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How Did I Get Glutened!?!


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#1 CanineGluten

 
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Posted 29 May 2012 - 04:51 PM

Today I had coffee, yerba mate, and water.. up till 11 AM.

I was feeling fine. My face wasnt puffy under my eyes like when I get glutened.

So even though I kinda wanted to keep fasting, since I had breaded fish last night.. and wanted to clean out..

I decided to "eat", and made a salad. Gluten free marinara, I cooked some ground beef in a cast iron pan I found which Im sure hasnt been used in ages, olive oil, tomatoes, avocado from an actual avocado, and thats it.

I feel "leaky"in the rectal area, some gas, and some puffiness. I mainly have brain ataxia.. at least its the only "problem" I have that bothers me. It makes me really pissed off.

So Im pretty sure I got glutened. And it annoys the he double hockey stick outta me because, Im trying so dang hard!

For many years now I have simply fasted all day long and did an IF diet.. where I just feasted at night generally..

At least I never was glutened...

So Im thinking I literally should just eat raw fruits and veggies during the day.. so I dont have to worry about it.

Who needs this constant worry.

I feel incredibly better though, not eating gluten and dairy... incredibly more stable.. but Im getting to the point.. maybe not quiete yet, but thinking.. it would just be easier to just have a feeding window at night, and just eat whatever but maybe minimize the bad stuff... since it seems I get glutened anyways..

Sigh. Grr. Etc

!
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#2 psawyer

 
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Posted 29 May 2012 - 05:18 PM

How long have you been on the diet? Do you have confirmed celiac disease?

If you have celiac disease, it will take time for your body to heal from the damage to your intestines. During the healing process, you will have random reactions to food which just happens to upset your damaged digestive tract. It does not have to be gluten. I had severe intestinal damage (Marsh III) and during my recovery phase I sometimes reacted to plain white rice--vomited it back up in minutes. I continued to have significant symptoms for three months, and it was six before I was completely symptom-free. Give it time.
  • 1
Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#3 rosetapper23

 
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Posted 29 May 2012 - 06:28 PM

Could the marinara have had soy in it? It seems they put that darned stuff in everything! If so, you might consider avoiding anything with soy. For me, it seems that half the gluten-free products out there contain soy....and many of us are intolerant of it.
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#4 Adalaide

 
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Posted 29 May 2012 - 06:55 PM

I immediately stopped all use of cast iron pans with my diagnosis. The whole point of cast iron is that the pan becomes seasoned and it's entirely possible that it was a source of cc for you. Then again, it's also perfectly likely that it was a reaction to some other food.
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"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#5 CanineGluten

 
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Posted 29 May 2012 - 08:30 PM

Ill try to reply to you all.

I have no idea if I am a celiac.. all I know is it seems (in this day when it seems no one believes me around me), that I have a problem with wheat etc.

Its one thing if Im spending all day alone or with my dogs out in nature, since I can just be by myself.

But Im very anti-social becuz of it all, I mean gluten etc.

I can do soy just fine.

I think its the olive oil, or the cast iron pot, since one time I simply rinsed out some berries in a ceramic bowl that is used daily for pancake batter. And even though it was "clean", I definitely got glutened. And if I hadnt read online about cross contamination I would be a lost soul.

I wish I could have been more intuitive about food in the first place, but I guess when you are raised with wheat you just accept it.

Ive had stints where I was a raw foodist, and stints where I never ate dairy and only had oats in the morning and basically just protein

point being, this suckks.

Im tempted to just do a IF feeding window where I can eat "anything" I want..

but truth be told when im glutened its like it lasts well into the next day. so i cant afford that.

its such a nuisance / pity this has to be complicated, but the benefits seem so real
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#6 ravenwoodglass

 
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Posted 30 May 2012 - 03:38 AM

So even though I kinda wanted to keep fasting, since I had breaded fish last night.. and wanted to clean out..



