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Symptoms Are Back
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After being Gluten free for over a month now I thought that my daugther has been symptom free. All of a sudden she started vomiting today. She is only 8 months old only eats gluten thru my breast milk. I did notice the rash start to appear about two days ago but because it was in a different location this time I was hoping that it was not the Celiac. I need some advice and someone to tell me it will be ok. I feel like this is all my fault and I can't fix it. She is still smaller than she was 3 months ago when this all began. Any advice and support we will gladly accept.

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After being Gluten free for over a month now I thought that my daugther has been symptom free. All of a sudden she started vomiting today. She is only 8 months old only eats gluten thru my breast milk. I did notice the rash start to appear about two days ago

My youngest (who spurred the whole gluten/dairy free diet in our family) had many symptoms that led me to try the elimination diet when breastfeeding (I bf until he was 2 yrs). Whenever I slipped up, he would pay the price with vomiting, constipation or the opposite, writhing in pain, and rashes that turned into open sores in any given location - head to toe. You've brought back memories that bring tears to my eyes. I was very hard on myself and it's been a long healing journey - not just the healing of our gluten sensitive bodies, but our spirit too. It was only after being glutenfree myself (for him), that I discovered that I had a big problem too. My bit of advice is to recognize and accept that living with a gluten sensitivity is sometimes trial and error. And I reassure myself that these accidental incidences of exposure are less harmful than going a lifetime without recognizing the damage that could have been incurred on a daily basis. My children and I still get exposed to gluten accidentally...we make it through together. You will too.

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Did you recently add something new to your diet? Get cc'ed at a restaurant?

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I can't think of anything new and because she was symptom free for so long (1 month) I stopped journaling everything I ate. She did get her immunizations but they told me that there wasn't gluten in them. My oldest still eats gluten along with my husband and they wash their hands and brush their teeth before they touch her but I was wondering if trace amounts of gluten can cause such a severe reaction. I am so glad to have people to talk to. This is the scariest thing I have ever had to deal with because its my baby:(.

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Did you recently add something new to your diet? Get cc'ed at a restaurant?

I never eat out now. I live in a small town that I know doesn't provide gluten free preparation of food. I did get a coke at Sonic one day. I do worry about the cross contamination with her at daycare but they have assured me that they are careful. I feel like its something at home that I'm missing.

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I can't think of anything new and because she was symptom free for so long (1 month) I stopped journaling everything I ate. She did get her immunizations but they told me that there wasn't gluten in them.

My boys have also had food sensitivities beyond wheat & dairy - it made my food journaling experience such a frustrating one! I became fanatic about everything I ingested. At one point I was only eating "Free From..." chicken, organic rice and broccoli. Finally, we broke down and saw a NAET practitioner, and started getting answers. Root cause. Their allergies have been eliminated thanks to NAET, but dairy and wheat linger.

I used (and still do...) arnica ointment and calendula ointment (Boiron) on rashes - they reacted to everything else. I would literally hear a sigh escape when I put the ointment on them.

I could go on a rant about immunizations - but I'll save that for another day, when I'm feeling brave enough to take the flack.

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My oldest still eats gluten along with my husband and they wash their hands and brush their teeth before they touch her but I was wondering if trace amounts of gluten can cause such a severe reaction.

That would depend her level of sensitivity. It varies greatly. In our household, my son and I kept getting sick until my husband and daughter also went gluten free. We tried everything in terms of being careful with their gluten. My son and I are sensitive to extremely low levels. From what I have read, it isn't uncommon for a gluten free household to be necessary.

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I can't help but be wary about a daycare that is not gluten-free, no matter how careful they claim to be. If there are other kids eating non-gluten-free foods, there is always the risk of contamination, and a few crumbs on the floor are all it takes for a kiddo the age of yours. Just something to consider.

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Are you gluten free also? She could be reacting to gluten in your diet as well. The other posters gave you some very helpful information also to consider. Hoe your little one feels better soon.

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Are you gluten free also? She could be reacting to gluten in your diet as well. The other posters gave you some very helpful information also to consider. Hoe your little one feels better soon.

Yes I am gluten because I am nursing. We are planning on having a gluten free household soon but we can't afford to throw away what we already had prior to the diagnosis. Thank you for the well wishes:)

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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