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Antibiotics


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15 replies to this topic

#1 Gfreeatx

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Posted 25 May 2012 - 10:57 AM

Hi All,
Not sure where to post this one, but I recently ended up with a UTI and my Dr. prescribed a drug called Bactrim. Of course to make sure it was Celiac safe I looked it up online and found it was on the gluten-free Drug list, however there were endless horror stories from people about it being the worst drug they have ever been prescribed and I also saw it has been banned in several countries. I usually try natural remedies when possible, but I feel like I need to do the course of antibiotics on this time as I have an issue with my right kidney which makes me especially susceptible to kidney infections. I am extremely sensitive to medications for whatever reason so I am hoping someone who is Celiac and sensitive as well to meds might have a suggestion for an antibiotic they found relatively safe. Any advice is greatly appreciated! :)
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#2 mushroom

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Posted 25 May 2012 - 11:03 AM

I have had a bad reaction to Bactrim too. I usually take Norfloxacin for UTI's.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

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Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
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Soy free March 2008
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Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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#3 jerseyangel

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Posted 25 May 2012 - 11:29 AM

I have allergies to several antibiotics. The one I use and am ok with is the name brand Z-Pack. (Zithromax)
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#4 IrishHeart

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Posted 25 May 2012 - 11:30 AM

Bactrim and Cipro (and almost all antibiotics)make me SICK and cause awful gut pain.

One member on here told me last year she used Zithromycin antibiotic? Not sure if it is suitable for a UTI.

Maybe it is the same as the one Patti has just posted while I was still composing this??.

Make sure to get the Teva brand --as she knows that one is gluten-free. (I can tell you-- I spoke with someone from TEVA about a med I had to take briefly and she was adamant there is NO gluten in their meds. Corn starch, but no gluten)

I understand it is a pretty tolerable antibiotic and she is sensitive and she did not have any problems with it.

Wish I could help more, but I will suggest dosing with extra probiotics after any course of antibiotics to straighten out your gut.

To avoid UTIs, I have my Mom drink some cranberry juice every day. She was getting them with some frequency.

(or maybe you probably already know all this) :)
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#5 mushroom

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Posted 25 May 2012 - 11:51 AM

To avoid UTIs, I have my Mom drink some cranberry juice every day. She was getting them with some frequency.

(or maybe you probably already know all this) :)


I take cranberry gelcaps.
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#6 Gfreeatx

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Posted 25 May 2012 - 11:52 AM

Thanks all for the suggestions! I really appreciate it! Luckily I haven't had to deal with a UTI in years, but somehow it got me this time. My mom used to get UTI's frequently, but hasn't gotten one in years. She swears that cranberry juice daily and taking alka seltzer if she feels one coming on does the trick. I think I would honestly try anything rather than take nasty antibiotics. Thanks again for your help!
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#7 woodnewt

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Posted 25 May 2012 - 11:54 AM

Hi All,
Not sure where to post this one, but I recently ended up with a UTI and my Dr. prescribed a drug called Bactrim. Of course to make sure it was Celiac safe I looked it up online and found it was on the gluten-free Drug list, however there were endless horror stories from people about it being the worst drug they have ever been prescribed and I also saw it has been banned in several countries. I usually try natural remedies when possible, but I feel like I need to do the course of antibiotics on this time as I have an issue with my right kidney which makes me especially susceptible to kidney infections. I am extremely sensitive to medications for whatever reason so I am hoping someone who is Celiac and sensitive as well to meds might have a suggestion for an antibiotic they found relatively safe. Any advice is greatly appreciated! :)


Bactrim is commonly given for UTI and is very effective. It's a sulfa drug and is supposed to be relatively safe, although yes, some people get really sick from it - like with any other antibiotic. When you take antibiotics, they kill all types of bacteria they are effective against - indiscriminately - so that means both the good bacteria in your body and the bad bacteria. This is one reason why many people feel sick when they take antibiotics.

If you have UTI and especially if you have kidney issues, you need to be treated for the UTI quickly. If the infection becomes systemic, it will be very bad. If you have an issue with taking Bactrim, talk to your doctor about alternatives. When the lab tests your urine, they also test for "antibiotic susceptibilty" of the bacteria. Someone could recommend a "good antibiotic" for UTI but it may or may not be effective against the bacteria strain you have in your bladder. There are many classes of antibiotics which may be useful or useless for your infection - it is completely dependent on the bacteria it is used against - so it is important to take the appropriate antibiotic based on lab culture results.

I am going to be really frank here: there is no such thing as a safe antibiotic. Every antibiotic has the potential for bad side effects and everyone will be affected differently. So an antibiotic that gives you minimal problems may be a nightmare for someone else, and vice versa. Zithromax is a macrolide, commonly prescribed for sinus and respiratory infections. It has recently been associated with increase risk of heart attack. Norfloxacin is a fluroquinolone, commonly prescribed for UTI. It also has a "black box warning" for tendon rupture. It is also strongly associated with Clostridium difficile colitis (antibiotic associated colitis).