Gluten reactions can be delayed. There is a chance you were not reacting to what you had just eaten but to the breaded fish you had the night before. If you need to be gluten free you can't just be gluten free during the day and then eat gluten at night. That just doesn't work. If you need a diagnosis before you can fully adopt the diet 24/7 you should go back to eating gluten at every meal for at least a couple of months and then get tested.
  • 2
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 kareng

 
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Posted 30 May 2012 - 05:08 AM

I agree with Ravenwood. You seem to be saying you ate some gluten coated fish but blaming the glutening on other foods. Until you have really been gluten free for at least a few months, the diet won't help. It isn't a gluten-free diet during the day and gluten at night.
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#8 Adalaide

 
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    It needs to be about 20% cooler.

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Posted 30 May 2012 - 06:28 AM

I agree with Ravenwood. You seem to be saying you ate some gluten coated fish but blaming the glutening on other foods. Until you have really been gluten free for at least a few months, the diet won't help. It isn't a gluten-free diet during the day and gluten at night.


I guess I just sort of assumed it was gluten free breaded fish if there was confusion about where the gluten came from. But yes, if it was not gluten free it is almost certainly the fish making you sick. (My husband found and brought me some packaged breaded fish that is gluten free, so it is out there.)
  • 0

"You don't look sick or anything"

"Well you don't look stupid, looks can be deceiving."

 

Celiac DX Dec 2012

CRPS DX March 2014


#9 CanineGluten

 
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Posted 30 May 2012 - 10:47 AM

Well my guess then is the eating of a meal at noon spurred my digestive tract to get going, and I felt glutening symptoms.

Yes I know, cant eat it at night. lol

Its tough. u have to prepare everything

Ill stop whining.
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#10 ravenwoodglass

 
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Posted 31 May 2012 - 04:57 AM

Well my guess then is the eating of a meal at noon spurred my digestive tract to get going, and I felt glutening symptoms.

Yes I know, cant eat it at night. lol

Its tough. u have to prepare everything

Ill stop whining.


Whine as much as you need to as we will always listen.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#11 CanineGluten

 
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Posted 01 June 2012 - 07:34 PM

Thank You.
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#12 GFinDC

 
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Posted 02 June 2012 - 06:12 AM

When I get glutened I usually am backed up for a day or 2 and then get diahrea. You may have reacted similarly? Celiac is an autoimmune condition and the antibodies turn on quickly but don't turn off quickly. You could have an immune reaction go on for a couple of weeks or more after a glutening. Your body wants to keep you safe and it does that by fighting invaders. In celiac the body considers your intestinal lininig as an invader whenever gluten is present. So it attacks your small intestine lining. So to keep that attack from happening you need ot be gluten-free all the time. That gives your small intestine the best chance to heal which will allow you to absorb vitamins and minerals correctly.
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#13 CanineGluten

 
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Posted 02 June 2012 - 08:29 AM

Im not sure Im celiac. All I know is I woke up this morning and feel like my gluten-free self again. How crazy. It took 2 days to burn through that. Since about 2 days ago I gorged on donuts, crackers, etc.

Gluten makes me anti social
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#14 IrishHeart

 
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Posted 02 June 2012 - 09:52 AM

Stop eating it if it makes you anti-social. You got glutened because you are eating breaded foods and donuts, that's how.

This is why I was telling you that you cannot tell people --as you are doing on another thread ---to FAST when they are recovering from celiac. You do not fast when you are very ill from malabsorption and in starving mode, okay? Celiacs need to eat to replenish.

You talk about fasting ---and then gorging. This "eating window" as you call it ---after starving yourself and gorging on donuts? This is not healthy living. This is an eating disorder.

If gluten messes with your head, you may want to be tested for celiac, okay? We want you to feel better.
Best wishes to you.
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#15 Bubba's Mom

 
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Posted 02 June 2012 - 01:08 PM

Putting all gluten issues aside, eating only in the evening will really mess up your blood sugar. It's not a good idea, or healthy for anyone.

Is there any reason why you don't want to be testd for Celiac? It seems like you are getting reactions to gluten? If your body doesn't tolerate it, it will mess you up in a lot of ways. Why not get tested so you'll have a better idea of what's making you feel bad?
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