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Endoscopy
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I am having my Endo this Friday and I am scared to death. I know I will be sedated..but will I fall asleep? I was mostly still awake during my colonoscopy at the beginning and then went out...but I want to be TOTALLY out for this. The thought of a tube down my throat...I am freaking OUT. What if I gag, I am going to panic. I am panicking just thinking about it. Please tell me I will be asleep.

I had a dozen vials of blood taken from me last week, a full Celiac panel plus some other expensive celiac serology test that they sent out to California. I had to get permission from my INS company before they would approve it, so I am guessing it is a in depth test. I just want it all over.

Gah. Im freaking out. :(

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Worrying about the endoscopy is MUCH worse then the actual procedure. I remember bits and pieces of the procedure but most of it I think I was out . . . actually, I don't remember most of the entire morning (being picked up by my husband, walking to the car, picking up lunch on the way home, etc.)

It is a piece of cake - you will be fine. I think I was less worried because my 7 year old went first (and he was fine as well).

Cara

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Thank you so much. It helps so much to vent here! I go back and forth thinking I have celiac disease and I dont have celiac disease. That its in my head, that it cant be anything other than Gluten.

Yesterday I was fine. Felt great other than being tired and a little nauseus but no stomach issues.

Today, I feel like the stomach issues are never ending. I dont want to leave my house. whats up with the symptom differences day to day!! I am driving myself nuts. lol

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I actually was fully awake for my endoscopy because I wasn't clotting very well at the time. The doctor was scared that I wouldn't be able to make fundamental decisions if I began bleeding from the biopsies, so I was only sedated to the point of feeling relaxed. I, too, was scared of the tube, especially since all of my muscles are rigid from celiac (including my esophagus); however, even though I gagged a little, the surgeon put the tube in so swiftly, that really wasn't a problem. It wasn't painful or upsetting at all...and the biopsies only took a few minutes.

The only part I didn't like was that I had a sore throat that lasted about six months....but, again, that's probably because my esophagus is so rigid.

This really is a very easy procedure--nothing to be worried about. You'll do fine!

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I am having my Endo this Friday and I am scared to death. I know I will be sedated..but will I fall asleep? I was mostly still awake during my colonoscopy at the beginning and then went out...but I want to be TOTALLY out for this. The thought of a tube down my throat...I am freaking OUT. What if I gag, I am going to panic. I am panicking just thinking about it. Please tell me I will be asleep.

Gah. Im freaking out. :(

KMMO320,

Sometimes the unknown is scary, we tend to image the worst. This is easy to for me to say, but have no worries! If they put you under for the procedure, you will not even be aware that it took place. The pre-endoscopy setup for it takes longer (explanation of what will take place and prep). Once in the room and on the table they gave me the anesthesia ( I started a countdown, I think I made it to 97). Next thing I know I'm waking up in the recovery room. Just make sure to have someone in the recovery room with you that can talk to the doctor after wards if you have questions (I'm still a little fuzzy on the conversation that took place). After the appointment I went home and slept the rest of the day away. Best wishes!!!!

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What everyone said is true. It is really very simple; in fact, I would rather undergo an endoscopy than a trip to the dentist! :lol:

My doctor told me a person is technically not "put under" but given a memory-erasing drug. The last thing I remember is the doctor showing me the tube (I asked to see it) then the next thing I knew I was in recovery and my husband was holding my hand. Makes me wonder whether I said anything foolish while I was having it done. Did I flirt with the doctor? :lol:

Thankfully I did not experience a sore throat whatsoever and I have been prone to sore throats since I was a child.

The procedure truly is nothing to worry about. All that worry for nothing! :P

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For me it really wasn't bad. I was given Fentanyl and Propofol and only remember counting up to 3 then I was waking up to some water in the recovery room.

I second the suggestion to have someone there who can talk to the doctor. I don't even remember seeing him after the procedure, but I guess we chatted a bit.

I also did not have a sore throat and felt back to normal later the same day.

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    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
    • Personally, I would ask for the full Celiac panel and see what that shows.  I mean, the full Monty, not just cherry picking testing.  On the full panel, if the tTg and the EMA come back positive, that is a diagnosis without biopsy.  This is how I was diagnosed and there is absolutely no doubt I have Celiac.  I presented with classic celiac so it was a no brainer with my blood results. If you cannot stick to the diet religiously, without cheating, unless you have a biopsy picture, then I would go on to have a biopsy.  Like your daughter, I was way too sick to have one done at the time.  They would not have agreed to use sedation because I was so anemic and malnourished and that ended that!  Good luck with whatever you decide!
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