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Healing The Gut In A Child
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7 posts in this topic

My oldest son is now 6, and was d'xed with a wheat and gluten allergy through the ELISA test and Celiac through suggestive blood test by an environmental doctor. We declined a biopsy because he was very young at the time and started him on a gluten free diet (he's also dairy free). His symptoms were both physical (weight loss, sudden onset bedwetting, constipation/diarrhea, low ferritin and magnesium by blood test) and behavioral (ADHD symptoms, forgetting skills and memorized things like spelling of name, etc.), and they all came about after we all got H1N1 and a dose of Tamiflu. The environmental doctor believed this was the trigger for the Celiac and told us to put him on a gluten-free diet and his body would heal. It's been nearly 3 years, and every minute contamination of gluten brings on every symptom in full force. I feel as though we're constantly preventing and making no strides forward in helping his body heal.

So far, during the 3 week period following exposure, we're doing epsom salt baths to help with magnesium and probiotics to help with the gut, but I have no idea where to go from here. He's fully vaccinated at this point, but has gotten NO antibiotics (other than a whopping huge dose during my labor and his delivery) or any other sort of pharmaceutical since the h1n1. We use organic products on face and body, and homeopathics ONLY. All of my children are also completely food dye free. I'd love to hear even disparate ideas about healing his gut.

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If he is a Celiac, he will always be a Celiac and always react to gluten. Celiac disease is life long, there is no cure minus staying away from gluten.

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I know that there is no cure for Celiac, but I have read in numerous places that it is possible to heal the gut and help reduce symptoms. He is what this forum would call super sensitive, and despite our best efforts, very often sick or symptomatic. He's only 6, and I have every hope that we can do something to heal the damage.

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I find that colloidal silver and Nordic Naturals Omegas help my boys when they've

been struck down. We too, have turned to homeopathics and consume organics when at

all possible. We are a gluten and dairy free household, and have seen dramatic

improvements with all the aforementioned changes in our lifestyle. Boy, was life

different before!

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You will be able to heal the damaged Celia but upon injestion of gluten, the symptoms will return.

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You could also try a probiotic, which helps with all kinds of tummy issues. Culturelle for Kids is dairy and gluten free (and also has no wheat, dyes, flavorings, or preservatives). It comes in powder packets that you empty into a drink. For the baby, we just empty it into a bottle. For the big boys, just put in in a bit of watered down juice.

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We've been doing the paleo diet and it seems to be helping. There are also enzymes you can take if you are in a position where you might get some cross contamination. I've used them and they help with the symptoms. You take them 30-40 minutes before you eat. I use them whenever we have company, eat at a restaurant or at a friends house. The enzyme is DPPIV. I know you know this, but with Celiac even cross contamination is dangerous for your child. So the enzyme should be used for those just in case situations, but never to intentionally eat gluten. Homeopathy should also be able to help with the symptoms. I took the celiac nosode and that helped me a lot too.

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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