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Is This Enough?
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3 posts in this topic

Finally got my sons to get the blood tests. I am agitated b/c I specifically stated that I wanted them to have the full celiac panel. When they went to the lab, they also stated they wanted it. Our local hospital sends the blood to a hospital in a larger city to be tested. They DID NOT do the full panel b/c they said the first part of the test did not indicate any celiac so it was not necessary. Here is what Dusty's lab report says (sorry for the length):

"Celiac Disease Panel Reflex to Titer

IMMUNOGLOBULIN A. Serum 162 mg/dL Reference Interval:68-378

Endomysial Antibody,IgA with reflex to titer (00-50734) to follow:

Client Comments:m00067501

LIS#: 20221418/GCH

Endomysial Antibody, IgA with Reflex to Titer

ENDOMYSIAL Ab, IgA Screen None Detected

ENDOMYSIAL Ab, IgA Titer NOT DONE

Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay. All samples which are positive are titered by IFA. The endomysial antigen has been identified as the protein cross-linking enzym"e known as tissue transglutaminase."

(Darin's report said the same thing except his level was 95 mg/dL) Is this enough info for me to be satisfied that they do not have celiac or should more testing be done to be sure? Thanks so much for your help as this really concerns me. :)

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Well, that's not the full panel. They didn't do the anti-gliandin IgG or IgA. As for the "test not done" bit - I think all that's saying is that because it was negative, they didn't to the test that would give you a number.

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Because the Endomysial Ab,IgA screen was negative, the Endoymsial Ab IgA titer was not performed.

TEST INFORMATION:Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transglutaminase (tTG) assay.

I would request the tissue transglutaminase (tTG) to be done. I'm assuming from the above statement, that it was not done. This test is highly specific for celiac disease and should most definatly be used to test for celiac. If your doctor and lab won't do it, then maybe find someone who will?

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
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    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
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