Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Doctors
0

16 posts in this topic

Many of you know of my troubles with a doctor who was filling in for my regular GP, that told me I was bulemic, anorexic, etc.

Well I went to see my GP who was back from a well-deserved (IMO) holiday to Australia. She said that I looked better, and I told how well I felt since going gluten-free. I told her about how I have been regularly "going", and how my brain fog has gone, I'm more energetic, less nausea, no more fatigue, and though I do have my bad days I am feeling better overall. The response was not what I expected. She must have been talking to the fill-in.

She told me I am not a coeliac, and asked me if this is an "obsession" I'm going through, because I used to have OCD which I still do a wee bit, but have overall conquered-on my own.

I said no, it can't possibly be. There's no way I could "Fake" being well. So then she said I was probably just gluten sensitive, and I could "grow out of it" but that most people feel better when gluten is eliminated from their diet because they stop eating junky foods.

:(

I felt as if I were talking to the wall behind her. I might as well have been talking to the wall, expecting it to talk back. At least it might have been concerned.

So here I am again! Gluten-free, feeling better, showing the main plus more symptoms of coeliac disease but.....it's just a phase (says she).

I needed to vent :P Thanks for reading, those who did :D

I'm staying gluten free, and I'm going to wait until my hospital gets a gastro specialist that I can go see.

0

Share this post


Link to post
Share on other sites


Ads by Google:

You know what makes you feel better. And that's all you need. Screw the dumb%$##@!

0

Share this post


Link to post
Share on other sites

Stay away from this woman who doesn't even know what she doesn't know. Her holiday did not do her any good. She does not even know that celiac can make you OCD :blink: Oh, if only we could all fake being well we wouldn't need stupid #%&&es like her.

1

Share this post


Link to post
Share on other sites

I can't even remember all of the horrible things doctors have said to me over the years. There are compassionate and educated doctors out there (a few but they do exist). You should try to find a new one because the one you are seeing is not doing you any favors...

Where are you? Someone may be able to recommend a good doctor :)

0

Share this post


Link to post
Share on other sites

I feel so bad for you! I have walked in your shoes. It's bad enough to have to deal with the gluten symptoms, but once finding the cause of your problems, having Docs imply that "it's all in your head" is infuriating! :angry:

It's like being told you're crazy, when you actually have a disease.

Unfortunately, there are many more Docs out there just like the ones you've seen. I've seen my share too.

Stand your ground and stay gluten-free. You don't need a Dr.s permission!

Nobody will ever know your body better than you. Not even Dr.s. Listen to your body...you have to live with it..they don't.

Best wishes..and (((hugs)) for having to deal with clueless medical people.

0

Share this post


Link to post
Share on other sites




Has anyone ever seen Doc Martin before? That's the kind of town I live in. One doctors office, and everyone knows everybody, so there's not much of any chance of me finding a new doctor. But yes, I am staying gluten-free. Thinking of wheat and barley makes me sick, and as much as I cave a rye biscuit I stay away. It's POISON.

Thank you for your support! It's keeping me going. Some of my family understands, the other half doesn't. So....I just need some convincing to do!

Signed, your self-diagnosed coeliac.

0

Share this post


Link to post
Share on other sites

There are compassionate and educated doctors out there (a few but they do exist)

I've also heard that there is an Easter bunny and an old guy named Santa.

1

Share this post


Link to post
Share on other sites

And then there's the tooth fairy who will exchange your tooth under the pillow for a sixpence! Now we all know by a certain age that these are our moms and dads, but some of us continue to believe that the medical professionals are the Easter Bunny or the Tooth Fairy who can work magic, when in reality they are - just like all of us - flawed human beings with varying levels of expertise. The sooner we stop thinking of them as as Santa Claus or Gods and start thinking of them as employees of our individual corporations of one, and holding them to the standards we would hold of ANY employee, including skill, knowledge, expertise, politeness, consideration, caring and attention, the better off we will be. As a patient we owe them the duty to be polite, a good historian, as knowledgeable as we can be about our condition and body, and respect - until we learn that they are not due respect. We enter into a partnership when we consult a physician, and if your partner is not working as a partner, but as your enemy, it is time to dissolve the partnership and seek someone who will. Unfortunately for you folks in small towns, or with health system constraints, this is not always that easy, but it should be the goal. You cannot get help from someone who is working at cross-purposes with you. :P

2

Share this post


Link to post
Share on other sites

Many of you know of my troubles with a doctor who was filling in for my regular GP, that told me I was bulemic, anorexic, etc.

