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Still Not Feeling Good


ClaudiaMize

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ClaudiaMize Newbie

I'm just wondering if anyone else is running into this... I was diagnosed with what my doctor referred to as severe Celiac Disease over a month ago. Since finding out, I have gone seriously gluten free. I only eat strictly gluten-free things (I don't eat items made in wheat facilities/ I have thrown out anything I can think of that could be a factor in cross-contamination/ I use stainless steel spoons for mixing things; I don't touch plastic, wood, or teflon). I feel that I am being REALLY careful. However, I still do not feel good at all. I suppose I feel better than I did before I was diagnosed because I couldn't even really function then whereas now I can function, but I feel like crap. My stomach is always hurting, I get migraines a couple times a week... etc.

So, my big question is... Is any Celiac out there gone raw. The only constant I have noticed is that I feel fine when I drink a TON of water and eat raw. The second that I eat cooked food, I get so sick. I just wanted to see if anyone related before I went for it....

Thanks!

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sa1937 Community Regular

Welcome, Claudia!

While I can't give you any insight as to a raw foods diet, it's quite common for people to still have symptoms after only being gluten-free for a month. Some (but not all) also go through withdrawal. If you had a lot of damage, I think what you're experiencing is probably very normal. And then some find they develop intolerances to other foods. You're going to have to give it time. I've read it can take up to two years or longer to get back to "normal", whatever normal means. You may also want to give up any processed foods for the time being, too.

Hopefully someone else will chime in on a raw foods diet.

In the meantime you might also want to check out the Newbie 101 topic.

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deb445 Rookie

My oldest son (5 yrs) is self-professed raw food vegan - with the exception of McDonald's fries (a new addition to his repertoire) and a few gluten-free/df baked goods I cook up. He is growing quite well, and happy. It's not that tricky because because we find we can't "eat out" anyway. It used to make me anxious, that he only ate raw fruits and vegetables,seeds and nuts, but I came to realize that my anxiety was fueled by other peoples' perceptions. One day I picked up and read the book "The China Study". Eye opening. I no longer worry, and I think his diet is better than mine. He has taught me alot - and he is only 5! I never would have dreamt that I'd be preparing meals for a raw food vegan - and it suits our gluten free lifestyle perfectly.

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    • Anmol
      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
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    • knitty kitty
      Forgot one... https://www.hormonesmatter.com/eosinophilic-esophagitis-sugar-thiamine-sensitive/
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