34 Weeks And "mildly Positive"
Posted 22 May 2012 - 01:50 PM
I go for a couple weeks going gluten free(could possibly be cross contamination in there but I'm not really sensitive so I don't know for sure) and then I cheat. I read all the time on this subject but I guess wanted to get some input from other Celiacs.
Do I have reason to be concerned that my baby girl will be born with problems? I am a nervous wreck about this and I am so scared that my lack of self control on eating gluten could have harmed my first baby...I am so frustrated with myself that my constant concern for the well-being of my daughter has not completely kept me from being totally gluten free:(
Thank you for your time.
Posted 22 May 2012 - 03:53 PM
You do need to get your diet under control for you own health as well as your baby. "Mildly positive" is still celiac and you MUST stop eating gluten, 100%. You cannot heal eating gluten occasionally. There is a risk of developing more autoimmunity like Hashimoto's thyroid disease, neurological damage (my mom has that), and a couple kinds of cancers if you continue to eat gluten. It's VERY VERY VERY important that you stop cheating on the diet.
Turn over a new leaf today and start the diet strictly so that you are in great health to care for that beautiful baby.
When do you lose willpower? Are there particular foods that you could get gluten-free so that when you have the urge to have cookies or donuts you can eat gluten-free ones? Gluten is a little addictive so you will have to go "cold turkey" and put up with cravings for a bit but you can do it.
Posted 24 May 2012 - 10:37 AM
Posted 31 May 2012 - 11:59 AM
Posted 31 May 2012 - 12:14 PM
Posted 31 May 2012 - 12:27 PM
Although, from what I understand if your diet is gluten free, you should be fine breastfeeding without risk to baby.
Posted 08 June 2012 - 07:55 PM
Faith For Life
Family History of terminal diabetes, acid reflux, etc.
2010-My 4 yr. old son- chronic diarrhea (3-5x a day since he was 12 months old)and chronic anemia,positive for 2 gluten sensitive antibodies, the genes, inflammation
(no villous atrophy found)
2011-entire family positive for genetics for celiac
2011-myself- positive gluten antibodies across the board
Family is successfully gluten free and some lactose free, studying Specific Carbohydrate Diet and Paleo Diet
Posted 25 August 2012 - 08:20 PM
I got my first + blood test for Celiac when I was around 30 weeks pregnant with my 3rd child. I am pretty sure that was the only pregnancy I went through with undiagnosed celiac disease. I did not go gluten-free during my pregnancy. I tried to initially, but I was dealing with a tremendous amount of stress from my oldest son's hospitalization, my husband's crazy working hours, and moving to a new home, that I just could not put any effort into a new diet (and I didn't even know if I REALLY had celiac disease). I had my son 2 days before his due date and he weighed 9 lb 3 oz (and I am a small girl!). He obviously did not suffer from my celiac disease! I feel incredibly blessed! I also had not tested anemic.
It wasn't until my son was 13 months old that I had the endoscopy and it was confirmed that i have celiac disease. I breastfed him the whole time and still do (he is almost 14 months) nurse him 3 times a day. No problems with my milk supply and he has grown beautifully I will warn you that i craved carbs like crazy those first few months of breastfeeding, so if you really think you could have celiac disease stock up on some good gluten-free carby snacky options for the starving nursing mom stage
Oh and one last thing.. if you want to get an endoscopy while breastfeeding, they can use propofal to sedate you, which leaves your system sooner than the sedative they typically use
Hashimoto's and Celiac Disease
Posted 25 August 2012 - 09:04 PM
While I believe you have not harmed to your child I do hope you will give up gluten completely - you need to be healthy and strong to be the Mom you want to be now and in the future.
Find gluten free alternatives to whatever you are cheating with. I don't suggest eating a bunch of processed food - but far better to indulge in gluten-free treats than gluten filled ones.
Treat yourself well, stock up on something yummy and rest as much as you can!
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE -- probable cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
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