Well I went to see my GP who was back from a well-deserved (IMO) holiday to Australia. She said that I looked better, and I told how well I felt since going gluten-free. I told her about how I have been regularly "going", and how my brain fog has gone, I'm more energetic, less nausea, no more fatigue, and though I do have my bad days I am feeling better overall. The response was not what I expected. She must have been talking to the fill-in.

She told me I am not a coeliac, and asked me if this is an "obsession" I'm going through, because I used to have OCD which I still do a wee bit, but have overall conquered-on my own.

I'm of the view that many doctors end up doing more harm than good. Iatrogenic illness due to mistreatment and misdiagnosis is also rampant but largely unrecognized due to the public's ignorance of medical and biological sciences. Not going into detail because it's too much of a rabbit hole to get into.

I was diagnosed with celiac disease about 10 years ago. About four years ago, when I started rapidly losing weight, I went to my GP, who accused me of being anorexic. She knew about the diagnosis of celiac, she knew I was coming to her concerned about sudden and rapid weight loss, yet she was adamantly positive I was anorexic, not eating, and lying about it. Obviously, she's not my GP anymore. The weight loss ended up being from CC of gluten but I didn't find the source of it until losing over 40 lbs and 3 months later.

Sometimes you have to listen to your gut feeling, not someone with a license to diagnose.

1

Share this post


Link to post
Share on other sites

I'm of the view that many doctors end up doing more harm than good. Iatrogenic illness due to mistreatment and misdiagnosis is also rampant but largely unrecognized due to the public's ignorance of medical and biological sciences. Not going into detail because it's too much of a rabbit hole to get into.

I was diagnosed with celiac disease about 10 years ago. About four years ago, when I started rapidly losing weight, I went to my GP, who accused me of being anorexic. She knew about the diagnosis of celiac, she knew I was coming to her concerned about sudden and rapid weight loss, yet she was adamantly positive I was anorexic, not eating, and lying about it. Obviously, she's not my GP anymore. The weight loss ended up being from CC of gluten but I didn't find the source of it until losing over 40 lbs and 3 months later.

Sometimes you have to listen to your gut feeling, not someone with a license to diagnose.

Oh my! what a horrible thing to happen to you! Why do doctors always assume we are liars?

0

Share this post


Link to post
Share on other sites

Oh my! what a horrible thing to happen to you! Why do doctors always assume we are liars?

Because, unfortunately, some people are liars. I have a relative who is anorexic and it's important that the doctors find these people, too. But I don't know if accusing people of lying is the way to do it.

0

Share this post


Link to post
Share on other sites

It is so unfortunate when we patients are not "trusted" to be believed by our Medical support system. Our Dr's need to know that "trust" is a two way street! So, I just changed Dr's due to that very reason. My new Dr and I will be developing that patient/Dr relationship. I let her know how dismayed I have been in the past by some of the medical society, and at this point, she and I are off to a good start.

One great question my new Doc asked me was, "Are you in a support group for Celiacs?" I thought that was a great way to let me know, she understands the importance of strengthening our concerns and questions through others dealing with this lifetime conviction of being gluten-free. At that point I replied, yes, and added that one of the moderators of that group, when asked about Dr care, let me know that they were just told to go gluten free dieting and that was about it. She looked at me somewhat incredulously. But I also felt she knows that to be true.

There is no reason to put up with an inept medical group. Even the LPN who took my vitals and some history before the Dr came in, was knowledgeable with Celiac. She said they have many Celiacs who will not follow the diet, and asked me how I was doing. Caring yet careful.

Your comfort zone in this journey is so very important. I am grateful to get some feedback and assistance here since I am new to this. Wishing you all the best as we journey forward. :)

1

Share this post


Link to post
Share on other sites

IMHO, it's simple economics. When you can effectively treat yourself and eliminate 90% of your health issues by going on a gluten-free diet, your doctor doesn't get the perks from the big pharma sales reps for the bronchio-dialators, inhalers, omeprezol stomach acid reducers, anti-diharreals, laxatives, pain and nerve meds, skin emollients, anti-histamines, expectorants, steroids, and every other feckless anti-symptomatic drug they expect to bill you and your insurance company for.

Doctors and Drug Companies aren't stupid, they KNOW they can't make any money by "curing" our problems, that's why they put us on life-long drug regimins to "control" them, as well as more drugs to control the side-effects caused by the drugs we're already taking!

Example: My doctor wanted to start treating me for Diabeties. I have no family history of the disease, I am not overweight, neither are my glucose levels out of whack. He wanted to do it simply because one of the drugs he already had me taking actually CAUSES diabetes as a side effect!

I stopped taking the drug, and started looking for a new doctor.

