue, muscle pain, digestive issues, sleep issues....then, my son started with Celiac symptoms (his father, who is not in the picture once told me that he had celiac "as a child") I started reading books on celiac and by god!!!! I have no doubt that I have it...that my mom has it, that my sister has it, that my aunt has it and obviously, my son is screwed every which way he looks....Enterolab is so that I have something in writing but anyhow, TODAY IS THE FIRST DAY OF gluten-free AND I FEEL BETTER THAN I HAVE IN YEARS!! Could I be that affected by gluten that after only one day I am coming back up?? Of course, by 2 in the afternoon I had a "caffeine" headache going strong....withdrawal from something...gluten?? Dare I believe that I might actually be peeking at my old self?? I want to cry for joy... Paula

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Hi Paula, that is AWESOME news, good for you!!! :D

After going gluten-free I could tell a difference within a few days. The first thing I noticed, the abdominal pain was GONE!!! It takes some people longer to begin to feel better than others so enjoy your "new health"!!!!

Take care

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Paula,

Great news! I hope you feel better forever!

However, I want to just caution you ahead of time... Since the Enterolab tests do not provide a diagnosis that is recognized by most doctors, insurance companies, IRS, etc, etc, you may wish to continue to ingest gluten until you get your results back. If they come back positive, this will allow you to pursue an official diagnosis from a gastroenterologist.

Unfortunately, the "official" diagnostic tests require you to be on a diet containing gluten. If you go gluten free now, and then try to get a gastro diagnosis months from now, the tests may come back negative.

For all the explanations and reasons for why to get an official diagnosis, see the discussion titled "Why to get a diagnosis" in this same section. Furthermore, you must consider the impact that a proper diagnosis for you will have on your son.

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thank you for the advice. I guess that I am not real concerned with the diagnosis being made by a traditional means...Enterolab is fine with me. Paula

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    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
    • My daughter had the HPV Vaccine last year. It was administered in three doses in April 2015, May 2015, and August 2015. Immediately after the third dose, she started having weird symptoms such has headaches, irritability, and a general feeling of being unwell (which she never had before). About three months later she started having gastro symptoms, most notably constant nausea. For several months we tried to figure out what was wrong and none of the doctors knew. After seeing many doctors and having a battery of tests, she was finally diagnosed with Celiac in August 2016. Her intestinal damage was a 3b Marsh score. No one else in our immediate or extended family has Celiac (myself and my other daughter were tested and are negative). No one else has symptoms or any indication that they could have Celiac. I feel like my daughter could have gone her whole life without being triggered and I'm feeling very guilty for making her get this controversial vaccine. I have done a lot of research and there seems to be conflicting studies regarding vaccines and autoimmune diseases. Some say there is no link, while others say there is a possible link, but it cannot be proven at this time. No one seems to know for sure what triggers Celiac...could it be vaccines? I'm wondering if anyone else feels that their Celiac Disease was triggered by a vaccine?  
    • Here is an article, albeit short, about Myocarditis and Celiac disease.  I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it.  I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also.  I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement.  Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck! 
      https://www.ncbi.nlm.nih.gov/pubmed/12045166
    • Older people often show clinically atypical symptoms of celiac disease, which can delay diagnosis. View the full article
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