Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Does Going Gluten-Free Make You Hungrier?
0

10 posts in this topic

After finding out that my 4 year-old son is allergic to wheat and his history of GI issues, I begun trying to feeding him gluten-free, however, now he is hungry ALL the time!

He is very particular in what he eats, he likes his routine of food: an Eggo waffle for breakfast, a PB&J sandwich for lunch, and then for dinner he is ok with whatever. I found Van's wheat and gluten-free waffles to substitute for his Eggos, Udi's bread to substitute for his bread and have been feeding him gluten-free dinner for the last few days, but he is constantly telling me he is hungry.

In between meals he has been eating snacks like apples and popcorn, but right after eating snacks or a meal, he tells me he is hungry again! It is so strange because he usually eats like a bird.

We have been trying to feed him gluten-free, however my husband has forgotten and slipped up twice. On the second day, I came home to find him feeding our son spaghettios and today he bought him a hamburger happy meal while they were out. (He says he forgot and that our son was hungry).

Even with the slip-ups though, we have definitely cut back on the gluten/wheat and the boy is always asking for food. Is this a good thing? Does it taper off?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm confused. How was your son diagnosed with a wheat allergy? Is it a true allergy, or is it Celiac's, which is an autoimmune disease, or wheat intolerance? If your son has Celiac's, your husband needs to understand that 100% adherence to a gluten free diet is necessary, and that he can't "forget" because even if you can't see the damage, that doesn't mean it's not happening. If it is an allergy, I would think that such lapses would provoke an anaphylatic response.

But in regards to why someone with a wheat intolerance or Celiac's might be hungry all the time, it could simply be that your son's tummy is feeling better off wheat and therefore he has more of an appetite.

0

Share this post


Link to post
Share on other sites

I'm confused. How was your son diagnosed with a wheat allergy? Is it a true allergy, or is it Celiac's, which is an autoimmune disease, or wheat intolerance? If your son has Celiac's, your husband needs to understand that 100% adherence to a gluten free diet is necessary, and that he can't "forget" because even if you can't see the damage, that doesn't mean it's not happening. If it is an allergy, I would think that such lapses would provoke an anaphylatic response.

But in regards to why someone with a wheat intolerance or Celiac's might be hungry all the time, it could simply be that your son's tummy is feeling better off wheat and therefore he has more of an appetite.

My son was diagnosed as having an allergy to wheat after a blood test. We are currently awaiting the results from a Celiac screening (also blood drawn). I completely agree about the 'forgetting'. I think that since this is so new, my husband hasn't had a chance to fully digest the ramifications, yet.

Also, the Dr. hasn't technically told us to go off of gluten, yet. As I have been reading posts here I am a little confused on what to do. Knowing that my son does have an allergy, I want him off right away, but if the bloodwork comes back positive for Celiac and then we need to do a biopsy, I might be sabotaging the biopsy by starting to take away the gluten right now. Luckily, my son's allergy does not provoke an anaphylactic response. We just found out about it after I demanded an allergy test since he has had so many GI issues (constipation, vomiting daily for about a month with no fever and feeling fine all day) I thought he might have a milk intolerance since I tried taking that away and the constipation went away. Apparently, he does not have a milk allergy, but milk causes the constipation. When we get back the Celiac screening results we will figure out our next steps.

The main concern for my post, however, is to find out if this increased appetite is a normal side effect of moving to gluten-free.

0

Share this post


Link to post
Share on other sites

Yes. I was ravenous for a while after going gluten free. Was downright annoying. It did taper off after a little while. I think it's just the body adjusting to the fact that food no longer causes pain. Sounds like you're on the right track with removing gluten.

0

Share this post


Link to post
Share on other sites

It's sounding more like he is celiac with the constant hunger thing. Common reaction when celiacs go gluten-free. Just put hungry, or ravenous, or starving in the search box above & you will come up with more posts than you can count about how when one goes gluten-free they can't stop eating & are hungry all the time. I would literally vacuum with one hand while eating an apple with the other. Give him apples, grapes, pears, any fruit to snack on, raw carrots, celery sticks filled with peanut butter, nuts, raisins & make sure you carry some snacks in your purse & in the glove compartment of the car. Larabars are great! And they come in several flavors. He probably needs more protein in the am too than what he used to get. The body craves protein so try to up that especially in the morning. This will settle down but it's going to take a while. I remember thinking -- OMG! Am I going to eat 24 hrs. a day for life?blink.gif

If he is celiac then what's happening is that his body is making up for the nutrition it had not been getting & now it WANTS it. It's also part of the gluten withdrawal process & the body is resetting itself. Let him eat his fool head off; it's okay! In fact it's a good thing.

0

Share this post


Link to post
Share on other sites




It's sounding more like he is celiac with the constant hunger thing. Common reaction when celiacs go gluten-free. Just put hungry, or ravenous, or starving in the search box above & you will come up with more posts than you can count about how when one goes gluten-free they can't stop eating & are hungry all the time. I would literally vacuum with one hand while eating an apple with the other. Give him apples, grapes, pears, any fruit to snack on, raw carrots, celery sticks filled with peanut butter, nuts, raisins & make sure you carry some snacks in your purse & in the glove compartment of the car. Larabars are great! And they come in several flavors. He probably needs more protein in the am too than what he used to get. The body craves protein so try to up that especially in the morning. This will settle down but it's going to take a while. I remember thinking -- OMG! Am I going to eat 24 hrs. a day for life?blink.gif

If he is celiac then what's happening is that his body is making up for the nutrition it had not been getting & now it WANTS it. It's also part of the gluten withdrawal process & the body is resetting itself. Let him eat his fool head off; it's okay! In fact it's a good thing.

Thank you so much for all of the info! This forum is so helpful and supportive!

So I have another question. I have advice from others not to go gluten-free, yet (until all of his celiac testing is done), but that is so hard knowing that I am poisoning my son with wheat! Do you think it is ok to feed him gluten-free all day and just have one thing with wheat in it each day until we finish all of the testing? Or do I need to keep him on his pre gluten-free diet? Also, I noticed that yesterday after the happy meal incident he was all itchy and had a mild rash on his face and arm. Does taking wheat away and then adding it back make his reaction worse? His doctor does have him on chewable Singular tablets for allergies.

0

Share this post


Link to post
Share on other sites

Thank you so much for all of the info! This forum is so helpful and supportive!

So I have another question. I have advice from others not to go gluten-free, yet (until all of his celiac testing is done), but that is so hard knowing that I am poisoning my son with wheat! Do you think it is ok to feed him gluten-free all day and just have one thing with wheat in it each day until we finish all of the testing? Or do I need to keep him on his pre gluten-free diet? Also, I noticed that yesterday after the happy meal incident he was all itchy and had a mild rash on his face and arm. Does taking wheat away and then adding it back make his reaction worse? His doctor does have him on chewable Concerta tablets for allergies.

That's a mistake that SO many make --- going gluten-free before all the testing is done. NO, gluten-free during the day & then just one thing a day of gluten is NOT enough. And now that he is "gluten light" you will have to gluten him up for an endoscopy if the doc wants to do one. AND that will mean the equivalent of 3 or 4 slices of bread per day for at least 2 months depending on how long he has been gluten light.

And yup; taking gluten away & then adding it back in makes the reaction (almost always) stronger. And now he's getting rash from gluten. Not good. That's either dermatitis herpetiformis OR the predecessor. At any rate it shows where he's headed & certainly means he's either full blown celiac or just on the verge & will soon be. The problem with children is that testing --- blood work or endoscopy --- is not as reliable even as for adults. Children often turn up neg. on blood & then as far as the endo goes; they usually don't have ENOUGH damage yet (b/c they are so young) to show.

AND if he gets put on steroids THAT will invalidate the testing (blood or endo) & you will turn up with negatives.

I'm sorry to be the bearer of bad tidings but that's how it is. Now, if we were talking about an adult then I would say screw the official dx & go gluten free b/c you KNOW that's the problem. But with a child it's different. You most likely will NEED the official dx for school so he can be safe there & they will take his situation seriously --- also later for college.

Rock & a hard spot.sad.gif

0

Share this post


Link to post
Share on other sites

That's a mistake that SO many make --- going gluten-free before all the testing is done. NO, gluten-free during the day & then just one thing a day of gluten is NOT enough. And now that he is "gluten light" you will have to gluten him up for an endoscopy if the doc wants to do one. AND that will mean the equivalent of 3 or 4 slices of bread per day for at least 2 months depending on how long he has been gluten light.

And yup; taking gluten away & then adding it back in makes the reaction (almost always) stronger. And now he's getting rash from gluten. Not good. That's either dermatitis herpetiformis OR the predecessor. At any rate it shows where he's headed & certainly means he's either full blown celiac or just on the verge & will soon be. The problem with children is that testing --- blood work or endoscopy --- is not as reliable even as for adults. Children often turn up neg. on blood & then as far as the endo goes; they usually don't have ENOUGH damage yet (b/c they are so young) to show.

AND if he gets put on steroids THAT will invalidate the testing (blood or endo) & you will turn up with negatives.

I'm sorry to be the bearer of bad tidings but that's how it is. Now, if we were talking about an adult then I would say screw the official dx & go gluten free b/c you KNOW that's the problem. But with a child it's different. You most likely will NEED the official dx for school so he can be safe there & they will take his situation seriously --- also later for college.

Rock & a hard spot.sad.gif

Wow, thanks for the info! So we only started the gluten-free (with slip ups) 4 days ago, so I guess we will go back to normal. I am pretty sure that there has to be damage to his intestines somewhere. We have battled constipation and diarrhea since birth (mostly extreme constipation). We took away dairy a few months ago and the constipation got better. However, about two months after removing dairy, he began vomiting EVERY morning, but then was fine all day. Then he started getting paler and less active. This went on for almost a month before I demanded an allergy test (his doctor kept saying he was just catching different viruses). When we found out that he was not allergic to dairy, we put him back on and instantly the vomiting stopped, but the constipation is back.

I am concerned on how long they must be off steroids to keep from skewing the results. He was put on Prednisone earlier this year because of respiratory problems from a severe 'cold'. (Last year we were ambulanced up to a children's hospital because he got a 'croup-like' cold and quit breathing, this time the doctor didn't want to take any chances). I want to say it was February, but honestly I can't remember.

I also realized that I put the wrong medication, he is currently taking Singular for allergies, not Concerta. I don't know where that came from! LOL.

0

Share this post


Link to post
Share on other sites

He could be unable to digest dairy ( lactose intolerant). That isn't an allergy to milk. It is very common with Celiac and will sometimes resolve after a few months of healing.

0

Share this post


Link to post
Share on other sites

I'm not sure how long he needs to be off the steroids. I would think if it was Feb. that it would be okay. The doc should know the date or you could check with your pharmacy & they will be able to tell you.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,365
    • Total Posts
      920,552
  • Topics

  • Posts

    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
    • Hi Laurabella, Yes, you could have celiac disease!  It is important to keep eating gluten until all testing is completed, including an endoscopy with biopsy samples if the doctor recommends it.  The doctors usually do want the endoscopy.  The biopsy samples of the small intestine lining (4 to 6 samples) are checked for microscopic damage that indicates celiac disease.  Gall bladder problems can happen with celiac disease.  Your pain could also be from intestinal damage in any part of the small intestine. Some things you could try while you are waiting for your tests to be completed are stopping all dairy, and taking peppermint tea for gas in the stomach.  Celiac disease damage makes it hard to digest dairy sugar (lactose) and that can cause bloating and pain.  Constipation and diahrea are also possible fun symptoms. Welcome to the forum!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,439
    • Most Online
      1,763

    Newest Member
    DKH0614
    Joined