Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Outrageous Things Doctors Have Told Me
0

9 posts in this topic

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

0

Share this post


Link to post
Share on other sites


Ads by Google:

*My dentist noticed the enamel off of my teeth by 1990.

*A dentist, in alarm, said you have allergies big time. 199-.

*My Obstetritian told me she thought I had 5% of my bone mass left at age about 25.

All of the above were given without advice or information about what to do. It was totally mysterious and I shrugged it off.

My chiropractor told me that my metabolism was more out of balance than people that had had chemotherapy. 1993.

Wow! I think doctors are either too busy or do not want to admit they are less than Gods and dont know everything.

I also have had enamel deficiency since I was middle school. I am now almost twenty-two. I had hyperlordosis that was completely ignored for years and no one even mentioned as well as a degenerated disc at the base of my spine that no one mentioned despite a gazillion xrays. I found out recently on out of pocket trip to a chiropractor.

0

Share this post


Link to post
Share on other sites

I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

1

Share this post


Link to post
Share on other sites

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

0

Share this post


Link to post
Share on other sites

Doctor told me that 9 mos of what seemed like food sickness was IBS, that I'd have it for life, and to go join a support group.

After birth of my son, I went from a size 10 to a size -2 in about 6 months...then in another 6 month back up to a size 12!

Another doctor told me that I just had chronic reflux, put me on higher and higher doses of meds, finally put me under to take a look and didn't see a thing related to celiac.

At that time, I had chronic urticaria all over my body for 3 yrs....constant sinus infections, caught every single cold etc that came my way via my son (young), depression (not diagnosed PPD, just "anxiety")

Went to an allergist through all this, came up allergic to soooo much, and he said "you seem to be allergic to something called gluten", "what's that?", "oh, it's just this sticky part in a wheat product, nothing to be concerned about" (and he completely brushed it off, so it didn't sound so important to me)..."oh, and you're also completely allergic to milk. and eggs", "so what are the hives from?", "it would appear that you're allergic to cats, it's definitely from that", "FOR THREE YEARS??", "yes"....I got up to leave, and he says this as I'm half way out the door, "Oh! You should also know that your Vit D levels are almost non-existent! Bye!"

All this info goes back to my INSANELY POPULAR NYC Doctor, who people wait for months to see, who is written about extensively in New York Mag.....and he does't come up with a THING. Nothing.

Yes, it's incredibly frustrating that a mere few months later, and a naturopathic CELIAC doc does the right blood test and what do you know...raging Celiac and thyroid issues.

That is insane! It is ironic that medical doctor is the highest regarded profession and yet many of them dont pay any attention to what they are doing with people. It is like ordering soup and getting a bowl full of broth, a bowl of carrots, a bowl of uncooked chicken, a bowl of spices... It just makes no sense to me. We got each other though on this forum and we have to be our own advocates. I hope you and the OP get well.

0

Share this post


Link to post
Share on other sites




I also had enamel problems since forever. A local dentist spoke to our celiac support group recently. They are trying to educate dentists so that they will point their patients with certain celiac indicators such as enamel problems towards testing for celiac disease.

That is very good. I wish my dentist would have thought, "This is odd; this girl is only ten and has enamel deficiency."He just mentioned it to me after my complaining of my teeth staying stained even though i dont drink tea or coffee.

0

Share this post


Link to post
Share on other sites

I have a severe wheat allergy.

I had one allergy doctor refuse to do food allergy testing on me, and told me that I have Vasomoto allergies (allergies without a cause), and I would be sick for the rest of my life, no medications would help, and he could do nothing for me, and there was nothing I could do about it. :blink:

Another doctor told me that my anaphylactic reactions were menopausal symptoms....LMAO. Wheat induced menopause....OMGosh!!! I'm not even in menopause. Someone quick, write a case study about me, I'm a medical anomaly!!! :P

Finally, another doctor tested me for food allergies and said, you have a severe wheat allergy and must be gluten free for life and carry an epi-pen. :)

Thank you for this thread, I needed some humor today....

0

Share this post


Link to post
Share on other sites
Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

0

Share this post


Link to post
Share on other sites

Thank you for this thread, I needed some humor today....

Your welcome, It is best to take things with some humor. It is better than crying about it. :lol:

You are right, I like humor better. I've cried plenty!!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,116
    • Total Posts
      919,451
  • Topics

  • Posts

    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,154
    • Most Online
      1,763

    Newest Member
    calla84
    Joined