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Possible Celiac, 6 Weeka Pregnant
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Hello, I have recently been told I could be celiac as severely anemic & carry the gene. They cant do gastro biopsy as im 6 weeks pregnant so don't want to put me under for it. I have decided to eat gluten free just incase as I dont want to not be absorbing vital nutrients for the baby. Im taking, iron, pregnancy supplement & calcium. Is there any advice on what else I should be doing/not doing? It has saddened me to hear of a lot of mis-carraiges & still births among celiacs so I really want to ensure Im doing everything possible for a healthy baby. Thanks very much!

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Did you have any Celiac antibody blood work done? Was any of it positive?

Most Celiacs need a comprehensive vitamin levels test: b's, D's, full iron panel, cal/mag, and k.

If you are deficient you need additional supplamentation other than a prenatal multi - like you ate supplementing iron.

You also may want to have your thyroid checked - tsh and thyroid antibody levels.

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Yes, please get your Vitamin D levels checked. My mother's celiac was triggered when she was five months pregnant with me....and I was born with Ricketts because she was Vitamin D deficient. Also, folic acid is very important when pregnant.

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Thank you for your prompt replies! They did antibody tests and they said they weren't suggesting a definite problem, also had thyroid and tsh and all was fine. I went in and specifically had a test to check my folic acid once I found out i was pregnant & that is ok too. I would now like to get my vit D tested as one of you suggested...I find this frustrating that I have to do my research and go back and ask for specific tests as they are not suggested. Anyway, thanks again & I will get on to the vit D. My first pregnancy was fine & resulted in a perfectly healthy child so I will do my best for this to be the same!

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    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
    • My daughter had the HPV Vaccine last year. It was administered in three doses in April 2015, May 2015, and August 2015. Immediately after the third dose, she started having weird symptoms such has headaches, irritability, and a general feeling of being unwell (which she never had before). About three months later she started having gastro symptoms, most notably constant nausea. For several months we tried to figure out what was wrong and none of the doctors knew. After seeing many doctors and having a battery of tests, she was finally diagnosed with Celiac in August 2016. Her intestinal damage was a 3b Marsh score. No one else in our immediate or extended family has Celiac (myself and my other daughter were tested and are negative). No one else has symptoms or any indication that they could have Celiac. I feel like my daughter could have gone her whole life without being triggered and I'm feeling very guilty for making her get this controversial vaccine. I have done a lot of research and there seems to be conflicting studies regarding vaccines and autoimmune diseases. Some say there is no link, while others say there is a possible link, but it cannot be proven at this time. No one seems to know for sure what triggers Celiac...could it be vaccines? I'm wondering if anyone else feels that their Celiac Disease was triggered by a vaccine?  
    • Here is an article, albeit short, about Myocarditis and Celiac disease.  I have read before about a connection between the two and A-Fib is another one that can happen with undiagnosed Celiac. From one over-thinker to another......its the inflammation thing, along with maybe some genetic components to it.  I can't remember how long you have been gluten-free but it can take awhile for things to settle down, especially if your thyroid is wonky also.  I have Celiac and Hashi's so feel your pain, even though I have not had any cardiac involvement.  Some doctors really suck. I have a lifetime of bad with them so do not go that often, only when I have to and am leery about seeing any new ones. I am so done with that attitude of theirs. I think you need to find someone who has knowledge of Celiac and it's related conditions and who actually listens to the patient. That might be harder than finding a needle in a haystack but I wish you luck! 
      https://www.ncbi.nlm.nih.gov/pubmed/12045166
    • Older people often show clinically atypical symptoms of celiac disease, which can delay diagnosis. View the full article
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