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Endoscopy
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I am having my Endo this Friday and I am scared to death. I know I will be sedated..but will I fall asleep? I was mostly still awake during my colonoscopy at the beginning and then went out...but I want to be TOTALLY out for this. The thought of a tube down my throat...I am freaking OUT. What if I gag, I am going to panic. I am panicking just thinking about it. Please tell me I will be asleep.

I had a dozen vials of blood taken from me last week, a full Celiac panel plus some other expensive celiac serology test that they sent out to California. I had to get permission from my INS company before they would approve it, so I am guessing it is a in depth test. I just want it all over.

Gah. Im freaking out. :(

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Worrying about the endoscopy is MUCH worse then the actual procedure. I remember bits and pieces of the procedure but most of it I think I was out . . . actually, I don't remember most of the entire morning (being picked up by my husband, walking to the car, picking up lunch on the way home, etc.)

It is a piece of cake - you will be fine. I think I was less worried because my 7 year old went first (and he was fine as well).

Cara

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Thank you so much. It helps so much to vent here! I go back and forth thinking I have celiac disease and I dont have celiac disease. That its in my head, that it cant be anything other than Gluten.

Yesterday I was fine. Felt great other than being tired and a little nauseus but no stomach issues.

Today, I feel like the stomach issues are never ending. I dont want to leave my house. whats up with the symptom differences day to day!! I am driving myself nuts. lol

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I actually was fully awake for my endoscopy because I wasn't clotting very well at the time. The doctor was scared that I wouldn't be able to make fundamental decisions if I began bleeding from the biopsies, so I was only sedated to the point of feeling relaxed. I, too, was scared of the tube, especially since all of my muscles are rigid from celiac (including my esophagus); however, even though I gagged a little, the surgeon put the tube in so swiftly, that really wasn't a problem. It wasn't painful or upsetting at all...and the biopsies only took a few minutes.

The only part I didn't like was that I had a sore throat that lasted about six months....but, again, that's probably because my esophagus is so rigid.

This really is a very easy procedure--nothing to be worried about. You'll do fine!

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I am having my Endo this Friday and I am scared to death. I know I will be sedated..but will I fall asleep? I was mostly still awake during my colonoscopy at the beginning and then went out...but I want to be TOTALLY out for this. The thought of a tube down my throat...I am freaking OUT. What if I gag, I am going to panic. I am panicking just thinking about it. Please tell me I will be asleep.

Gah. Im freaking out. :(

KMMO320,

Sometimes the unknown is scary, we tend to image the worst. This is easy to for me to say, but have no worries! If they put you under for the procedure, you will not even be aware that it took place. The pre-endoscopy setup for it takes longer (explanation of what will take place and prep). Once in the room and on the table they gave me the anesthesia ( I started a countdown, I think I made it to 97). Next thing I know I'm waking up in the recovery room. Just make sure to have someone in the recovery room with you that can talk to the doctor after wards if you have questions (I'm still a little fuzzy on the conversation that took place). After the appointment I went home and slept the rest of the day away. Best wishes!!!!

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What everyone said is true. It is really very simple; in fact, I would rather undergo an endoscopy than a trip to the dentist! :lol:

My doctor told me a person is technically not "put under" but given a memory-erasing drug. The last thing I remember is the doctor showing me the tube (I asked to see it) then the next thing I knew I was in recovery and my husband was holding my hand. Makes me wonder whether I said anything foolish while I was having it done. Did I flirt with the doctor? :lol:

Thankfully I did not experience a sore throat whatsoever and I have been prone to sore throats since I was a child.

The procedure truly is nothing to worry about. All that worry for nothing! :P

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For me it really wasn't bad. I was given Fentanyl and Propofol and only remember counting up to 3 then I was waking up to some water in the recovery room.

I second the suggestion to have someone there who can talk to the doctor. I don't even remember seeing him after the procedure, but I guess we chatted a bit.

I also did not have a sore throat and felt back to normal later the same day.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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