Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Numb Hands From A gluten-free Diet? Or Is It A Symptom?
0

8 posts in this topic

Hi all-

Been sick for a year now, gained 30lbs, heatburn, bloating 24/7, the works. Despite stumping two well-regarded gastros and enduring all procedures, they still can't figure me out. So I started going strictly gluten free 2 weeks ago.

A week in, I noticed a weird rash on my finger. Eventually went away the very next day. My stomach pain is still constant, everyday bloating and upper GI pain. Taking nexium right now. But the weirdest thing was I noticed my hands were a little numb. It started with my right pinky and ring finger getting numb and tingly on memorial day, since then it comes back from time to time, on my left hand now also. This has all never happened to me before (25 year old male in otherwise good health).

I looked it up on the forum and it seems like this is a common symptom for celiacs, but as I read more it looks like people were saying it was a reaction to a lack of nutrients (like B12) simply from a gluten free diet. I'm confused -- is it a sign that I am gluten intolerant, or is it just my body reacting from the diet that I'm on regardless of if I am a celiac or not? If anything, I was hoping it would be an indicator that I do, in fact, have some gluten allergy.

It's also weird how random my symptoms come on, including the numbness. One would think they flare up because I'm ingesting gluten, but I'm 99% certain that I am absolutely not taking in any gluten from anywhere. I'm on my third week, and my stomach is still a painful mess, but I'm hoping this works. The doctor said I can do a celiac sprue blood test, but doing that requires me to abandon all my progress already.

Anyone with any experience? Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

0

Share this post


Link to post
Share on other sites

do you have any neck/shoulder problems, because it sounds more like TOS then carpal tunnel.

I don't, it just seems to be some numbness in my hands now and again. No pain or anything like that.

0

Share this post


Link to post
Share on other sites

If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites




If you are already gluten free, don't bother going for a blood test.

Having a B12 defiency can be very common. Most gluten containing processed foods are fortified to have more vitamins and minerals. (most gluten free procesed products are not..Yet) The point is somehow your are not consuming enough or your gut is not absorbing enough. There is also a condition, Pernicious anemia, that is associated with Celiac. Very common for Celiacs to have Pernicious Anemia. The damaged gut lining does not have the intrinsic factor to process vitamin B12. So it would be safe for you to supplement vitamin B12, because there is no known toxic level for a body (it will be flushed out of your system before it reaches a toxic level).

Some vitamin and nutrient supplements need to be monitored closely by a doctor. ;)

Thank you for all of that great info. So basically, having that symptom is not always a deciding factor of a gluten allergy. I have a few symptoms and was hoping this would be the tell-all, but thanks for clarifying. ANy recommendations of how much B12 to take daily to start out with?

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

0

Share this post


Link to post
Share on other sites

Celiac/gluten sensitivity/intolerance and DH can damage the gut lining and there is a known connection to Pernicious anemia. If you are having and issue with B12 being absorbed it could be a side affect from a gluten issue.

It would be best to get medical testing to see if and how low your B12 level is. The doctor can give you an injection. Sublingual B12 has shown to be as effective. If your body doesn't need the B12 you would just pass it out of your system. High amounts could cause the "D".

Thanks for your reply. I've only been gluten free for two and a half weeks, so I'm not certain if that's enough time for a gluten-free diet alone to cause any B12 deficiencies. Also taking a gluten-free daily multivitamin. Was hoping for the possibility that a long-time misdiagnosis of a gluten allergy or intolerance would be the culprit, thus my other symptoms would finally have an explanation as well.

Thanks for your help!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,654
    • Total Posts
      921,619
  • Topics

  • Posts

    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
    • I don't have a lot of faith in the allergy testing naturalpaths do. I had them done, but really it wasn't very helpful. Foods that were okay on the blood work- I was still having obvious reactions to. Skin testing through an allergist didn't show up food allergies either. I agree the food elimination diet is a better way to go and doesn't cost a bunch of money. I did a whole 30 diet a while back that could have been helpful if the foods I reacted to were corn, dairy,  soy, grains and sugar- but I react to more than that.  I do need to do a major elimination diet- just haven't gotten up the willpower yet.   
    • Quick search gave too many responses to TGI Fridays but none to TGI Fridays Buns (or similar) so... I was talking with my sister-in-law (Gluten Intolerant) and she spoke highly of a pre-packaged bun from Fridays. I was hesitant but she gave me one (apparently you can buy them from the restaurant?) and I tried it. Since I'm slow to react I won't know about gluten for a bit but I can definitely say it is the closest to "real" I've had in years! Spongy, doesn't crumble while eating a sandwich and tastes good. Color me impressed! I tried to determine the manufacturer or if Fridays actually makes them but I can't locate anything worth pursuing. Anyone have information on this? Thanks in advance.
    • Thanks cyclinglady! I will!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,654
    • Most Online
      3,093

    Newest Member
    bentcreekmom
    Joined