3

Share this post


Link to post
Share on other sites

IMHO, it's simple economics. When you can effectively treat yourself and eliminate 90% of your health issues by going on a gluten-free diet, your doctor doesn't get the perks from the big pharma sales reps for the bronchio-dialators, inhalers, omeprezol stomach acid reducers, anti-diharreals, laxatives, pain and nerve meds, skin emollients, anti-histamines, expectorants, steroids, and every other feckless anti-symptomatic drug they expect to bill you and your insurance company for.

Doctors and Drug Companies aren't stupid, they KNOW they can't make any money by "curing" our problems, that's why they put us on life-long drug regimins to "control" them, as well as more drugs to control the side-effects caused by the drugs we're already taking!

Example: My doctor wanted to start treating me for Diabeties. I have no family history of the disease, I am not overweight, neither are my glucose levels out of whack. He wanted to do it simply because one of the drugs he already had me taking actually CAUSES diabetes as a side effect!

I stopped taking the drug, and started looking for a new doctor.

This was a great post, Stu, and I couldn't agree with you more! I realize that some people have medical issues that need a doctors care but I find that people rely too much on doctors to begin with. Celiac's can do well on their own, after they are healed. There is no need to go overboard with additional testing, unless you are having problems which need addressing.

I am fully healed and have been doing this for 7 years now. I can't remember a time when I did eat gluten so no need for cheating on my part. I tend to stay away from doctors for the most part, except to check in about every 3 years. I did that because I am over 50 and that's when pressure is exerted to get you on all kinds of meds you probably don't need. I had to tell my PCP that I do things my way and I was not going to be plied with meds, unless I would die if I didn't take them. I find that my diet, my exercise regimen and staying away from doctors unless needed has done more to improve my health than anything they will try to give you. I was pretty sick when diagnosed....all 97 pounds of me. I didn't get better until I did things on my own because the only thing they seem to do today is medicate, medicate, medicate. :blink:

0

Share this post


Link to post
Share on other sites

And where I am a man, the doctor really suspected I was lying....because coeliac is more common in women, but nonetheless I've been gluten-free for a while now and I've been getting better, I can really tell!

0

Share this post


Link to post
Share on other sites

Many of you know of my troubles with a doctor who was filling in for my regular GP, that told me I was bulemic, anorexic, etc.

Well I went to see my GP who was back from a well-deserved (IMO) holiday to Australia. She said that I looked better, and I told how well I felt since going gluten-free. I told her about how I have been regularly "going", and how my brain fog has gone, I'm more energetic, less nausea, no more fatigue, and though I do have my bad days I am feeling better overall. The response was not what I expected. She must have been talking to the fill-in.

She told me I am not a coeliac, and asked me if this is an "obsession" I'm going through, because I used to have OCD which I still do a wee bit, but have overall conquered-on my own.

I said no, it can't possibly be. There's no way I could "Fake" being well. So then she said I was probably just gluten sensitive, and I could "grow out of it" but that most people feel better when gluten is eliminated from their diet because they stop eating junky foods.

:(

I felt as if I were talking to the wall behind her. I might as well have been talking to the wall, expecting it to talk back. At least it might have been concerned.

So here I am again! Gluten-free, feeling better, showing the main plus more symptoms of coeliac disease but.....it's just a phase (says she).

I needed to vent :P Thanks for reading, those who did :D

I'm staying gluten free, and I'm going to wait until my hospital gets a gastro specialist that I can go see.

Congratulations on feeling better! Leave it to a doctor to make you feel bad about feeling better. The more and more I interact with them, the more and more impatient I get with them.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,431
  • Topics

  • Posts

    • Celiac Sensitivity?
      For dining out, check out the website: http://Www.findmeglutenfree.com.  They list restaurants with gluten free menu's and options in your area and there are reviews from other celiacs on there to help you figure out the better, safe places to eat.  Great web site!   Although it is optimal to not dine out at first, reality sometimes gets in the way.  I had booked a trip months before I got really sick and would have lost a lot of money if I did not go.  A month after diagnosis, I flew overseas and ate out for dinner only every night.  I ate plain foods but they were well prepared so still quite good. I never got sick.  I was careful and it worked. Luckily, Europe was way more gluten free knowledgeable than the US at that time and still is.  So, it can be done if you are very careful!
    • Anyone experience brain fog like this?
      Thanks for the reply, melprkr! Feeling like you're still in a swimming pool moving is a good way to put it. It feels kind of like motion sickness, come to think of it, or a really bad hangover. I was curious because my experience of 'brain fog' in the context of thyroid problems feels so different than brain fog caused by gluten, and I couldn't quite figure out how to explain it. Swimming pool comes pretty close, though. Hope you feel better soon as well!
    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,912
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined