Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Question For Those Who Are Grain Free


GFreeMO

Recommended Posts

GFreeMO Proficient

I am going grain free because of symptoms not resolving. I am very allergic to corn and now I am suspecting rice. I am not sure if the rice is CC with corn from the enrichment or cleaning process or what but I do know that I am reacting.

Those of you who are grain free, why did you go grain free and did it help?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lori2 Contributor

When I went gluten free a year and a half ago, my diarrhea improved significantly. However, a year later, I still had problems

Link to comment
Share on other sites
TeknoLen Rookie

The gluten-free grains were not working for me. Some quinoa products gave me horrible stomach pains, which I subsequently learned was probably due to the saponin coating and it not being thoroughly rinsed off. The rice breads and pastas were ok but made me feel groggy after eating, which I think was due to high carb high glycemic content and the resulting insulin spike. Research and this board led me to the paleo diet and after reading Cordain's book I decided to give it a try. I am about 5 months in and feeling great, my numbers on my last comprehensive metabolic panel and lipids were all solidly in the normal range. Even lost my "spare tire". Very labor intensive though. It seems I am always in the kitchen either washing vegetables or chopping or cooking or washing dishes (or eating). Good luck.

Link to comment
Share on other sites
MitziG Enthusiast

I went grain free about 3 wks ago as an experiment to try and eliminate some overall inflammation and heal a leaky gut.

So far, my stomach/intestinal issues seem to have subsided.

I am losing weight.

Having less intense cravings for junk food.

And my adult acne has cleared up.

Feeling pretty good and may continue eating this way. I went gluten free about 15 months ago after being dx celiac. Casein free about 2 months ago when I noticed it affected my acne. Now eating "primal" so no grains, sugar or legumes.

Before I would have thought I would starve to death, but I am learning there is all kinds of healthy, non-inflammatory foods that I had ignored for years!

Link to comment
Share on other sites
woodnewt Rookie

I am going grain free because of symptoms not resolving. I am very allergic to corn and now I am suspecting rice. I am not sure if the rice is CC with corn from the enrichment or cleaning process or what but I do know that I am reacting.

Those of you who are grain free, why did you go grain free and did it help?

When I initially went gluten-free I was fine with other grains (rice, corn, millet) and pseudograins (quinoa, buckwheat, amaranth). However, after a CC issue a few years ago, even after eliminating all sources of gluten, I could not gain weight and still felt overall very fatigued and ill. Eliminating grains (and other problematic foods) has resulted in a complete turn-around in my health.

Link to comment
Share on other sites
benXX Rookie

I've been grain/dairy/legumes/sugar/alcohol free too. Felt really great and was never hungry. But sfter losing 14kg/30lbs, I had to stop, can't afford to lose any more weight.

Does anyone know a way to be on this diet and not lose weight? I really would love to go back on it.

Link to comment
Share on other sites
1desperateladysaved Proficient

After cutting all grain:

I sensed that my energy level increased. My mood is better, atleast when I am not having withdrawl symptoms. I feel strong. Some numbness I had might be going away. My gums are toughening. I believe I am losing edema. My body feels firm instead of sqishy. I am losing inches in my abdomen, but maybe not losing much weight. I recommend trying it. One can use almond and coconut flour. I found information about it on the Gluten Free Society website.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I've been grain/dairy/legumes/sugar/alcohol free too. Felt really great and was never hungry. But sfter losing 14kg/30lbs, I had to stop, can't afford to lose any more weight.

Does anyone know a way to be on this diet and not lose weight? I really would love to go back on it.

Even eating rice (my only grain), I have been losing weight like crazy. Now that I'm where I want to be, I have started eating more ice cream (!) to try to stop the weight loss. I know you can't do that because you are off sugar. I think the only way to stop losing for you would be to eat more meat. I have done that too, and between ice cream for breakfast (Now THERE'S something worth getting out of bed for!) and some homegrown beef I got from a local rancher, I have stayed at 133 pounds for a month now.

Link to comment
Share on other sites
cait Apprentice

After a year gluten free, I had lost the massive improvement I'd experienced when first gluten-free, and was going downhill. We're doing a slightly less strict version of the Whole 30 diet, so no sugar, grains, legumes, or alcohol (I didn't drink anyway, so that part is easy at least). I was miserable for the first week or so, but then my energy picked up, and I'm definitely experiencing improvement. I hate it because I just don't like meat that much, it's pretty limiting (but I'm also doing a rotation diet along with it, so that adds to the limiting), and I miss chocolate. But I feel better, so I'm sticking to it and hoping that at some point I'll be able to add other things back in.

Link to comment
Share on other sites
dilettantesteph Collaborator

It helped me. I can't really say when since it's been a continuous process with some grain here and there.

