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Going On 19 Weeks And Struggling
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I was diagnosed with Celiac Disease when I was 17 I am now 23 and going on my second baby. I have followed the diet off and on since diagnosed, but not constant until this past September when my fiance went away to school and I could really focus on myself. However, when I got pregnant in February I haven't been able to control my cravings!! I'll do great for a couple days and I give in. I'm addicted to it, I know I am, but I just don't know what to do. Every day is such a struggle, I feel I can't control myself. I am so embarrassed by this because I know the harm I'm doing to myself and my baby I feel it physically emotionally and I'm also starting to get the spots all over my body from it. I am seeing a counselor but it doesn't seem to help. I've seriously considered a hypnotherapist but I just don't have the money as its $150 for one hour. Any advice or encouragement is appreciated :(

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Bless your heart. I am struggling with just plain outrageous hunger too...everytime i am glutened. I will eat just about Anything!

I was wondering what exactly you are craving? Is it specifically bread like sandwich bread or what? I would assume you have already tried replacing your craving by feeling up on something else that you Love to eat. And im guessing you are already on sufficient prenatal vitamins. Hmmm. Have you spoken with the doctor concerning this or have you had bloodwork done?

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I just want to encourage you not to give in to your cravings. You and your baby need good food. I know you know that, but ...Just keep it away from the house and eat at home. Stay well.

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I'm also 19 weeks pregnant and have to tell you, just DO NOT give into the cravings. You risk potentially losing your child if you do, it's been studied that people who don't have their celiac disease under control suffer more losses than the average person. IF you're having a craving for something with gluten, find a reasonable alternative that IS gluten free. Knowing that it could potentially harm your child should be reason enough to stop.

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I am in the same boat as you are! I have been doing good here lately but have not been gluten free my entire pregnancy and I'm now 36 weeks. I was diagnosed "mildly positive" through a blood test 2 days before finding out I was pregnant. It was a lot to deal with and I am so addicted to good food it has been really hard. I'm trying to be better so I can breast feed without any problems. My baby seems fine now and the blood tests at the beginning of my pregnancy didn't seem to show any anemia...good luck and try your hardest for you and baby!

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It's not always something specific, but usually bread and buns and goodies as those are my favorite. I have good days where I have the motivation to stay away but the bad days take over the good. I have talked to my doctor about it some and she gives me the "this is about you and your baby" talk. I don't want to be judged as I know the harm im doing and I feel like the worlds worst person. I feel like I'm a drug addict using during pregnancy... I guess that's essentially what I'm doing. I dont see my counselor for another couple weeks I'm just trying to take it one day at a time. I wish there was a rehab for gluten addicts...Its everywhere I can't get away from it and as soon as I see it I want it. :(

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Thanks mommy2be it's good to know I'm not alone :(

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A drug addict is exactly the way I've described myself!

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Exactly! I don't know how else to put it; that's the only way I can compare

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I imagine Gluten as rat poison. I have had way worst cravings while pregnant-especially for Restaraunt foods! It's hard being hungry. My midwife advised eating often-snacking lots on filling things. I eat creamy cold Greek yogurt, nuts, avacado, gluten-free pasta and meat sauce, eggs, cold shrimp, I bake my own breads, hearty meaty breakfasts, milk, juicy oranges, melons-am I making anybody hungry for gluten-free?

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I am 16 weeks and feel the same way. I have given in to the temptation of gluten a couple of times (chik fil-a chicken biscuit...I know, wrong on so many levels). But I was so sick the next day, I had major gluten remorse. Now I have enough fear for my baby that I am not doing that again. I didn't really realize that hurting myself was also hurting my baby. Dumb, I know. Anyway, hang in there. Find a good gluten-free website with some recipes for yummy treats. If I keep things around the house like homemade oatmeal cookies with dark chocolate and almond flour banana muffins, I can usually grab one of those and feel good later. They are still sweet and kind of bread like. For me, I just know that any time I leave the house, I have to pack snacks from home. That way I wont go through the awful drive thru again.

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I am 16 weeks and feel the same way. I have given in to the temptation of gluten a couple of times (chik fil-a chicken biscuit...I know, wrong on so many levels). But I was so sick the next day, I had major gluten remorse. Now I have enough fear for my baby that I am not doing that again. I didn't really realize that hurting myself was also hurting my baby. Dumb, I know. Anyway, hang in there. Find a good gluten-free website with some recipes for yummy treats. If I keep things around the house like homemade oatmeal cookies with dark chocolate and almond flour banana muffins, I can usually grab one of those and feel good later. They are still sweet and kind of bread like. For me, I just know that any time I leave the house, I have to pack snacks from home. That way I wont go through the awful drive thru again.

Welcome to the forum, Lindsay. If you're looking for recipes, also check out the recipe section of the forum. You'll find we eat pretty well and are not at all deprived.

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    • Hi! I received my "official" celiac diagnosis last week. I had an endoscopy last month that was originally looking for ulcers and h. pylori, but they did some biopsies of my duodenum since they were in the neighborhood and the biopsy came back "consistent with Celiac's disease" and later. They urged me to get my blood checked and follow up with my primary doctor. My blood work came back negative, but my doctor was confident it's Celiac so told me to stay away from gluten. I've been completely gluten free (or to the best of my knowledge) for 2 weeks now, and my results are mixed. At first, I felt great! My stomach was no longer CRAZY bloated once I stopped eating pasta and bread, my acne started healing, and the red rash on the back of my arms started to fade. That was the first few days. Lately, though, my acne is once again flaring up and I've been SO EXHAUSTED. I feel so tired all the time. Even now I have fatigue in my head, limbs, and I could hardly walk or move my body earlier today. I'm overweight and I like to go to the gym, but what used to be an easy workout for me is kicking my ass! I used to go to the gym and tear it up: HIIT on the treadmill followed by 40 minutes of heavy weight lifting. Now I can hardly finish 3 reps in my first set without feeling like a nap. I can't run anymore because my body feels clumsy and heavy. Also, I'm still bloated. I don't suffer from painful, acute bloating, but I struggle to pass gas and I look like I have pregnant belly. I think I'm also retaining water all over my body, and I'm not sure if that's normal? For whatever reason, I have this belief that water is mainly retained in the core and not arms, legs, and face. Anyway, I'd love to hear what you have to say/what you've experienced. Is this typical to first going gluten free?
    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
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