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I am Rose. Only recently came back online after being off for several years. I have been reading on this board for the past two weeks. While offline I also read quite a bit about Celiac Disease and Gluten Intolerance.

A bit over 2 years ago and during a stressful time I suddenly became nauseous and my GI tract went into quivering followed by constant spasming and constipation, episodes of very high blood pressures, my hair becoming very thin, my arms and legs tingling, shortness of breath and I steadily lost weight.

The endoscopy showed erosive gastritis but negative for Celiac Disease. After a blood test in which Digestive Disease Dr. said my IGE was very very high she did further blood work and said I was allergic to wheat and corn and that in time I would heal up. Onto an allergist who said I can't be allergic but an intolerant. I also stopped eating anything with soy quite a few years ago as it was causing me to have constant diarrhea. After quitting soy I started making my own bread using a bread flour with a high gluten content so perhaps that may have contributed toward the problem. I was lactose intolerant since my teens and a test now shows severe lactose intolerance. Whatever the problem since I stopped eating wheat a red raised rash I had for at least 20 years near both elbows has totally disappeared. However I still am in a state of constant GI spasming and constipation.

Am just introducing myself and giving background info. I enjoy visiting the forum here. You seem like a very supportive group of people and with a sense of humor. I'm still waiting for my sense of humor to come back :) and hopefully some of yours will rub off on me. Also looking forward to the recipe section. I recently discovered quinoa and love it and eat it just about everyday.


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Welcome to the group! Hope you can find some help and answers here. :-)

And yeah, the recipe section has tons of good ideas!


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Hello and welcome! I'm so glad gluten-free is helping you. Try probiotics for the intestinal spasms. With regular use you should see some improvement?


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    • I have not taken him to a dermatologist. I have dapsone, which I put on the rash, it always clears up. I have it for another family member. But then I started reading about celiac and all these dots are out there but not connected.  The next time he has the bumps, I am going to take him in. In the mean time, I am trying to find a dermatologist who understands the condition. I don't want my kid to have celiac. And I kinda feel crazy for thinking he may have a gluten issue but with it in my family and him having these other things, I want to be dilligent.   i will read up on the test you suggested. Thanks for taking the time to read and respond everyone.   
    • I tested positive to deamidated gliadin in August at a hospital. My old GI tested me using gliadin (the test listed on your result) in September and it was negative. Literally the next day, my new GI tested for deamidated gliadin again and it was positive (I was unaware the hospital scheduled an appointment with the new GI for follow up).  If you still suspect it, Google deamidated gliadin, print out the Mayo clinic lab info and circle the part where it says they have discontinued the use of gliadin in favor of the deamidated gliadin.  Has he seen a dermatologist?
    • He has a rash on his fingers from time to time. Angular Chetelis. Mouth sores. So skinny. Anxious. 
    • The blood test results are negative (and he had the complete panel).  No GI issues (per your posting).  What makes you suspect celiac disease?  
    • Hi WS, So sorry to hear your not feeling quite right just yet. I can relate! I believe in doing whatever is needed for you to be able to come to terms with the diagnosis, which it sounds like was given to you already but if you still need further evidence then do whatever is needed!  In regards to food, I am a pescatarian so I also don't eat meat but I get my protein from some seafood, eggs, beans, natural protein replacements, exct...I was vegetarian and found it extremely difficult on the gluten-free diet for my lifestyle. I found probiotics have really helped me but even now I still feel off days with my digestion and I think that just comes with having a digestive disease. I know what foods trigger it (Yes gluten-free foods!) and try to stay away. I remember the first month or so I was very sick from removing gluten, almost like withdrawal symptoms. Probably because I ate a lot of it prior so it was a shock. 3 1/2 years later, I still feel weak and light headed if I don't eat enough carbs/protein. Celiacs are known to have deficiencies already so your nutrition intake/supplements are super important! I hope your able to find peace with your health and get the answers your looking for! Let us know an update -Cristina  IG: ifitceliac
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