Link to comment
Share on other sites
T.H. Community Regular

I went grain free because eating anything containing grains was making me very sick, for various reasons. I had to avoid other foods, too, but I have tried to reintroduce grains a few times, very carefully sourced, and it still makes me sick again.

I'm growing some in my garden to see if small amounts of homegrown grains might do all right.

If I don't keep grains out of my diet, my body goes wacko. With corn I get constipation with rapid weight gain (10 pounds in a week kind of gain). I get severe insomnia, anger and anxiety problems and joint pain. With the other grains, I get diarrhea with weight loss, and then all the other issues I get with corn, but lesser in severity, IMO.

These symptoms with grain have, I think, always been there, but they've grown worse since going gluten free. So going grain free has had a very positive affect on my health.

Does anyone know a way to be on this diet and not lose weight? I really would love to go back on it.

I'm not sure, to be honest, but I know what worked for me:

First, I got tested for other allergies via testing and an elimination diet. Grains make me lose weight rapidly, but it turns out a couple of allergens - which I didn't even know I was allergic to because I don't get hives - make me lose weight like crazy, too. When I stop eating the allergen, I stopped losing weight. When I ate grains, they could keep this weight loss at bay, so the loss was more noticeable when I went off of them.

The second thing was to keep track of my calories and nutrients. For nutrients, there were those that grains are fortified with that I had to make sure I was getting somewhere else. And as for calories, eating enough calories to maintain my weight was easy to do with grains, but without grains, I had to pay attention more. In fact, I had to ignore most of the dietary advice floating around for proper health.

I needed more red meat and more oils and fats. Without eating enough meat, I would feel progressively worse - I couldn't get access to much meat at one point for just a week or two and I felt SO terrible. My weight drops when I don't get enough and I start to feel weak.

I'm dairy and egg free, too, so meat is my main source of calories, proteins, and fats. When I started introducing other carbs, like potatoes, that didn't make as much of a difference in my weight as making sure I got enough meat. It's been a real change, because I was never a big meat eater, ever. And now, I eat a ton of it.

Another aspect is that without grains to complete the partial proteins of my legumes, I had to either eat meat as my sole protein source, or to make sure I was getting a complete amino acid 'protein' from nuts and seeds combined with my legumes. It was difficult eating and affording the quantity of nuts and seeds required to make this work for beans very often. I still do it periodically, but meat is cheaper and easier, frankly.

I don't know that this is what would work for everyone, honestly. I don't have any cholesterol problems, nor any heart disease or high-cholesterol running in my family. That might make this harder to do, you know? But it made a difference for me. :-)

Link to comment
Share on other sites
Skylark Collaborator

I tried GAPS, which is grain-free. GAPS didn't work out very well because I'm sensitive to the sauerkraut (oops) but I learned that I do well eating low-starch. I find I'm more tired if I eat a lot of starchy food. I seem to do best with no more than 1/3c of cooked rice or 1/2 a small potato worth of starch about once a day. More than that leaves me sleepy and oddly enough makes my asthma worse; I suspect it just leads to some general inflammation.

Link to comment
Share on other sites
RuskitD Rookie

I went gluten-free and was doing well on other grains. Within one month, I began having symptoms of glutening, only they came from gluten free grains. I do not believe it was CC.

My 'dear diary' and elimination/reintroduction diet showed me that my body HATED corn and soy. Rice was iffy.

So I quit all grains, and all forms of them. Even sweet corn! Also checking any supplements for them (which really cuts out a lot of them!)

I have not lost an ounce by not having grains.

I have lost a few inches of inflammation in my stomach (swelling). Yet scales have not moved.

However, I don't have gastric disturbances any more either.

I was fairly low carb and very little processed foods before going gluten-free, so my body didn't have the 'shake up' of suddenly not having carbs and then dropping weight.

I won't even try to reincorporate grains into my diet. I don't miss them enough to bother.

Link to comment
Share on other sites
Skylark Collaborator

I've been grain/dairy/legumes/sugar/alcohol free too. Felt really great and was never hungry. But sfter losing 14kg/30lbs, I had to stop, can't afford to lose any more weight.

Does anyone know a way to be on this diet and not lose weight? I really would love to go back on it.

Have you tried eating more healthy fats? Coconut oil, eggs with the yolk, nuts, olive oil, avocados, oily fish, and seeds are all healthy can help keep weight on. I don't skim fat off soups/stews either, making them richer. Fruit can help add some more slowly metabolized carbs.

Link to comment
Share on other sites
benXX Rookie

Have you tried eating more healthy fats? Coconut oil, eggs with the yolk, nuts, olive oil, avocados, oily fish, and seeds are all healthy can help keep weight on. I don't skim fat off soups/stews either, making them richer. Fruit can help add some more slowly metabolized carbs.

