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A Biopsy


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10 replies to this topic

#1 cristalbleu13

 
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Posted 03 June 2012 - 07:02 AM

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).
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#2 squirmingitch

 
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Posted 03 June 2012 - 08:49 AM

It means total villous atrophy or completely flattened villi. Completely atrophic. . It is in this extremely uncommon setting that a
lymphoma is more likely to occur.

See:
http://celiacdisease.../MarshScore.htm

http://celiacdisease...k-My-Doctor.htm

http://www.curecelia...ews_v3final.pdf

Have you been gluten free since the age of two? Was this the results of an endoscopy at the age of 2 or was this from a recent endoscopy?
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#3 beachbirdie

 
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Posted 03 June 2012 - 08:51 AM

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).


The grade 4 atrophy rating is a measurement of damage to the villi in your intestine. A rating this high is usually seen in untreated celiac.

When was this biopsy done? If recent, you have serious intestinal damage going on. And at risk for a lot of stuff.
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#4 cristalbleu13

 
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Posted 03 June 2012 - 08:55 AM

It means total villous atrophy or completely flattened villi. Completely atrophic. . It is in this extremely uncommon setting that a
lymphoma is more likely to occur.

See:
http://celiacdisease.../MarshScore.htm

http://celiacdisease...k-My-Doctor.htm

http://www.curecelia...ews_v3final.pdf

Have you been gluten free since the age of two? Was this the results of an endoscopy at the age of 2 or was this from a recent endoscopy?


This was at the age of 2 , had been on gluten free diet for 16 years ,then stopped it at the age of 18 and after 4 years of gluten started having ibs symptoms , anxiety , panic attacks and lost 11 lbs , had to come off gluten again without listening to doctors and it's been 4 week since i went on gluten free diet again.
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#5 beachbirdie

 
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Posted 03 June 2012 - 08:58 AM

Hello everyone , could anyone explain to me in details what this result means : villous atrophy grade 4( i was diagnosed with the celiac disease at the age of 2 ).



Ahh...I just went back and found one of your original posts in which you shared your whole story.

I am dumbfounded that a doctor put you back on a "normal" diet after having been diagnosed celiac. And that they went fishing for other things when you started getting sick.

Celiac is not something you "get over", and you simply must be gluten free. The damage is causing nutritional deficiencies which will feed your panic attacks, neuropathies, and other symptoms.

They shouldn't be putting you through this all over again and I'm sorry you've been suffering for the sake of incompetent doctors. :angry:
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1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#6 cristalbleu13

 
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Posted 03 June 2012 - 09:10 AM

Ahh...I just went back and found one of your original posts in which you shared your whole story.

I am dumbfounded that a doctor put you back on a "normal" diet after having been diagnosed celiac. And that they went fishing for other things when you started getting sick.

Celiac is not something you "get over", and you simply must be gluten free. The damage is causing nutritional deficiencies which will feed your panic attacks, neuropathies, and other symptoms.

They shouldn't be putting you through this all over again and I'm sorry you've been suffering for the sake of incompetent doctors. :angry:


I got fed up of doctors , how long will it take to get rid of gluten ?? how long will it take for the symptoms to go away if they are related to my celiac disease
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#7 beachbirdie

 
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Posted 03 June 2012 - 09:31 AM

I got fed up of doctors , how long will it take to get rid of gluten ?? how long will it take for the symptoms to go away if they are related to my celiac disease


Kind of depends on your body. Some people heal more quickly than others.

Were you feeling fairly well before you were taken on this misadventure?

It is possible it could take up to some months to heal. Because celiac is an autoimmune response to the gluten, you will have a lot of inflammation in your body. That takes time to overcome, even after the immediate symptoms have faded.

I hope you will be feeling well very soon!
  • 0
1999 - Hypothyroid
2003 - Hashimoto's Disease
2008 - Diverticulitis
2009 - Significant Vit D Deficiency
2011 - Diverticulitis again
2011 - HLA-DQ2.2
2012 - TtG IgG positive... I am now, finally, Gluten Free - 5/16/2012

#8 cristalbleu13

 
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Posted 03 June 2012 - 09:47 AM

Kind of depends on your body. Some people heal more quickly than others.

Were you feeling fairly well before you were taken on this misadventure?

It is possible it could take up to some months to heal. Because celiac is an autoimmune response to the gluten, you will have a lot of inflammation in your body. That takes time to overcome, even after the immediate symptoms have faded.

I hope you will be feeling well very soon!


To be honest with you i have lots of symptoms , stomach problems , ibs , anxiety , panic attacks but since i started the gluten free diet i managed to eat , i'm having my appetite back again , i'm not feeling that sad like i was before ( i'm not crying for no reason now i'm fine), i'm bit worried because i'm not sure if all of this is caused by my celiac disease , and i'm not sure wether it will go away or not in couple of months , the doctor i'm with at the moment doesn't care at all , she didn't even believe i had a celiac disease at the age of 2 until i had to show the medical record because the blood test was negative .
We will see how it goes in 2 to 3 months :(
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#9 squirmingitch

 
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Posted 03 June 2012 - 10:53 AM

Your problems really ARE due to the celiac dear --- they really are. I know it seems hard to believe but believe. There are countless people who have posted on this board who can attest to the myriad of things untreated celiac causes to happen. You have had celiac disease your whole life. It will never go away but you will be fine if you stay on a strict gluten-free diet. Hang in there! You'll get better --- honest!!!!Posted Image
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#10 Ninja

 
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Posted 03 June 2012 - 11:26 AM

Here is a link that lists everything that can be a symptom, or related disorder of Celiac: http://www.recognizi...ase.com/21.html it's amazing!

I'm sorry that your doctor led you in the wrong direction, but kudos to you for figuring it all out! It will get better, it just takes time and patience. :)
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Gluten Free 2/12 

 

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#11 cristalbleu13

 
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Posted 03 June 2012 - 12:24 PM

Thank's everybody and i hope i'll get better soon with the gluten free diet :)
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