Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Member, Results Tomorrow
0

6 posts in this topic

Tomorrow I go to the doctor. I'm real worried that it'll turn out that my tests are negative. I know that may sound strange, but Celiac explains everything, all my syptoms for all these years.

It's rather depressing to look at the list of syptoms, know I have so many of them and then just *know* that the test results are not going to confirm my thoughts. How do I know? Well, the dorctors here always call if you have bad test results. I've had no call and it's been two months. I tried a gluten challenge. All my syptoms went away, only to return when I ate something with gluten.

*sigh*

Thanks for listening. This site is wonderful. I wouldn't have had a clue what gluten was if not for this place.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I understand how hard it is to be waiting for test results. I had the tests done last week and I'm probably call tomorrow if I don't hear anything. My dd was tested months ago and I've put so much into her diganosis and recovery, I put my own health on the back bunner. Now that we can see a difference with her, I'm trying to examine my own health as well.

Hopefully you'll get the answers you need tomorrow.

Just something to think about...depending on your diagnosis. I went gluten-free for a while with my dd and then I also got sick when I started eating it again. I've almost come to understand that regardless of my results, my body doesn't tolerate gluten. :)

Take Care

0

Share this post


Link to post
Share on other sites

Fingers crossed for you. I know exactly what you mean. It seems so silly to pray that you've got a disease, but when it seems to explain everything.... I just found out about celiac disease a week ago and I feel the same way. I've got an appt to talk to a doctor in early Oct. It seems like forever to wait.

Let us know how things go.

Nancy

0

Share this post


Link to post
Share on other sites

Well, I just got back from the doctor's office and, as I suspected, the test(s) were negative. However, the doctor wants me to be wheat/gluten free and try an elimination diet, while monitored by a dietician.

So, I guess it's kind of a wishy-washy diagnosis. He thinks I'm intolerant or sensitive, posibly to gluten, possibly just wheat.

At least I have this place to help me sort out what I can and can't have while I figure things out.

~shine

0

Share this post


Link to post
Share on other sites

It's hard to know what to say.... I'm glad they don't think you have it because who wants someone else to have a disease. But I'm disappointed for you that you didn't get a definite diagnosis. Then, I'm glad your doctor is recommending a gluten free diet and help from a dietician, so you can know if it really is gluten that is causing your problems.

I hope you feel better soon.

Nancy

0

Share this post


Link to post
Share on other sites




The dietary challenge is a valid diagnostic test, and I'm glad for you that you got a doctor who is willing to use it.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,132
    • Total Posts
      919,525
  • Topics

  • Posts

    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    georgemathews
    Joined