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Hi All...am New Here
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I am Rose. Only recently came back online after being off for several years. I have been reading on this board for the past two weeks. While offline I also read quite a bit about Celiac Disease and Gluten Intolerance.

A bit over 2 years ago and during a stressful time I suddenly became nauseous and my GI tract went into quivering followed by constant spasming and constipation, episodes of very high blood pressures, my hair becoming very thin, my arms and legs tingling, shortness of breath and I steadily lost weight.

The endoscopy showed erosive gastritis but negative for Celiac Disease. After a blood test in which Digestive Disease Dr. said my IGE was very very high she did further blood work and said I was allergic to wheat and corn and that in time I would heal up. Onto an allergist who said I can't be allergic but an intolerant. I also stopped eating anything with soy quite a few years ago as it was causing me to have constant diarrhea. After quitting soy I started making my own bread using a bread flour with a high gluten content so perhaps that may have contributed toward the problem. I was lactose intolerant since my teens and a test now shows severe lactose intolerance. Whatever the problem since I stopped eating wheat a red raised rash I had for at least 20 years near both elbows has totally disappeared. However I still am in a state of constant GI spasming and constipation.

Am just introducing myself and giving background info. I enjoy visiting the forum here. You seem like a very supportive group of people and with a sense of humor. I'm still waiting for my sense of humor to come back :) and hopefully some of yours will rub off on me. Also looking forward to the recipe section. I recently discovered quinoa and love it and eat it just about everyday.

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Welcome to the group! Hope you can find some help and answers here. :-)

And yeah, the recipe section has tons of good ideas!

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Hello and welcome! I'm so glad gluten-free is helping you. Try probiotics for the intestinal spasms. With regular use you should see some improvement?

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    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Going gluten free may be beneficial if you're among the roughly 10 percent of people who suffer from celiac disease, a genetic immune disorder, ... View the full article
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