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Series Of Blood Test Next Week To Confirm

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Hi, my name is Eileen and I have really been sick since 3/17/12, all of a sudden I had this terrible sick feeling and I lost my appitite and I developed this bad taste in my mouth. I've been to a series of doctors, including my GI, and he has given me a scrip for a series of blood test to see if I do have celiac. It all started with the coffee, it started making me really sick. I thought maybe it was the 1% milk I was putting in my coffee, so I decided to switch to Soy milk, I was still feeling very sick, it was definently the coffee. This should be very interesting, I have gluetn free cereal in the morning, along with the Soy and I seem fine. Oh, if you only knew how sick I was, and all my bloodtest were coming up normal. I will post and let you know how it goes with the bloodtest, it takes 10 days for the results.

Eileen P., NJ


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Let us know! Coffee is hard on your stomach. And I can sympathize with being so sick since I experienced the same thing. If the test comes back negative but you find a gluten free diet makes you feel better, I would stick with it!


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I don't know what's making you ill, but keep a food diary. Document everything that gets past your mouth to include lotions and lipsticks/lip balms.

Gluten intolerance and dairy intolerance often go hand in hand until some healing can take place in the small intestines. Dairy can be successfully be reintroduced after a time out.

If your GI might recommend an endoscopy test to check out your small intestines, it's recommended that you continue to digest gluten. If that's not an option try to schedule your appointment asap.

Celiac can be triggered by many things like stress, mono, illness, pregnancy, surgery or any trama. Never heard about coffee ;) . Hopefully, you will know soon.

Hope you get your answers shortly. :)


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    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
    • In reflex testing they look at a result and decide if the next test is needed.  Another example, some labs only do EMA if the Ttg is positive.
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