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Feel Weird- 3Rd Week Of gluten-free Diet
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I have felt horrible my entire life, and have had hundreds of tests done to figure out why my intestinal tract reacts the way it does. I stopped having tests done about 8 years ago because I couldn't afford it anymore, and was told I had IBS. I recently have been doing some more research and found out I was 0- blood type, and that I should try a Gluten Free diet. I've been gluten-free for about 3 weeks now, and as of this past week I feel as if I'm lacking something. I can't pin point exactly what I'm feeling but I feel a little nauseous, dizzy, and get sweats. Has anyone else felt this? The past 2 days I've started taking a multivitamin and some fish oil. I'm not sure if it's helping or making my symptoms worse. I have yet to see a doctor because I just got insurance, and have not seen a nutritionist. I've been getting most of my information from forums. Thanks for listening.

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What kinds of foods are you eating?

Oftentimes, whole unprocessed foods make a huge difference compared to a diet w/ a lot of processed foods, made from a long list of ingreds.

It also makes it far easier to find which foods might be problematic.

Lactose, casein (milk sugar & a milk protein) & soy issues are pretty common around here.

Something you've been fine eating before might not agree w/ you while healing.

It could be as simple as, say the one 'replacement product' (gluten-free reformulations of cookies, crackers, bread etc) that uses some tapioca flour, or mung bean or fava bean flour or some other ingred that you just weren't exposed to much before might have always been disagreeable but never came up.

It's a lot simpler to find out when eating a simple diet.

Or maybe the current issue 3 wks in is from something else - ppl w/ pets might try a different pet food that's on sale & find out later it's got gluten & has been affecting them.

All sorts of unlikely things might be involved & ppl here will help you find them, so don't be daunted by the scope (easier said than done - we've all felt overwhelmed early on).

Gotta start w/ reviewing current diet.

So, whatcha eatin'?

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I call what you're feeling gluten withdrawal. I felt like that & then some. It lasts different for different people. But you will find plenty of discussion on it here in threads. Use the search box & put in gluten withdrawal or just withdrawal.

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I am three weeks into gluten free and can relate. I felt so good for the first week. The swirls in my head are quieter, but they are still there.

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Withdrawal. First 6 weeks can be tough for a lot of people. Stick with it, it gets better!

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Yep, I think it's a sort of withdrawal. I had the same thing a couple weeks after I quit. I suddenly had crazy headaches and was wicked dizzy with terrible stomach pains. I felt like I was hung over! What I read is the gluten submits a toxic layer to your stomach lining. When you quit the gluten is starts to peel away and enter your stomach for a bit before it passes. Just stick by your water bottle and it'll pass. Keep up the good work!

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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