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Biopsy Today
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I had my intestinal biopsy done today. Preliminary report is that everything looks normal. I should be happy, but I am confused! I know we have to wait for the results for a definitve answer, but I guess I assumed they would see something.

Has anyone has a normal looking preliminary result followed by a positive biopsy?

I am also waiting on biopsy results of my rash. Is it possible to have the rash positive and maybe too early for intestinal issues?

I had 3 positive blood tests, including a positive EMA. Everyone says that is celiac specific showing damage, which is why I am confused with the "normal" report.

Thanks!

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I had my intestinal biopsy done today. Preliminary report is that everything looks normal. I should be happy, but I am confused! I know we have to wait for the results for a definitve answer, but I guess I assumed they would see something.

Has anyone has a normal looking preliminary result followed by a positive biopsy?

I am also waiting on biopsy results of my rash. Is it possible to have the rash positive and maybe too early for intestinal issues?

I had 3 positive blood tests, including a positive EMA. Everyone says that is celiac specific showing damage, which is why I am confused with the "normal" report.

Thanks!

I would wait for results. If you had a positive blood test I wouldn't worry about the biopsy. Could be they just got a bad sample. Everything I read says there are very few false positives. I would go with that. On another note can you describe your rash you had? I have had what I believe to be the celiac rash but it would be nice to compare notes. :D

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You have had positive blood work so you do need the diet no matter what the biopsy results. Yes there have been folks that were told everything looked fine and then had the biopsy show up as positive but false negatives are not uncommon. You don't need to wait for the biopsy results and should get on the diet today.

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My rash is extremely itchy red bumps. Some are clusters and some single. Some had fluid filled blisters. I have had 2 outbreaks, and they started on my elbows ans went up and down my arms. Then spread to my knees.

Pics.

DSC_5193.jpg

DSC_5177.jpg

Thank you for your replies! It is hard yo be patient!!

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Misty, SURE looks & sounds like dh to me & I outta know! Go gluten free immediately! You now know you have the antibodies in your skin --- the rash is telling you that. Take it from me --- you don't want it to go any farther! It's going to take a while for the antibodies to leave your skin as it is; please quit gluten now & try to save yourself some grief.

Your blood work says you have celiac disease. Now the rahs is telling you that you have dh & dh = celiac disease. Your biopsy is a moot point now. You have celiac disease.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
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