Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New Member Newly Diagnosed
0

15 posts in this topic

Hi everyone, I was just diagnosed with celiac.I have started gluten free for 2 days now and i feel like i have been in a car wreck!!i am so exhausted!! and cant think straight, I have read these are withdrawal symptoms? how long will this last and why is this happening? I feel worse being off gluten!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board and to the gluten free life -

Not everyone gets withdrawal symptoms (I did, my son did not) but they don't last long. For me, the first 4-5 days were the worst (worst symptom was a terrible headache that would not quit) then it gradually got better and better until I started to feel great (1-2 weeks?). After that, each week that passed, I felt even better. Some symptoms are slow to leave, but just be patient.

The first months are also hard because you are likely to make mistakes that will set you back for a short time (mine was gluten in my B vitamin). It took me a long time to figure that one out. Stick with whole, naturally gluten free foods in the beginning (meat, dairy, fruits, rice, vegetables, nuts) and steer clear of the gluten-free processed foods (cookies, crackers, pasta, bread, etc.) until you are feeling better. It is easy to get caught up in all the gluten-free products - most of which have very little nutritional value. Get healthy first and give your body a chance to heal.

It gets easier and it is totally worth it. Hang in there -

Cara

0

Share this post


Link to post
Share on other sites

I second what Cara said. I will tell you though that my withdrawal symptoms lasted a month but I had no headaches. Each of us is different & no one can predict or tell you your withdrawal will last x days or x weeks. But I will tell you like Cara said --- it DOES get better & you will be happy! You just have to hang in there & tough it out. Whole foods.

My husband is over 3 weeks gluten-free & has had ZERO withdrawal symptoms. I'm jealous!smile.gif

0

Share this post


Link to post
Share on other sites

Thank you so much for your responses, the diagnosis is very overwhelming. but i need to heal my body, thanks for the food suggestions any advice helps ALOT! so glad i found this site.

0

Share this post


Link to post
Share on other sites

Ask any questions anytime Janine. And this is the place for ranting if you need to; also for voicing frustrations. We understand. Been there, done that you know.

The best thing you can do is to read as much on this board as you can & ask if you aren't clear on anything.

I also will say that most celiacs have to lay off the dairy for a while. Most can add it back after a time but some never can. And many celiacs cannot tolerate soy; I am one of those.

And the whole foods is the best for healing you right now & for say 3 months. Shop the edges of the store. Forget processed foods; even canned tomatoes. This also allows you time to learn all the rules without being stressed out & overwhelmed. The last thing you need as a newbie is to get accidentally glutened. There is a steep learning curve involved; VERY steep.

Have you had your thyroid checked & I mean the FULL panel not just your TSH? If not then get your doc to do so. Also, you need to have your vitamin levels checked before you begin taking vitamins so you can know where you're at now. Then after that you need to go on the appropriate vitamins.

I will reiterate that the withdrawal can get pretty hairy. Or not. ??? I got real woozy, dizzish feelings & like my knees were going to buckle. I had those things before going gluten-free b/c of the damage toll on my body from gluten but when I went through withdrawal it got much worse.

I had a lot of trouble (& others too) with what felt like low blood sugar. And most, myself included, get ravenous! Continually! It's normal during this. Don't worry about weight or calories right now. EAT! Your body is telling you to EAT b/c it has been lacking the nutrients for so long. It's trying to make you well & repair itself. EAT! Protein is a big factor --- we seem to need more of it & it's good to eat some fat with the protein. As far as that goes it also applies to carbs --- example: you eat an apple --- have a few cashews with it.

I wish you swift healing!

0

Share this post


Link to post
Share on other sites




I'm on day 26 of being gluten free and I'm still having headaches everyday. They are the kind that don't go away, even with excedrine which always works for me. Our bodies are detoxing trying to get all of the poison out of us and some people get worse before they are better. I sure hope these headaches stop soon though. I am happy to say my GERD has gone away and my BMs are what most people probably consider "normal"! Yay for that! :)

0

Share this post


Link to post
Share on other sites

I'm on day 26 of being gluten free and I'm still having headaches everyday. They are the kind that don't go away, even with excedrine which always works for me. Our bodies are detoxing trying to get all of the poison out of us and some people get worse before they are better. I sure hope these headaches stop soon though. I am happy to say my GERD has gone away and my BMs are what most people probably consider "normal"! Yay for that! :)

Glad to hear that! I hope to feel like that in a month. I am learning that I can't tolerate anything that I ate before. I had GERD issues yesterday. Prior to this sickness, I had not had any issues with GERD since 2008. Can't wait to feel like that again.

0

Share this post


Link to post
Share on other sites

I can completely relate to what you're feeling - I was diagnosed earlier this month and the withdrawal symptoms were interesting (to say the least). I was very fatigued (naps all the time), walked around in a haze, couldn't concentrate on anything, and basically felt worse than I did prior to being diagnosed (please keep in mind I didnt have terrible GI symptoms to begin with). There were times that I cried over the smallest thing - specifically when I went into a fudge shop that couldn't guarantee that the fudge wasn't mixed with flour. Thank god my fiance has been very understanding and has been willing to deal with my mood swings....

On the positive side, I'm starting to feel a bit better and think that I'm continuing uphill. The people on this forum are VERY knowledgeable and supportive - I agree with the others - keep reading the posts and you'll learn so much. I know I did. Please hang in there and do NOT hesitate to reach out for support - feel free to message me anytime, we can both be newbies together. :) Best wishes!!!

0

Share this post


Link to post
Share on other sites

Changing the type of fuel (what you eat) that you run on, means your body's chemistry changes.. Or at least I believe so.. Hang in there :-)

2

Share this post


Link to post
Share on other sites

Changing the type of fuel (what you eat) that you run on, means your body's chemistry changes.. Or at least I believe so.. Hang in there :-)

And leave it to dear Dani to put it so simply. I would have made a hash of it trying to get all technical & would have ended up tangled in my spurs.

Perfect Dani! My hat's off to you!biggrin.gif

0

Share this post


Link to post
Share on other sites

I'm on day 26 of being gluten free and I'm still having headaches everyday. They are the kind that don't go away, even with excedrine which always works for me. Our bodies are detoxing trying to get all of the poison out of us and some people get worse before they are better. I sure hope these headaches stop soon though. I am happy to say my GERD has gone away and my BMs are what most people probably consider "normal"! Yay for that! :)

I only keep Aleve in my house, but here is a list:

http://www.livestrong.com/article/70354-glutenfree-medication-list/

Over-the-Counter Pain Relievers

Over-the-counter pain relievers that are gluten-free include Advil, Aleve, Excedrin Migraine, Aspirin-Free PM, Motrin, St.Joseph's Aspirin, Tylenol and Tylenol PM.

Read more: http://www.livestrong.com/article/70354-glutenfree-medication-list/#ixzz1vkdKHmyK

Aleve works for me.

0

Share this post


Link to post
Share on other sites

And leave it to dear Dani to put it so simply. I would have made a hash of it trying to get all technical & would have ended up tangled in my spurs.

Perfect Dani! My hat's off to you!biggrin.gif

Always at your service :-D

0

Share this post


Link to post
Share on other sites

Ask any questions anytime Janine. And this is the place for ranting if you need to; also for voicing frustrations. We understand. Been there, done that you know.

The best thing you can do is to read as much on this board as you can & ask if you aren't clear on anything.

I also will say that most celiacs have to lay off the dairy for a while. Most can add it back after a time but some never can. And many celiacs cannot tolerate soy; I am one of those.

And the whole foods is the best for healing you right now & for say 3 months. Shop the edges of the store. Forget processed foods; even canned tomatoes. This also allows you time to learn all the rules without being stressed out & overwhelmed. The last thing you need as a newbie is to get accidentally glutened. There is a steep learning curve involved; VERY steep.

Have you had your thyroid checked & I mean the FULL panel not just your TSH? If not then get your doc to do so. Also, you need to have your vitamin levels checked before you begin taking vitamins so you can know where you're at now. Then after that you need to go on the appropriate vitamins.

I will reiterate that the withdrawal can get pretty hairy. Or not. ??? I got real woozy, dizzish feelings & like my knees were going to buckle. I had those things before going gluten-free b/c of the damage toll on my body from gluten but when I went through withdrawal it got much worse.

I had a lot of trouble (& others too) with what felt like low blood sugar. And most, myself included, get ravenous! Continually! It's normal during this. Don't worry about weight or calories right now. EAT! Your body is telling you to EAT b/c it has been lacking the nutrients for so long. It's trying to make you well & repair itself. EAT! Protein is a big factor --- we seem to need more of it & it's good to eat some fat with the protein. As far as that goes it also applies to carbs --- example: you eat an apple --- have a few cashews with it.

I wish you swift healing!

Thanks for all the info!! my gi doc sent me for full thyroid work im awaiting results.also did b12 which has been low for months..now i know why lol! I had a negative blood test for celiac but positive biopsy..had genetic gene in blood though..my GI is also sending me for hydrogen breath test on June 5th...Im lucy my GI is very up to date on celiac..I ordered some vitamins called CELI-ACT are they any good? they seen to have lots of good stuff and gluten free

0

Share this post


Link to post
Share on other sites

Thanks for all the well wishes In sure I will have lots and lots of questions!!

0

Share this post


Link to post
Share on other sites

I can't speak for the Celi-Act vitamins as I don't know anything about them. Others may be able to speak on those.

Since you're neg. blood work but positive biopsy, this thread may be of interest to you & perhaps you can add to it:

http://www.celiac.com/gluten-free/topic/92407-negative-blood-test-poitive-biopsy/page__p__792305__fromsearch__1#entry792305

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,902
    • Total Posts
      919,564
  • Topics

  • Posts

    • Johnny Carinos
      If you cant be sure then don't eat it!  
    • Gluten does WHAT to the brain?
      I'm ok, just a little tired right now.  Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww.  I'm sure you understand that! Yeah........Barty.  I thought of her for DAYS on end and it just saddens me to no end that such good people are the ones being taken.  Sometimes life is just so unfair. We all know that but there are times when it really hits you in the gut. There are times I think they are the lucky ones with the way the world is going these days. This terrorism plague is unnerving and I am really getting mad about it. Dear God, please stop this shyte!  I also miss nvsmom and others who have not been heard from. I hope she is feeling better and is just busy with life.  I got glutened on vacation about 6 years ago on the first day in Liverpool.  Jeez, was I sick!  I know how you feel but take heart........that was the last time I was bagged on vacation.  The longer you are gluten free and heal, the faster you recover from hits. You also get very good at not being glutened. It has been almost 2 years since it happened to me last so after 11 years gluten-free, I think I am doing well with that. I still have a little work to do with the vitamin D levels but I work so seeing much sun isn't happening.  My levels have doubled but they are still under 50. This whole Celiac thing is a part time job!
    • Test Results
      Hang in there SLLRUNNER...it is hard and frustrating.  Good job getting that appointment moved up.  I've done too...I've called daily looking for cancellations.  I can also remember counting down the days until my appointment.  ((((Hugs)))) and please let us know how it goes.
    • So I've been glutened....
      Miso soup has gluten in it, doesn't it? =/ I know that I've been avoiding it, which is a big shame because I adore miso!
    • Kissing and gluten
      Hi guys. I know this is a topic that has come up before, but I'd appreciate a little bit of advice. I've been 'courting' a guy for the past few months; nothing has happened yet but we have a proper date in a few weeks which is likely to lead to kissing. He didn't even know what a ceoliac was until a few days ago; I don't think he'd caught the hints that I'd been dropping beforehand. English isn't his first language - he's east Asian. Anyway, I've heard about being potentially glutened via a kiss. How do I broach this? I don't want to scare him off or make him think that I'm a lot of hard work; I know, I know, he's going to have to accept me as I am, etc. but for someone new to the entire thing, it is likely overwhelming. It would be for me if I'd never heard of it! Do I laughingly bring it up beforehand? We aren't going for food so if he isn't eating, just having a cup of tea, will I still need to be careful? If this seems safe, do I just let him kiss me and then bring up afterwards that any future kisses after food will have different precautions?  It all feels so clinical! He's a lovely guy so I do think he'll be understanding, but if anyone has any advice of first hand experience on how to approach the topic without it being a weird moment, that would be great.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,948
    • Most Online
      1,763

    Newest Member
    VER
    Joined