Help Please - No Gluten, No Lactose, And No Sucrose
Posted 17 May 2012 - 08:10 AM
When I asked the nurse questions such as "can he have fresh fruit? Artificial sweeteners? How long do we need to do this?" She had to get off the phone and ask someone else all of my questions and was not very educated on the matter. I was told no fruit (which I figured) and we could have artificial sweeteners just not splenda. My son's 4 yr old birthday party is in 2 weeks - I'm guessing no cake. Also, I have recently got him to swallow his Prevacid capsule in a spoonful of applesauce - ideas on this now. We have the pill form because evidently the chewable tablet is not covered by insurance.
I'm overwhelmed and don't know where to start.
Posted 17 May 2012 - 09:34 AM
Positive Celiac Blood Panel - Dec., 2009
Endoscopy with Positive Biopsy - April 9, 2010
Gluten Free - April 9, 2010
Posted 17 May 2012 - 02:24 PM
Posted 17 May 2012 - 02:53 PM
You'll want to make sure that a celiac knowledgeable doctor diagnoses something like that, because from what it sounds like something like celiac disease can cause a temporary form of this (yeah, according to wikipedia, so I don't know how reliable that source is. )
Some fruits have sucrose as the main sugar, some have fructose as the main sugar, so not all are big sources of sucrose. And when it comes to veggies, many of those are technically fruit as well, so where would they fall? And sugarcane is obviously an issue, too, yes? Lots of other foods have added sucrose, too (boullion can, for example), so if it's actually the issue, you'll definitely need some help tracking it down.
For food, though - you'll have to make everything from scratch, first off. There is almost nothing out there processed that is gluten free and sugar cane free (I'm allergic to sugar cane, so I was really looking in the beginning!).
If your little one can have agave syrup (that's about 2% sucrose, a little glucose, and mostly fructose), one desert treat is the So Delicious coconut based frozen 'ice cream.' It's dairy free, gluten free, and they use agave syrup rather than sugar cane. I am not sure of the other ingredients, however, so you'll need to check those.
Things that worked for us in this situation (dairy, gluten, and sugar cane free): hummus and raw veggies to dip into it, roasted chickpeas for crunchy snacks, roasted veggies, ground meat with little homemade sauces, veggies, or grains inside. Grape leaves or lettuce leaves wrapped around fish, soy sauce, and cucumber or other veggies. Chicken works well too. little rice sushi rolls are great, and meatballs as finger foods with tomato, soy sauce, mayo, horseradish, mustard, or veggie sauces. Yacon syrup is one your little one might be able to have, as it has inulin as the sweetener. Expensive, though, so you probably won't be able to use much.
Making things from whole grains should work well, for breads, although you'll have to see if you can add any sweetener at all. If not, crackers might be best. Or get some corn masa (treated corn flour) to make corn tortillas and use salt, water, and corn masa for the simplest, dry pan fried. They taste great, are filling, and are great with fried pieces of meat or potatoes. Tear off a piece of tortilla and put some of the filling on them and eat like that.
A mexican lasagna is made like that. Home-made (and cooked) corn tortillas alternating with a chicken/chile/tomatoes mixture. The chicken mixture should be juicy, so soaks into the corn tortillas. Turns out nice, IMO. Can also use tofu for another layer, if you can use that. Get silken tofu, mash it with a fork, mix it with herbs/salt/seasonings, and put it in the lasagna like you would cheese. With enough seasonings, and the strong flavors of the other ingredients, it just adds the nice consistency of almost-cheese and tastes fine. :-)
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease
23 years with undiagnosed sulfite sensitivity
25 years with undiagnosed mast cell activation disorder (MCAD)
Daughter: celiac and MCAD positive
Son: gluten intolerant
Father, brother: celiac positive
Posted 17 May 2012 - 05:01 PM
So I guess I need to ask can he have glucose or fructose too. I guess I really need to question some more. I was told he could have artificial sweeteners, but I'm not excited about giving him those.
Posted 17 May 2012 - 05:03 PM
Posted 17 May 2012 - 08:04 PM
Most fruits have more fructose than sucrose, and it appears that a balance of the two tends to cause fewer issues. So bananas are actually one of the few fruits that generally don't cause an issue. A couple of other fruits that are more balanced are blueberries and very ripe grapes.
This is all just from reading that I have done trying to help DS. And I would imagine that you have to base it on what they can tolerate as well. DS does ok with small amounts of lactose in fermented dairy, while fresh milk will trigger 3 days of diarrhea, and too much cheese will always lead to couple of light colored stools. Too many strawberries or mango and his poop just goes right through him, with huge chunks of undigested fruit in it, but he can eat a limited amount without a major change from his usual stools (which are generally loose and sandy, but we aren't gluten-free yet).
Posted 18 May 2012 - 07:56 AM
Posted 18 May 2012 - 05:51 PM
I just want to do everything perfect. I feel like I'm slowly getting this gluten free diet, but too much too soon is scary. I'm also feeling pretty confident about lactose free since my son drank a full glass of lactose free milk and didn't notice. Thanks for the support. This group has been so helpful through this scary transition. I can't wait for my son to start gaining weight and playing like his friends.
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