Ammoxicillin is supposed to be a "very safe" antibiotic commonly given to children and used for gram positive infections (UTI is usually caused by gram-negative microorganisms, although a few cases may be gram positive). Well, when I was 17 and got an ear infection, and I took Ammoxicillin. I got C. difficile colitis, which progressed to something called Pseudomembraneous colitis. I was hospitalized and pumped full of very powerful IV antibiotics. I nearly died from the infection and my colon is permanently damaged because of the infection. Not trying to scare you or anything, but just saying, even the "safest" antibiotics aren't really safe. Have I taken antibiotics since? No. If I had a serious infection that was cultured and had to take antibiotics, would I? Absolutely.

Whatever you decide to do, please discuss it with your doctor, make sure you are treated for your UTI soon. Take care and be well. :)
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#8 Fairy Dancer

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Posted 25 May 2012 - 12:13 PM

I was going to suggest cranberry juice...but cranberry stuff has already been suggested.
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#9 IrishHeart

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Posted 25 May 2012 - 12:18 PM

Not trying to scare you or anything, but just saying, even the "safest" antibiotics aren't really safe.


Well, your story scared the beejeepers out of me. Sorry you had such a rough time. :(

I agree-- they are powerful drugs, for sure. I was dosed heavily myself back in 1998 when I was very ill with constant D and pain. The ridiculous GI doctor was trying them on me ---with the "maybe" that I had giarrdia. :rolleyes: (long ugly story) It was celiac disease.

It upset the gut balance and I was never right again for 13 years. By 2010, testing showed NO detectable GOOD bacteria in my gut at all! I was clueless about probiotics back then, but between the UNDXed celiac and the unbalanced gut flora, I was one sick puppy.

It has taken me a year and a half to get things where they should be. I am a "probiotics- pusher" ever since! :D
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image

#10 IrishHeart

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Posted 25 May 2012 - 12:21 PM

Thanks all for the suggestions! I really appreciate it! Luckily I haven't had to deal with a UTI in years, but somehow it got me this time. My mom used to get UTI's frequently, but hasn't gotten one in years. She swears that cranberry juice daily and taking alka seltzer if she feels one coming on does the trick. I think I would honestly try anything rather than take nasty antibiotics. Thanks again for your help!



The cran juice is more of a preventative measure. But if you have a raging infection, and the culture shows it, you may have to give in and take the antibiotic. sorry, hon.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image

#11 Gfreeatx

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Posted 25 May 2012 - 12:33 PM

Thanks Woodnewt for the info. I know I will need to take the antibiotics this time since there is no way around it to get better. I have to admit I am a big chicken when it comes to taking meds. I had such bad experiences with prescription meds I was given in the past for my other conditions. I am that person who the "extremely rare" side effects seem to happen to when everyone else has no issues with a drug. :)
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#12 Gfreeatx

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Posted 25 May 2012 - 12:40 PM

The cran juice is more of a preventative measure. But if you have a raging infection, and the culture shows it, you may have to give in and take the antibiotic. sorry, hon.


Thanks Irish Heart! :)
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#13 mushroom

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Posted 25 May 2012 - 12:45 PM

Thanks Woodnewt for the info. I know I will need to take the antibiotics this time since there is no way around it to get better. I have to admit I am a big chicken when it comes to taking meds. I had such bad experiences with prescription meds I was given in the past for my other conditions. I am that person who the "extremely rare" side effects seem to happen to when everyone else has no issues with a drug. :)


Hey, Gfreeactx, I am right there with you. Doctors will say, no one has problems with that drug, but I do :rolleyes: The ones that most people don't have problems with, I do. Then there are things that are supposed to have side effects, and I don't! :wacko: And to make it worse, the things that are supposed to put you to sleep keep me awake :P
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

#14 Gfreeatx

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Posted 25 May 2012 - 12:50 PM

Hey, Gfreeactx, I am right there with you. Doctors will say, no one has problems with that drug, but I do :rolleyes: The ones that most people don't have problems with, I do. Then there are things that are supposed to have side effects, and I don't! :wacko: And to make it worse, the things that are supposed to put you to sleep keep me awake :P



Sheesh, I know! I really wish I could be that average normal patient who tolerates everything well. I'm just thankful my doctors actually believe me when I tell them I am having a weird side effect and don't tell me I am crazy. Well, at least not to my face. ;)
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#15 IrishHeart

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Posted 25 May 2012 - 01:07 PM

The ones that most people don't have problems with, I do. Then there are things that are supposed to have side effects, and I don't! :wacko: And to make it worse, the things that are supposed to put you to sleep keep me awake :P


Ditto! :rolleyes:

and if there are "rare" side effects, guess who has them? :)
I needed a muscle relaxer so bad this week, but they kill my stomach, make me "tense" in the muscles (and how is that helping???) and keep me up all night. Not to mention foggy, grouchy, wonky , a loss of appetite and what I call the

General "heebie jeebies" :unsure:

I hate that.

How can you relax a muscle if the muscle relaxers make your muscles tense and jumpy? OY

we do not have the same systems as everyone else. My doc says it's the way we metabolize them. Ya think?
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy



Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. Posted Image


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