Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gf Burn-out


Lisa

Recommended Posts

Lisa Mentor

Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step?

I guess, a little down tonight. The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now. Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

(This is an old hat speaking, so the perspective may not be as useful.)

When I get burnt-out dealing with the gluten-free stuff, I go back to making my really tried and true, normally gluten-free meals that I can fill my fridge with and just stay eating at home. I just plain ol' ignore anything but the meat/produce/beans/rice in the grocery store, and make sure everything in my house is unquestionable. I'll use my big 12qt pot to make soup or stew or both, and have plenty of leftovers. I'll make hummus and guacamole (both easy to make) so I can have vegetables with it and still have variety. Basically, give myself a lot of options that are simple but made from scratch that I don't have to think about. That means avoiding going out for meals, and making people come to my place for dinner instead of viceversa, but it's mentally easier on me that way when I'm feeling "used up".

Link to comment
Share on other sites
mommida Enthusiast

It would be odd if you didn't feel this way. You are going through so many changes, feelings, and your body is trying to heal. Most books describe it as grieving for your past life.

How many of us have actually cried walking into a grocery store? I do suggest that you read Danna Korn's Kids with Celiac Disease. (Haven't read Wheat Free worry Free yet) It does address some of the emotional issues of diagnoses. We as adults try and supress too many of these feelings, and I just think it takes longer to adjust if your stuck in denial.

Laura

Link to comment
Share on other sites
Lisa Mentor

Tiffany:

I have basically done well with the the gluten-free foods. (Still working on lipsticks, face cream and shampoo).

But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

It truely is a weiry task. I am one of the dumb bunnies that downloaded the Delfi-forum list and it shows up incripted on my computer....go figure...I didn't do it right and the computer wiz is at college in this household. Still working on fixing it.

THANKS FOR WRITING BACK. Lisa B.

Link to comment
Share on other sites
PicturePerfect Explorer

I get down a lot, too. I don't know what brings it on. I guess I just start thinking about how I need to change my shampoo and lotion and then I just get upset that I have Celiac to begin with. But, I mean, its not like I want to go and eat gluten, because being sick is not worth it. I know that I am not very helpful, but I am a newbie at this too. :)

Hang in there.. we all try too!

Lisa

Link to comment
Share on other sites
tarnalberry Community Regular
But it is the emotional fall-out , with the need to inspect everything that goes in your mouth that is making me TIRED.

<{POST_SNAPBACK}>

Those are the times I don't try anything new. Perhaps that's an old-hat thing... there are things I know that are safe that I don't have to think about. Perhaps it is having a mostly gluten-free kitchen... I don't even have to think about avoiding the three boxes that are my husbands gluten-filled ickiness.

You're totally right. Sometimes it just gets so damned tiring to be vigilant. It takes so much energy to do "everyday" things, like finding food, that we don't have a lot of energy left over for other things. It's like "whew... I tramped across the fields, hunted down a pack of well-labeled, safe-ingrediented boxes and managed to capture them and drag them home; I'm spent for the day". (I guess it's giving me a better appreciation for the days when you really had to hunt for your food in the wild! I'm glad I'm not back there!)

The "surround yourself with only safe stuff" is the only way I can think of to try to duplicate "hiding in a little shell", even if it's just for a little while.

I hope that, as time goes on, you'll be able to get to a point where you can do that - that you've found enough safe items that you can create a safety-zone for yourself.

Link to comment
Share on other sites
Lisa Mentor

Thanks for your repy...without getting into a new forum.....

any lipsticks that are gluten-free? I am about as pale as a church mouse.

Bad night, (emotions) but will be good in the am.

Good night to all, thought and prayers to all Katrina's people.

Check back in the am. Thanks for you all being there.

Lisa B.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nogluten- Newbie

Lisa,

Hang in there. It does get easier over time. x

Link to comment
Share on other sites
Guest BERNESES

Oh- how I know how you feel. I've been doing this for the last 7 months (I am definitely still a newbie) and I'm so tired, frustrated and disgusted. I don't mind the diet at all (actually, I had sort of weeded out a lot of things because I knew for some reason they just weren't making me feel good like beer, pasta, pancakes etc) but what I do mind is trying my butt off and still having accidents. THAT is frustrating. And just keeping the faith that I will heal. Sometimes it seems impossible but it's gotta happen. Right? Right!

Link to comment
Share on other sites
calexander Newbie
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

Hey Lisa,

I had to do the six vials thing today too. 8 hrs. of fasting, then working all day and driving to the lab for testing this afternoon. They had to do 6 separate sticks and draw me 6 times over 2 hours. Yuck!! This was for lactose intolerance. I'm just praying that it turns out o.k. In the meantime, I'm eating Haagen Daz every chance I get. It may be my last!! But I can tell you that after my testing today, I was a train wreck. I don't know if it was because my blood sugar was probably really low from fasting, or what. But I felt like I just hit the end of my rope. I have days where I feel really really good and I know that the diet is helping. And then there are days like this when I wonder why I'm so down. I'm sure it's just frustration and the fact that it's one more thing for us busy moms to have to think about and keep track of.

Anyway, I can totally relate to how you feel. Hope your tests turn out good. Keep in touch. Cherie

Link to comment
Share on other sites
Diosa Apprentice
Hi to all that I have chatted with:

Lots of you guys are old hats at this gluten-free stuff and many are new, as I am.

What do you do when you get overloaded.

I actually have been dreaming of modified food starch/modified corn starch, natural ingred, spieces added....etc.

What do you do to chill-down a little and take this infliction step-by- step? 

I guess, a little down tonight.  The Dr. took six vials of blood to be tested for vitamin deficiencies......as my daughter would say "probley so with the brain fog mess".

I guess, a good night sleep and start over again and again and again...........

Emotions are hitting me now.  Anyone there experienced the same ups and downs?

I would love to hear.... (think my chems are off .. so, there be I.)

Thanks for listening.......Lisa B.

<{POST_SNAPBACK}>

I so understand where you are coming from!! I just worked it out this past May, and I've spent lots of time frustrated and in mourning over what I can no longer have.

What I've done is made my kitchen totally gluten-free and I cook all the time. At least for the week, I know that I don't have to worry about dinner nor lunches (usually leftovers from the previous night's dinner). Going to the grocery is another matter. :)

Also, I treat myself. There are some excellent gluten-free chocolate chip cookie recipes (if you can have chocolate chips nd rice flour), brownies (Bob'e Red Mill gluten-free Brownie mix is a lifesaver some days, especially for me - a chocaholic) or gluten-free chocolate bars (my personal preference is Green and Black's - no dairy in the dark chocolate nor the Maya Gold oranage chocolate). Doing this at least gives me a certain amount of normalacy.

Hope this helps a little.

Link to comment
Share on other sites
Bonnie Explorer

Lisa, I totally relate to what you are going through.

I'm a newbie too - some days I feel great and some days I think I just can't do this!

Its so frustrating and tiring. I get really down and depressed at times especially when I'm in a hurry, juggling work and kids. In the old days I would just grab a pre-packed sandwich or a sausage roll at the shops. It KILLS me to make pizza etc. for my kids when I can't have it myself. They wont touch gluten-free food so I make separate meals!

I work in a small office of 6 girls - they order takeout all the time and eat it in front of me. They bring cake a lot too. I find this really difficult.

The thought that goes into shopping and cooking - the preparation of even a day out.

Sometimes is just seems like too much. BUT I never even contemplate eating gluten. That tells me something.

Just hang in there. We have to believe the others and trust it will get better.

Thinking of you!

Yvonne

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    Sue Barnett
    Newest Member
    Sue Barnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...