Any Good Doctors In Tampa Fl
Posted 21 May 2012 - 09:52 AM
I've had chronic GERD for over 5yrs. Currently it's under control with pantaprazole, but I've had all imagineable tests done and doctors can find no physical reason for it.
When both of these symptoms cropped up, I found that they both fit under the umbrella of celiac, so I had myself tested. My doctor said I don't look like someone with celiac (?) but reluctantly tested me anyway. It was negative and I forgot about it for a while. As a side note, the same doctor diagnosed me with fibromyalgia - didn't tell me, but was happy to inform my insurance company when I went to get life insurance. Thanks Doc. Almost an extra $80 a month for insurance.
About 2 yrs ago I noticed neck pains when my kids would climb on me. My doctor sent me to an ENT with enlarged lymph nodes in my neck. At this point again, I came back to the possibility of celiac, so Jan 1st (on my own) decided to try going gluten-free. I got a book by Danna Korn to help me with my dietary questions. In it I found that if you've ever had Dermatitis Herpetiformis, you have celiac. Guess what I had about 30yrs ago... that's right, I had DH when I was a teenager. My doctor at the time spotted it instantly. A nasty, itchy rash on both knees. He told me I had a gluten intolerance and to stop eating wheat (he never said forever), gave me a cream and sent me on my way. It was a long time ago, but I seem to remember it going away fairly quickly. And then I resumed eating wheat. Now I've been gluten-free since January 1st.
Anyway, I just finished my 3rd neck ultrasound and for the first time since I noticed it, the nodes haven't gotten bigger. I'm having a needle biopsy done this Wednesday because the ENT is still concerned - as am I.
I also asked my ENT if he thought there could be any connection between the lymph nodes and gluten, to which he replied: "they are learning more and more about that every day" and stuck his face back into his laptop. Anyway, I'd like to be treated by "they".
As much as my well intentioned, sponsored by big pharma doctors try, I don't think they have a clue about these particular autoimmune diseases. All this to say, does anyone know a good doctor in the Tampa Florida area. I'm actually a bit east, over in Lithia, but more than willing to travel for the sake of my health.
Posted 21 May 2012 - 06:51 PM
I had a huge, painful lymph node on my neck for 20 years that docs dismissed. Guess what went away when I went gluten-free?
Doc also told me my 8 yr old "just didn't look like a celiac kid"- six months before his very positive biopsy. When I insisted on testing myself and my daughter he poo-pooed that as well. And then he stared in disbelief at our positive biopsy reports.
Do you absolutely need the dx? If you had DH, you have to go gluten-free.
You will likely see the rest of your issues disappear gradually as well.
Dx is nice, but finding a doctor knowledgable enough to actually dx you...well, that could take some doing!
Posted 24 May 2012 - 10:55 AM
As far as a diagnosis goes, having had the DH is good enough for me. I just wanted a doctor who's knowledgeable on the subject and isn't just humoring me.
Posted 04 July 2012 - 05:51 AM
Posted 04 July 2012 - 08:55 AM
Now, there's no reason you can't get your PCP to do your vitamin levels & such for you. There are many threads on here stating what tests should be done --- use the search box above.
Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.
Posted 26 August 2012 - 03:33 PM
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