Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Rookie Trying To Cope.. Think Gluten's The Culprit..
0

3 posts in this topic

Hello everyone,

Please forgive me if this isn't the proper place to post, but I'm a 26 y/o male and I've been sick for the past year with no help from three different gastroenterologists. I think it might be gluten, but my test came back negative for celiac's, so perhaps just an intolerance? My main symptoms are a lot of gas, GERD, overall crappiness, fatigue, lack of sex drive, depression, and mostly a cramping pain in my upper stomach right below my ribs. This seems to be the most prevalent, along with a crazy bloating. I've been taking Nexium which has helped with heartburn, but that's about it. I also started taking this probiotic called VSL#3. It's really strong, take a look at it if you aren't familiar. I can't tell much yet from it since it's only been a week. I've also been unresponsive to any IBS meds my doctors have tried on me, so that leads me to think maybe it is gluten causing the trouble.

I went gluten-free back in October for about a month, but I couldn't tell if I was feeling any different. Unbeknownst to me, I was also consuming potatoes/french fries once a week unaware that they could contain gluten, as well. So, I'm really not sure what else to do. I've decided to go gluten-free again, and started about 4 days ago.

I'm looking to feeling better and I hope going gluten-free helps. It's put a lot of strain on my relationship. Some days I just don't know what to do anymore. I miss having fun with friends, feeling well enough to work out, and just feeling good about myself. I've also gained 20 pounds. Has anyone else had any similar situations? I hope maybe I can get better within a month..

Thanks a lot, everyone.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Man Im 26 this year and for the last year have been trying to cope with the same shit as you have. Its hard. These days its enjoying the small things that seem to keep getting harder and harder. Summer time hits and you wanna have a beer and bbq.....CANT. I know what you mean by the relationships and depression hitting....I assumed it was just the great paying, but totally shitty job i hate working that i was doing...now it seems to be gluten this and gluten that.

Hang in there man...for me 4 years ago this wasnt a problem... im hoping a new job will settle more nerves down and i wont be rocking a crazy schedule and be able to eat properly.

Thats what the majority of this is...eating healthy...and then theres the shampoos and soaps and stuff you gotta use differently!

But once again hang in there! Im in the same boat as you....frustration and panic attacks more severe than ever now but it will pass!

0

Share this post


Link to post
Share on other sites

First of all guys, you can have beer and BBQ, it just has to be gluten-free. ;)

Welcome to the Forum!

Your raise a lot of questions. Let's see if I can help a little and other members can chime in. This is an amazing group of knowledgeable and supportive people.

Your symptoms sure sound gluten-related and negative test results do not automatically exclude celiac or NCGI. Many of us tested negative.

IBS is a common label given to a set of symptoms. We joke on here that it stands for the doctors' thinking: "I Be Stumped"

Many of us heard that, too.

GERD and IBS? I had those miserable symptoms for 25 years. No meds ever helped. Since DX and being gluten-free, they are GONE.

Regular Potatoes are gluten-free.

French fries, however, made in a fryer that is used for frying breaded products are not okay, as they will be cross-contaminated.

Taking a probiotic is a very good idea.

Unless you have a contact wheat allergy, too and DH (Dermatitis herpetiformis) you do not need to excessively worry about shampoo or topicals. Some people say they have reactions to wheat protein in these products, but the majority do not. I avoid them personally, but that's just me.

Be careful of your lipstick, though as that may get in your mouth. :D This goes for kissing gluten-eaters too. They should brush their teeth before getting too "involved". :)

Instead of writing a giant post again, :lol: may I direct you to the Newbie Info 101 thread in this section (COPING) and see if any of that information is helpful to you?

Best wishes.

It takes a lot longer than a few weeks to see symptom resolution. You'll have to be patient. Hang in there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,647
    • Total Posts
      918,464
  • Topics

  • Posts

    • Biopsy confirmed?
      Right, usually they do an endoscopy after a positive blood antibody test.  The biopsy confirms the antibody results.  Doing them in the reverse order doesn't hurt anything though.  Sometimes people "fail" the antibody tests but still have gut damage.  Not everybody makes the same antibodies or in the same quantities.  Anyway, you should make sure they are doing the complete celiac antibody panel, not just a ttg test. And don't worry if the celiac tests are positive for gliaden antibodies.  Going gluten-free is an adjustment to your diet. Quite a few people around here have managed to adjust successfully.  It takes some effort, but anything worthwhile does they say.
    • Celiac Night Vision
      I don't have scotomas but you might find more help on a forum dedicated to vision issues.  Here are a couple I found.  the last link is a Yahoo search for "eye forum"  There may be others found if you try a search on Google. http://www.medhelp.org/forums/Eye-Care/show/90 http://www.healthboards.com/boards/eye-vision/ https://search.yahoo.com/yhs/search?p=eye+forum&ei=UTF-8&hspart=mozilla&hsimp=yhs-003
    • Positive Biopsy, Negative Blood Tests
      BTW, all first degree relatives of celiacs are supposed to be tested for celiac every 2 years in the absence of symptoms -- immediately if symptoms present. Your kids, your parents & all siblings should be tested. And that goes for your brothers kids too.
    • Positive Biopsy, Negative Blood Tests
      I agree completely with cyclinglady! Do you even know that there is such a thing called silent celiac? No symptoms at all but the villi are damaged.  I see you joined in 2009. Why? Is that when your brother was diagnosed? IMHO you need to do a lot of research & find out just exactly what you're risking. 
    • Positive Biopsy, Negative Blood Tests
      What?  Be sure that next endoscopy tests you for lymphoma (cancer) as well!   Seriously.  You need to do some research as your knowledge of celiac disease is lacking.  Did you fail the entire celiac panel?  Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA?  You have a family history, a positive biopsy, what more do you need?  You do realize that this is not about just giving up gluten, don't you?  We just had a member join this year who was told years ago that her tests were "inconclusive" and that she now has suffered with lymphoma (cancer)? Ugh!   Endoscopy in 10 years?  Who would even wait 10 years?  This isn't colon cancer and polyps!   Are you talking about a colonoscopy?  Are you even sure you had an endoscopy?   Be sure you have your bones checked too.....and forget the breath.  You might not have any teeth and implants will be out since your bones will be compromised. Sorry, if I come on strong, but when I was diagnosed I had no tummy issues.  A few months later, my bones began breaking.  I was undiagnosed for a long time because of mis-informed doctors.  At least it was not stupidity on my part.   So, I urge you to research this disease more!  Hopefully you'll ward on another autoimmune disorder by remaining gluten free.  Find what celiac blood tests were actually taken!  Even if you do not think you have celiac disease, something has caused villi damage -- like a parasite, milk, or something......even more sinister! Good luck!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,741
    • Most Online
      1,763

    Newest Member
    Roemill
    Joined