Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Numb Hands From A gluten-free Diet? Or Is It A Symptom?
0

8 posts in this topic

Hi all-

Been sick for a year now, gained 30lbs, heatburn, bloating 24/7, the works. Despite stumping two well-regarded gastros and enduring all procedures, they still can't figure me out. So I started going strictly gluten free 2 weeks ago.

A week in, I noticed a weird rash on my finger. Eventually went away the very next day. My stomach pain is still constant, everyday bloating and upper GI pain. Taking nexium right now. But the weirdest thing was I noticed my hands were a little numb. It started with my right pinky and ring finger getting numb and tingly on memorial day, since then it comes back from time to time, on my left hand now also. This has all never happened to me before (25 year old male in otherwise good health).

I looked it up on the forum and it seems like this is a common symptom for celiacs, but as I read more it looks like people were saying it was a reaction to a lack of nutrients (like B12) simply from a gluten free diet. I'm confused -- is it a sign that I am gluten intolerant, or is it just my body reacting from the diet that I'm on regardless of if I am a celiac or not? If anything, I was hoping it would be an indicator that I do, in fact, have some gluten allergy.

It's also weird how random my symptoms come on, including the numbness. One would think they flare up because I'm ingesting gluten, but I'm 99% certain that I am absolutely not taking in any gluten from anywhere. I'm on my third week, and my stomach is still a painful mess, but I'm hoping this works. The doctor said I can do a celiac sprue blood test, but doing that requires me to abandon all my progress already.

Anyone with any experience? Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

I don't, it just seems to be some numbness in my hands now and again. No pain or anything like that.

0

Share this post


Link to post
Share on other sites

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites




If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

Thanks for your reply. I've only been gluten free for two and a half weeks, so I'm not certain if that's enough time for a gluten-free diet alone to cause any B12 deficiencies. Also taking a gluten-free daily multivitamin. Was hoping for the possibility that a long-time misdiagnosis of a gluten allergy or intolerance would be the culprit, thus my other symptoms would finally have an explanation as well.

Thanks for your help!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,315
  • Topics

  • Posts

    • i hope you tipped that waitress well????
    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined