Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New To Gluten-Free
0

7 posts in this topic

Hi everybody. We are brand new to attempting to eat gluten-free and I have no idea where to start! Let me give you a little background to how we got here.

I have a son who is now 4 years old. We have struggled with constipation and other bowel issues since he was born. He has struggled a lot with potty training, but only with bowel movements. I decided to figure out what was wrong this last year as he would cry while sitting on the toilet that his 'poop was stuck' and beg me to 'get it out' for him. Basically, my son has one bowel movement a day, however, if he misses his daily BM, he becomes constipated.

We ended up at the ER this year because he was so constipated he was crawling around the house crying that his poop was stuck and it hurt, but he couldn't pass it. We talked to our local pharmacist and gave him an over the counter suppository and lots of Miralax. By the afternoon, there was still no change so we took him to the ER. Ironically, while waiting to see the ER doctor, he stopped complaining and crying. My son has a very 'oppositional' temperament and didn't want the doctor to touch him, so he was constantly wiggling around and wouldn't let her feel his belly. Basically, she sent us home and said he was fine. Once we got home, he again went back to crying and crawling around. Finally, he passed the largest stool that I had ever seen come out of a person. I joked with my husband about bringing the stool back to the ER doctor and leaving it for her with a note that said 'not constipated?'

While talking with a friend, she mentioned that milk and other dairy plugs her children up and I should try to take him off of dairy to see. I mentioned it to my doctor and he told me that he didn't believe my son has a milk allergy or intolerance because he would have diarrhea, not constipation. Well, I didn't follow his advice to do nothing, and I removed most dairy from my son's diet. (I say most because we would slip up quite a bit by giving food that might have some cheese or milk in it). But we did take out a lot of the dairy. We switched him to almond milk. Almost immediately the constipation was gone! My son started taking himself to the bathroom instead of hiding and his accidents greatly decreased (from almost daily to about once every other week).

We thought we had it figured out. Well, my son didn't care for the almond milk much (even when adding chocolate syrup to disguise the taste), and slowly steered more towards juices and water. After 3 months of decreasing his dairy, my son started throwing up in the morning. It was strange, he had no fever. His doctor said it was a GI bug that was going around and that it would last about 2 weeks. I didn't really buy it, but a friend at my son's daycare said her daughter was doing the same thing so I guessed he must be right. After 2 weeks of vomiting in the early mornings (usually around 4 am) yet no fever and feeling fine all day, my son got a fever and diarrhea. Again we went to the Dr. who said he must have picked up a new virus because his immune system was down. This was getting old. We were on to 3 weeks of strange GI issues! Interestingly, while the fever was there, the vomiting stopped for a couple of days.

Then the fever was gone and the vomitting was back--early morning, no other signs of sickness. Each day, my son seemed to be getting more and more pale and losing energy. The only change that I could think of in my son's diet was removing dairy. I thought that there must be some connection. We had been on this for 21 days. I went to the Dr. and told him I wanted an allergy test done immediately. We did a blood test and after a few more days, the nurse called and told me my son was not allergic to dairy. That was strange to me, because taking away dairy had 'fixed' the constipation issues. Well, I was ready to try anything, so I immediately gave him a glass of milk and pushed dairy on him for the rest of the day. He loved it. He missed having milk and ice cream, etc.

It was amazing, the vomiting stopped...but the constipation was back. We just had our appointment with our Dr. and he went over the full allergy test results with us. Apparently, my son is allergic to wheat. The Dr. wanted more blood to do a full Celiac panel. We are still waiting for the results from the panel, but in the meantime, I thought I might start focusing on a gluten-free diet.

I have never been one to read labels, and unfortunately, I am not much of a cook. I can cook, I just work all day and haven't been good about making nice homemade meals each night. :(

So, here we are. Brand new to the gluten-free idea, and no idea where to start. I do have 3 older children (ages 15, 13, and 10) who have informed me that they do not want to change their diets because of their brother. Any ideas of where to start? I have no clue what even contains gluten, or not! From reading different posts, I see that things I would have never dreamed of may have gluten in them.

Is there a Dummies Guide to Eating Gluten-Free?!

Sorry for the long post, but if you are still reading this, do you have any suggestions?

0

Share this post


Link to post
Share on other sites


Ads by Google:

So, here we are. Brand new to the gluten-free idea, and no idea where to start. I do have 3 older children (ages 15, 13, and 10) who have informed me that they do not want to change their diets because of their brother. Any ideas of where to start? I have no clue what even contains gluten, or not! From reading different posts, I see that things I would have never dreamed of may have gluten in them.

Is there a Dummies Guide to Eating Gluten-Free?!

Sorry for the long post, but if you are still reading this, do you have any suggestions?

First welcome to the forum! This is a great place to learn form other parents' experiences. Here is some threads to check to get you started:

Some threads with good info:

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Celiac Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

I know it seems overwhelming right now, but that will pass. In time it will be come just part of your life.

We only have one child, so it is a bit easier on us, others will chime in on how to handle the multi-kid part of this. :)

1

Share this post


Link to post
Share on other sites

Is there a Dummies Guide to Eating Gluten-Free?!

Welcome to the forum L!

You're in luck...there is an excellent book entitled Living Gluten-Free for Dummies written by Danna Korn.

Jules Shepard also has a good one: The First Year: Celiac Disease and Living Gluten-Free

Sorry, I can't be of any help either on dealing with your other children. Mine are grown with children of their own. But there are a lot of parents on this site, who'll probably be able to give you some good ideas as to how they've handled it.

1

Share this post


Link to post
Share on other sites

You're in luck...there is an excellent book entitled Living Gluten-Free for Dummies written by Danna Korn.

I just found this one and have been reading it all morning! Very informative and helps me realize that others in our family should also be tested! My mother has ulcerative colitis, my oldest two daughters both have ADHD and ADD. Also my oldest has epilepsy which spiked when she was five and has kind of fizzled out. She is also on the autistic spectrum. I didn't realize all of these things can be caused, or at least affected by gluten!

0

Share this post


Link to post
Share on other sites

I just found this one and have been reading it all morning! Very informative and helps me realize that others in our family should also be tested! My mother has ulcerative colitis, my oldest two daughters both have ADHD and ADD. Also my oldest has epilepsy which spiked when she was five and has kind of fizzled out. She is also on the autistic spectrum. I didn't realize all of these things can be caused, or at least affected by gluten!

Glad you found it...it's an excellent book.

Yes, other family members should also be tested. It's amazing how many symptoms can be attributed to gluten. Check out this list. First time I saw it, it blew my mind.

0

Share this post


Link to post
Share on other sites




If you are still waiting for the celiac blood results, DO NOT START THE DIET yet. If the results are positive, the doctor will probably want to perform an endoscopy to determine if there is any damage (he/she may want to do this even if the tests are negative). Changing your diet before the endoscopy can compromise the results. Take this "waiting" time to learn as much as possible about the diet, try some new foods (find acceptable "replacement" foods) etc.

After testing is done, then start the diet. Hopefully you won't have to wait long since you have already been told he has a wheat allergy.

Yes, everyone in the family should also be tested.

Cara

0

Share this post


Link to post
Share on other sites

I know it seems so overwhelming at first! This board has been incredibly helpful to me. I have a 4 year old too and I know how picky they can be! Couple of things that he likes: Udi's bread (sometimes I do a "grilled cheese" using Better than Cream Cheese in the middle - it's dairy free), chocolate chip cookies with the recipe from Elana's Pantry website, the banana bread from Spunky Coconut cookbook, Envirokids Cereals, Van's Waffles, Applegate Farms hotdogs, and Ian's alphabet fries. I believe Applegate Farms also has some gluten free chicken nuggets. We also do a recipe with Namaste muffin mix where I sneak in some pureed veggies and mashed beans for protein. There are probably a lot of things that you make for him already that are either naturally gluten free or can be easily made gluten free by some simple substitutions (like using gluten free bread crumbs for regular).

If you have some time, and it sounds like you do if you decide to wait for the test results, then you can play with some recipes and products. Then if you have to make the switch you won't be starting from scratch. Because my son is on the gluten free diet because of autism and not celiac, we had the luxury of taking our time and experimenting.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,342
    • Total Posts
      917,393
  • Topics

  • Posts

    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
    • Could this possibly be related to celiac or a gluten intolerance?
      If you did actually have celiac disease, it can take weeks, months and years to recover from some of your symptoms, especially neurological ones.   Best to get screened for celiac disease.  It's a simple blood test.  Any medical doctor can do it.  But a GI doctor is needed for a diagnosis, since an endoscopy is part of the diagnostic procedure.  BUT you have to be consuming gluten to get accurate results! http://www.cureceliacdisease.org/screening/ http://gi.org/guideline/diagnosis-and-management-of-celiac-disease/ Keep on researching.  I wish you well!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined