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Becoming Skeptical

4 posts in this topic

Hi everybody!

I've been gluten free for about 2 years now after being sick for about 3 years before that and of course Jo doctor could figure out why.. I had two celiac disease tests done; both came back negative. But after being gluten free I have felt so much better! No more symptoms at all so I feel a gluten free lifestyle was the key.

However, I have been glutened accidentally before a few times and I feel awful and there are sometimes where my husband gives me the "uh oh..." look after we eat something and then decide to read the labels. But I won't get sick...

So I'm wondering if this happens to other people or am I not really gluten intolerant..? Although all of my stomach issues went away almost instantly after I cut gluten from my diet..




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If you're feeling good, then I would stick with it! Maybe you aren't sensitive to trace amounts. I think most people with an intolerance don't have issues with cross-contam or small amounts of gluten like people with celiac would.


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That happens to me. It randomly striked me three days after eating a couple onion rings off my boyfriends plate that It had a wheat flour batter. "Well, did you get sick?"

" I didn't, no."

I really think it might be your body's immune system taking one for the team. It's totally worth it to stay off the gluten's, if not for the reason you know you'll feel good but because you're supporting the lifestyle and people just might take the hint.

Fight the good fight!


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Yup, reactions can be random. It happens to me and I have biopsy confirmed celiac. You know how sick you were before, don't second guess yourself now!


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    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
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    • In reflex testing they look at a result and decide if the next test is needed.  Another example, some labs only do EMA if the Ttg is positive.
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