Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Numb Hands From A gluten-free Diet? Or Is It A Symptom?
0

8 posts in this topic

Hi all-

Been sick for a year now, gained 30lbs, heatburn, bloating 24/7, the works. Despite stumping two well-regarded gastros and enduring all procedures, they still can't figure me out. So I started going strictly gluten free 2 weeks ago.

A week in, I noticed a weird rash on my finger. Eventually went away the very next day. My stomach pain is still constant, everyday bloating and upper GI pain. Taking nexium right now. But the weirdest thing was I noticed my hands were a little numb. It started with my right pinky and ring finger getting numb and tingly on memorial day, since then it comes back from time to time, on my left hand now also. This has all never happened to me before (25 year old male in otherwise good health).

I looked it up on the forum and it seems like this is a common symptom for celiacs, but as I read more it looks like people were saying it was a reaction to a lack of nutrients (like B12) simply from a gluten free diet. I'm confused -- is it a sign that I am gluten intolerant, or is it just my body reacting from the diet that I'm on regardless of if I am a celiac or not? If anything, I was hoping it would be an indicator that I do, in fact, have some gluten allergy.

It's also weird how random my symptoms come on, including the numbness. One would think they flare up because I'm ingesting gluten, but I'm 99% certain that I am absolutely not taking in any gluten from anywhere. I'm on my third week, and my stomach is still a painful mess, but I'm hoping this works. The doctor said I can do a celiac sprue blood test, but doing that requires me to abandon all my progress already.

Anyone with any experience? Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

I don't, it just seems to be some numbness in my hands now and again. No pain or anything like that.

0

Share this post


Link to post
Share on other sites

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites




If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

Thanks for your reply. I've only been gluten free for two and a half weeks, so I'm not certain if that's enough time for a gluten-free diet alone to cause any B12 deficiencies. Also taking a gluten-free daily multivitamin. Was hoping for the possibility that a long-time misdiagnosis of a gluten allergy or intolerance would be the culprit, thus my other symptoms would finally have an explanation as well.

Thanks for your help!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,110
    • Total Posts
      919,433
  • Topics

  • Posts

    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
    • What a gross title–it bothers me and I wrote it! It wasn't my idea originally. The research paper the data came from was entitled, "Experimental hookworm infection and gluten microchallenge promote tolerance in celiac disease" published recently in the Journal of Allergy and Clinical Immunology. View the full article
    • katesyl.........this is an older topic so the OP most likely won't answer.  I can, however, offer a piece of advice for you. Just going gluten free will probably not drive your inflammation markers down into normal.  It does depend on how high they were to begin with but with all autoimmune diseases, there will be inflammation going on forever.  Get used to wonky blood work because most of us will have that issue. I have 4 autoimmune diseases in total and, although I have driven certain inflammatory markers way down, my recent sed rate number was elevated.  The normal is supposed to be 30 and under in a woman my age but mine is 50.  With 4 AI diseases, I doubt it will ever be normal and I don't let it bother me. I am not willing to take major meds at all and use more natural anti-inflammatory supplements.  You can do whatever you feel comfortable with in regards to treatment but don't expect normal numbers with Celiac Disease. Inflammation will improve but normal?  Most people never get there completely.
    • My daughter's PCP did not go against anything, she offered to do the biopsy - I was the one opposed to it. My DD, who was 10 at the time had just spent 3 weeks in the hospital, very sick with a ruptured appendix, then had 2 surgeries a few months after. I didn't see the need to put her through anything else with her numbers so high and all the classic symptoms. Apparently, in some other countries, if your numbers are all high, they forego biopsy. Anyway, I was really asking about myself and whether I should push for add'l testing. I am still new this this and trying to get up-to-date and wasn't sure if my PCP should conduct other blood tests before I go completely gluten-free. I have been somewhat gluten-free, but not entirely. I have no problem going gluten-free, but want to make sure that I am doing it for the right reasons. I wasn't sure if the Gliadin Abs IgA was sufficient to point to Celiac and possibly doing a biopsy for me. Or if additional blood test would make more sense.   Thanks!!
    • I would like to know if you have found out the source of your inflammation yet. I'm gluten free three years but my inflammation test was high.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,147
    • Most Online
      1,763

    Newest Member
    Otto'sMom
    Joined