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Possible Celiac, 6 Weeka Pregnant
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Hello, I have recently been told I could be celiac as severely anemic & carry the gene. They cant do gastro biopsy as im 6 weeks pregnant so don't want to put me under for it. I have decided to eat gluten free just incase as I dont want to not be absorbing vital nutrients for the baby. Im taking, iron, pregnancy supplement & calcium. Is there any advice on what else I should be doing/not doing? It has saddened me to hear of a lot of mis-carraiges & still births among celiacs so I really want to ensure Im doing everything possible for a healthy baby. Thanks very much!

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Did you have any Celiac antibody blood work done? Was any of it positive?

Most Celiacs need a comprehensive vitamin levels test: b's, D's, full iron panel, cal/mag, and k.

If you are deficient you need additional supplamentation other than a prenatal multi - like you ate supplementing iron.

You also may want to have your thyroid checked - tsh and thyroid antibody levels.

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Yes, please get your Vitamin D levels checked. My mother's celiac was triggered when she was five months pregnant with me....and I was born with Ricketts because she was Vitamin D deficient. Also, folic acid is very important when pregnant.

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Thank you for your prompt replies! They did antibody tests and they said they weren't suggesting a definite problem, also had thyroid and tsh and all was fine. I went in and specifically had a test to check my folic acid once I found out i was pregnant & that is ok too. I would now like to get my vit D tested as one of you suggested...I find this frustrating that I have to do my research and go back and ask for specific tests as they are not suggested. Anyway, thanks again & I will get on to the vit D. My first pregnancy was fine & resulted in a perfectly healthy child so I will do my best for this to be the same!

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    • Sorry.  Something is wonky with either my connection or celiac.com! Your results are not specific...borderline.    That is why your PCP should refer you to a GI for further celiac blood tests and a possible endoscopy.  I recognize the lab report form.  Kaiser?  If so, a PCP can not order a full celiac panel.  Only a GI can do so.  Why bother?  Because if you test like me, the TTG tests are always negative.  Request the EMA and the DGPS test via a GI.   Do not be fooled by a lack of abdominal symptoms.  I was only anemic -- no abdominal issues at all.  Constipation is a symptom.  Your PCP is thinking is just historical Classic celiac disease symptoms.   Please email your doctor for the referral if you think you might have celiac disease and want a solid answer.    
    • Hello, I have frequent canker sores (roughly comes back every couple of months). Some blood test results are as following. Component Your Value Standard Range TISSUE TRANSGLUTAMINASE IgG 0.31 Index <=0.90 Index Tissue transglutaminase IgA 0.96 Index <=0.90 Index My doctor said that result is unspecific, and I unlikely have celiac disease, since I do not have other abdominal symptoms. For reference, I do have frequent constipation, excessive gas, frequent canker sore, etc. Do you think an upper endoscopy is recommended? I am a little hesitate considering the risk of this procedure and the fact that my symptoms are not that bad. I appreciate all suggestions.  
    • Hello, I see you posted this a long while ago, and perhaps--I hope-- it's no longer a matter of concern, but I thought I'd mention that shortly before I was diagnosed for celiac's, I had distinct yellow blotches on the corners of my eyelids toward my nose. Some months after I had stopped eating gluten, the yellow gradually went away, and--as it just reappeared now several years later, I googled the issue again.  I am only speculating here, but I do believe it is related to liver problems, which, in turn, are related to celiac's. I don't think liver function tests cover all aspects of liver health. I say this because when I was pregnant I developed a temporary liver condition called interhepatic colestasis of pregnancy (ICP), but my liver function tests had been fine. (The condition is diagnosed based on bile levels in the blood, not on liver function). I discovered upon some research that (of course!) ICP  can be associated with celiac's disease.  My hunch is this-- that celiac's presents two problems to the liver: 1) the malabsorption of nutrients--esp. Vit. K2-- that are vital liver health; 2) since gluten registers as a toxin to the immune system (I think?), perhaps the liver gets overloaded processing so much toxic material. Or perhaps there's some other reason. At any rate, poor liver health and celiac's do seem to be linked, according to a few articles I've found. Anyway, hope your problems are resolved now.  
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