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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Gluten-free menus enter food chain

ASSOCIATED PRESS

NEW YORK (AP) - As a longtime chef in four-star restaurants, Joseph Pace had seen appreciative customers before. But nothing prepared him for the day that a well-dressed man walked into his Greenwich Village restaurant, ordered a pizza and a beer, and broke into tears.

That man, Pace recalls, had been diagnosed 10 years earlier with celiac disease - an incurable affliction that makes the body unable to take anything containing gluten, a protein found in wheat, barley and rye.

The pizza and beer that Pace serves in his restaurant Risotteria, like many other items on his menu, are formulated with substitutes for wheat and barley, making his place a magnet for people who have celiac disease. The customer told Pace that he hadn't been able to enjoy a pizza and beer for a decade.

"This is what the restaurant business is," Pace said. "Making people happy."

Not every customer may be as effusive as that one, but Pace says he gets tremendous amounts of feedback from customers, which also helps him try out new recipes. His latest experiment is a pasta made from white beans. Rice, the main ingredient in risotto, is naturally gluten-free.

Founded just five years ago, Pace's restaurant quickly became known among people with celiac disease, who make heavy use of the Internet and e-mail to share restaurant recommendations.

Several major restaurant chains are also reaching out to the celiac community. Outback Steakhouse, P.F. Chang's and other restaurant companies offer menus of gluten-free dishes, and more are joining them.

Last month, Mitchell's Fish Market, a 13-restaurant chain based in Columbus, Ohio, introduced gluten-free menus, and six months ago Boston-based Legal Sea Foods did the same in its 31 restaurants. Richard Vellante, the executive chef for Legal Sea Foods, said his company adopted a gluten-free menu after hearing requests from customers and also noticing that competing restaurants were doing it.

For people with celiac disease, dining out can become a source of anxiety because of the risk of unintentionally eating something that contains gluten.

Many consult pocket-sized Clan Thompson food guides published by a Maine family which has six members living with the disease. The Thompsons started making the guides in 1997 and now sell nearly 5,000 a year. Mother Lani K. Thompson, who does not have celiac disease herself, says she's seen a "huge jump" in awareness of the disease in the past year and a half.

Kevin Seplowitz, a former computer security expert who developed the first commercially produced gluten-free beer, Bard's Tale, was diagnosed with celiac disease almost four years ago. He even quit going out to dinner, fearful of inadvertently eating something with gluten in it.

"I think the most underappreciated aspect of being diagnosed with a chronic disease is the psychological impact," Seplowitz said. "You have to be very diligent about it. If we order something and say, a barbecue sauce had beer in it and they say it didn't, we get sick."

Outback Steakhouse, a major casual dining chain with 760 restaurants, has offered a gluten-free menu since 1998, and its Tampa, Fla.-based parent company Outback Steakhouse Inc. has also adopted gluten-free menus at two of its other chains, Carrabba's Italian Grill and Bonefish Grill.

"They're a very loyal following," Ben Novello, president of Outback Steakhouse, said of celiac patients. "The return goes beyond the sales that we generate from the loyal customers we get. It goes to goodwill."

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Wish I lived in Columbus, Boston or Tampa ... :P

There is a place with gluten-free-WF pies (cooked to order, about half an hour) near me but it plays a very loud sound track unfortunately ...

I read of several fish & chip shops that have a gluten-free-WF day a month and people drive several hundred miles for it ...

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
    • 9 year Old going through testing
      Thank you everyone. I have scheduled a second opinion. He last biopsie came back and he is lactose intolerant.     
    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
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