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Symptoms Are Back


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9 replies to this topic

#1 LilleesMom

 
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Posted 29 May 2012 - 04:57 PM

After being Gluten free for over a month now I thought that my daugther has been symptom free. All of a sudden she started vomiting today. She is only 8 months old only eats gluten thru my breast milk. I did notice the rash start to appear about two days ago but because it was in a different location this time I was hoping that it was not the Celiac. I need some advice and someone to tell me it will be ok. I feel like this is all my fault and I can't fix it. She is still smaller than she was 3 months ago when this all began. Any advice and support we will gladly accept.
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#2 deb445

 
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Posted 29 May 2012 - 06:24 PM

After being Gluten free for over a month now I thought that my daugther has been symptom free. All of a sudden she started vomiting today. She is only 8 months old only eats gluten thru my breast milk. I did notice the rash start to appear about two days ago


My youngest (who spurred the whole gluten/dairy free diet in our family) had many symptoms that led me to try the elimination diet when breastfeeding (I bf until he was 2 yrs). Whenever I slipped up, he would pay the price with vomiting, constipation or the opposite, writhing in pain, and rashes that turned into open sores in any given location - head to toe. You've brought back memories that bring tears to my eyes. I was very hard on myself and it's been a long healing journey - not just the healing of our gluten sensitive bodies, but our spirit too. It was only after being glutenfree myself (for him), that I discovered that I had a big problem too. My bit of advice is to recognize and accept that living with a gluten sensitivity is sometimes trial and error. And I reassure myself that these accidental incidences of exposure are less harmful than going a lifetime without recognizing the damage that could have been incurred on a daily basis. My children and I still get exposed to gluten accidentally...we make it through together. You will too.
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Gluten free for 5 years. Dairy free for years, but now OK with grassfed dairy.

Grain free for 2 years and now pain free.

A dedicated kitchen, a new passion for whole foods, Paleo inspiration

BLACK SEED and MSM has made a world of difference.

"Life isn't about waiting for the storm to pass, but about learning to dance in the rain..." ~unknown

#3 dilettantesteph

 
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Posted 30 May 2012 - 04:18 AM

Did you recently add something new to your diet? Get cc'ed at a restaurant?
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#4 LilleesMom

 
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Posted 30 May 2012 - 08:56 AM

I can't think of anything new and because she was symptom free for so long (1 month) I stopped journaling everything I ate. She did get her immunizations but they told me that there wasn't gluten in them. My oldest still eats gluten along with my husband and they wash their hands and brush their teeth before they touch her but I was wondering if trace amounts of gluten can cause such a severe reaction. I am so glad to have people to talk to. This is the scariest thing I have ever had to deal with because its my baby:(.
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#5 LilleesMom

 
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Posted 30 May 2012 - 08:59 AM

Did you recently add something new to your diet? Get cc'ed at a restaurant?

I never eat out now. I live in a small town that I know doesn't provide gluten free preparation of food. I did get a coke at Sonic one day. I do worry about the cross contamination with her at daycare but they have assured me that they are careful. I feel like its something at home that I'm missing.
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#6 deb445

 
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Posted 30 May 2012 - 10:40 AM

I can't think of anything new and because she was symptom free for so long (1 month) I stopped journaling everything I ate. She did get her immunizations but they told me that there wasn't gluten in them.


My boys have also had food sensitivities beyond wheat & dairy - it made my food journaling experience such a frustrating one! I became fanatic about everything I ingested. At one point I was only eating "Free From..." chicken, organic rice and broccoli. Finally, we broke down and saw a NAET practitioner, and started getting answers. Root cause. Their allergies have been eliminated thanks to NAET, but dairy and wheat linger.
I used (and still do...) arnica ointment and calendula ointment (Boiron) on rashes - they reacted to everything else. I would literally hear a sigh escape when I put the ointment on them.

I could go on a rant about immunizations - but I'll save that for another day, when I'm feeling brave enough to take the flack.
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Gluten free for 5 years. Dairy free for years, but now OK with grassfed dairy.

Grain free for 2 years and now pain free.

A dedicated kitchen, a new passion for whole foods, Paleo inspiration

BLACK SEED and MSM has made a world of difference.

"Life isn't about waiting for the storm to pass, but about learning to dance in the rain..." ~unknown

#7 dilettantesteph

 
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Posted 31 May 2012 - 06:14 AM

My oldest still eats gluten along with my husband and they wash their hands and brush their teeth before they touch her but I was wondering if trace amounts of gluten can cause such a severe reaction.

That would depend her level of sensitivity. It varies greatly. In our household, my son and I kept getting sick until my husband and daughter also went gluten free. We tried everything in terms of being careful with their gluten. My son and I are sensitive to extremely low levels. From what I have read, it isn't uncommon for a gluten free household to be necessary.
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#8 Sesara

 
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Posted 31 May 2012 - 07:06 AM

I can't help but be wary about a daycare that is not gluten-free, no matter how careful they claim to be. If there are other kids eating non-gluten-free foods, there is always the risk of contamination, and a few crumbs on the floor are all it takes for a kiddo the age of yours. Just something to consider.
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#9 Roda

 
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Posted 31 May 2012 - 09:17 AM

Are you gluten free also? She could be reacting to gluten in your diet as well. The other posters gave you some very helpful information also to consider. Hoe your little one feels better soon.
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#10 LilleesMom

 
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Posted 31 May 2012 - 04:50 PM

Are you gluten free also? She could be reacting to gluten in your diet as well. The other posters gave you some very helpful information also to consider. Hoe your little one feels better soon.


Yes I am gluten because I am nursing. We are planning on having a gluten free household soon but we can't afford to throw away what we already had prior to the diagnosis. Thank you for the well wishes:)
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