I use coconut oil whenever possible; for stir frying use palm-oil and for salads virgen olive oil. I love Tilapia and Panga fish, great Thai recipes out there, but these are river fish. Love river prawn too. My DH indicates not to overdo on iodine-rich (=sea) products, although have never tested it. The smell of iodine turns me off, which I see as a body warning sign.

A lot of animal fat and huge amounts of meat are not an option now, my celiac symptoms indicate that my ileum (last part of small intestine) is not working well. One of them is that my bile acid is not recycled properly, damaging my colon (psyllium fiber helps greatly in protecting my colon though).

When I was on the Paleo diet before, I did eat more meat; fish and eggs than usual, but would get nausea and flatulent when overdoing it.

The weight loss was welcome, until I got to the point that continuing on Paleo would turn me into underweight and sadly had to decide to stop.

Besides the gluten and dairy intolerance, I don't have any other food intolerance or allergies. I take vitamin/mineral supplements and get B12 injections. Blood analysis showed that everything is OK there.

I guess I just need to wait until my villi are sufficiently restored; my food is better digested and I gain some weight, before I can go back on the Paleo diet again.

Have only been gluten free for 2,5 months since my dx.

Thanks for the help.

Link to comment
Share on other sites
alwaysafter8 Newbie

I am thinking about trying this out. I'm not sure if I'm being overly paranoid, but it seems like any grain I eat I react to (pregnant-esque bloat, gurgly stomach..). I believe I have a leaky gut & I'd rather go grain-free now than develop more food intolerances.. hard though, because I am such a carb/baked goods kinda girl. Well, I was, I guess.

Glad to hear we can use coconut & nut flours! Guess I'm going to have to get back into baking.

Link to comment
Share on other sites
  • 3 months later...
Coryad Rookie

I too am going to try grain free. I have been gluten free for about 6 months now. I was doing very well but tended to lean on rice and corn. I've started feeling horrible again... fatigued, major D, achy joints, eyesight going wonky... So after doing some reading I'm beginning to suspect I need to just stay away from all grains. I'm so tired of being tired :D

Cory

Link to comment
Share on other sites
1desperateladysaved Proficient

I have been grain free about 6 months. I did go through withdrawl symptoms all over again after going from classic gluten free to grain free. I am enjoying the food I eat. I use buckwheat and bean flours besides what you mention above. I hope it will help you. I am going with the idea that I should cut out as much suspicious things as possible at first. I hope to get some back later.

Link to comment
Share on other sites
  • 2 weeks later...
hanumandrea Newbie

I've been grain/dairy/legumes/sugar/alcohol free too. Felt really great and was never hungry. But sfter losing 14kg/30lbs, I had to stop, can't afford to lose any more weight.

Does anyone know a way to be on this diet and not lose weight? I really would love to go back on it.

Hi there, I lost weight too (20lbs in 4 months) on the paleo diet. Bananas were about the only thing that helped (large amounts of sesame oil, bacon, etc had no effect on my weight). After about 6 months I slowly added in some dairy (ice cream is suppsed to be more easily digestible, for some reason), potatoes, and finally gluten free grains. I think being off that stuff let my body heal so it could absorb it again. Cultured butter might be useful - not paleo but easy to digest.

Link to comment
Share on other sites
  • 2 weeks later...
RuskitD Rookie

If I may update? I posted in June. I have been gluten-free since early February 2012, grain free since March. I have not been accidently glutened onceI But by corn, yes, many times. I also gain about 10 lbs (of fluid and inflammation) within a few days of corn exposure (and it can be as teeny of an amount as in a vitamin pill).

I hadn't lost weight in June, but since then, I have lost 34 lbs.

Grain free, dairy free.

I eat lots of coconut oil and eggs. I sometimes don't feel hungry, and I know I am way below the calories I should eat in a day, so I will add extra coconut oil to make up my calories.

It has seemed to work!

I just wanted to feel better, even though I needed to lose weight, I'd given up trying. Yet it just melted away. I am normal range body fat for the first time since I was 26! (I'm 51)

I won't ever even try to add them back to my diet. I see no need ....

Link to comment
Share on other sites
srall Contributor

To the OP: I still need to read everyone's responses, but here are my reasons. I went paleo (grain free) because I knew I could still feel a little bit better. I've really learned to listen to my body as a result of being sick for so long, then healing myself with my diet. Personally I found that I do better with some white rice and white potatoes because very low carb was extremely hard on my body. But I know there are other ways to get carbs if that's an issue and you want to stay paleo. For me: arthritis=gone, I have more energy, NO stomach issues, clearer head. It took about 18 months to realize that I cannot handle any cereal grains. I just feel so much better now.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...