Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Infertility & Celiac Disease (After Diagnosis)
0

11 posts in this topic

I am new to this forum and I have been searching the internet for some answers; I was hoping maybe somebody on here can help me. I know there is a link between undiagnosed Celiac Disease and infertility (and that most issues are resolved after assuming a gluten-free diet) ....but I am wondering if anyone here continued to have issues related to infertility after diagnosis? I was diagnosed with Celiac 10 years ago and have been on a strict gluten-free diet ever since. I only started TTC 2.5 years ago and have only been successful once - which led to a miscarriage at 8 weeks. That was 1.5 years ago. I watch my cycles carefully and have tried two rounds of Clomid. Still nothing. So, again - I was just wondering if anyone else has had problems TTC after a Celiac diagnosis? I appreciate any input. Thank you!

0

Share this post


Link to post
Share on other sites


Ads by Google:

I wish I could say I had followed your path. I had no idea that Celiac and Infertility were related at the time I was TTC. I'm writing you to let you know a nice outcome from infertility...

We have fraternal girl twins concieved through IVF/ICSI and PGD under Dr. Schoolcraft's guidance at the Colorado Center for Reproductive Medicine. Dr. Schoolcraft was amazing.

Our twins were diagnosed with Celiac in March, at 5.5 years old. Only through my girls' experiences did I start to wonder if I have Celiac (and if that was the reason I had fertility issues). My kiddos may be helping me get healthier!

All that said, I know our pediatric GI, Dr. Michelle Pietzak (Children's Hospital LA) is aware and empathetic about the link between Celiac and Infertility. She is also a researcher and teaches at USC. I think she is considering doing research on the topic. Her number at CHLA is (323) 361-2181.

Sending you warm wishes on your path to motherhood!

0

Share this post


Link to post
Share on other sites

Thank you for your post - I appreciate all the information that you provided. It sounds like it is extremely common that many women experience infertility issues prior to the Celiac diagnosis; however, I have yet to find any information regarding whether or not any Celiacs continue to have issues post diagnosis and post gluten-free diet transition. Apparently, most are 'cured' of the infertility by starting the gluten-free diet... but, there isn't much research about any with lingering issues. As luck would have it, I never tried to get pregnant before - so I have no idea if I have always had these issues. Anyway, I am so happy to hear that you have been blessed with twins and your infertility battles were successful!!!

0

Share this post


Link to post
Share on other sites

Thank you for your post - I appreciate all the information that you provided. It sounds like it is extremely common that many women experience infertility issues prior to the Celiac diagnosis; however, I have yet to find any information regarding whether or not any Celiacs continue to have issues post diagnosis and post gluten-free diet transition. Apparently, most are 'cured' of the infertility by starting the gluten-free diet... but, there isn't much research about any with lingering issues. As luck would have it, I never tried to get pregnant before - so I have no idea if I have always had these issues. Anyway, I am so happy to hear that you have been blessed with twins and your infertility battles were successful!!!

I started having fertility issues 12 years ago. Only recently did I discover that I am gluten intolerant/celiac (self diagnosed by elimination) and read that fertility can be a problem. Although we did have 4 round of IUI and with the last round I added acupuncture for 5 months and became pregnant. 3 years passed again without being able to get pregnant and I once more started having acupuncture treatments and after about 4 months I became pregnant. Good luck to you!
0

Share this post


Link to post
Share on other sites

Hi, i am new here. I was diagnosed with PCOS in 2001 when i first got married. We immediately started infertility treatments. I was not diagnosed with gluten intolerance until 2009. So my gluten exsposure probably cancelled out the treatments. Ever since 2009, we have not done anything to prevent pregnancy. The PCOS continues for its own obstinate reasons. I had hoped that my body would repair itself after i went Gluten-Free, but apperently not. I am still dealling with this plus depression and fibromyalgia. Btw, what is TTC? I understand the grief of long term infertility. I wish you all the best.

0

Share this post


Link to post
Share on other sites




Hi, i am new here. I was diagnosed with PCOS in 2001 when i first got married. We immediately started infertility treatments. I was not diagnosed with gluten intolerance until 2009. So my gluten exsposure probably cancelled out the treatments. Ever since 2009, we have not done anything to prevent pregnancy. The PCOS continues for its own obstinate reasons. I had hoped that my body would repair itself after i went Gluten-Free, but apperently not. I am still dealling with this plus depression and fibromyalgia. Btw, what is TTC? I understand the grief of long term infertility. I wish you all the best.

Trying To Conceive.

I am wondering if further improving diets would help? such as getting rid of processed food. reducing carbs even further, etc.

and don't forget the second person involved, perhaps some of the issue is his.

0

Share this post


Link to post
Share on other sites

I had recurrent miscarriage and didn't know I had celiac.

I have 2 kids now.

The best tip I had was 'afterwards' for the woman to stay in bed lying back with a couple of pillows to tip hips towards tummy. The man has to go and fix coffee, tea, snacks etc.

Other things were decent diet and relaxation

/meditation.

Once pregnant I avoided cold drinks for a while and kept my tummy warm by wrapping with a scarf.

Who knows if any of this will work for you.

I hope you find a way, and some support

0

Share this post


Link to post
Share on other sites

I was diagnosed PCOS in 2001 as well, like a previous poster. At that point I had no clue that I also had celiac. I tried to conceive for four years before finally having my twins. I was having many, many health problems at the time, ballooning weight, high cholesterol, high blood pressure... and all of this while I was a vegetarian.

After a long consult with my Ob/gyn about my health, I went on Metformin to help my PCOS symptoms, and drastically changed my life. I began eating meat again, and went very low carb/low sugar. Those changes, along with daily excercise, allowed me to lose 50lbs over about 6 months. I became pregnant with my twins with help of Clomid. I remained on the Metformin througout my pregnancy.

I eventually went off the Metformin, and happened to get pregnant on my own twice, both of which resulted in miscarriages. I began to have health struggles again and gained weight, and gave up on having any more children. I went back on the Metformin, and was suprised with a pregnancy. I remained on the Met for the entire pregnancy, and had a healthy son.

So, for me, the Met has been a miracle drug. I am still on it, but am now struggling with celiac symptoms, as I was just diagnosed a few months ago.

0

Share this post


Link to post
Share on other sites

Oops, I forgot to say, when I went low carb/low sugar, I felt better than I ever had in my entire life. I unknowingly was low gluten as well, which probably helped with my health, weight loss and successful pregnancy. At the time, I didn't have a clue that I had celiac.

0

Share this post


Link to post
Share on other sites

Sorry, one more post, lol, I'm a bit of a fertility knowlegde freak, after trying for four years. I learned so much about TTC by reading the book "Taking Charge of Your Fertility by Toni Weschler. (I don't have any vested interest in the book, just sharing.) I did the basal body temperature charting, monitoring cervical changes, all that fun stuff for my first pregnancy, as well as taking Robitussum to thin mucus. Charting helps to pinpoint the perfect time for conception. If you haven't read it, I highly recommend it, for anyone having issues with conceiving. I was not ovulating or menstruating on my own at all, due to the PCOS and undiagnosed celiac. Charting helped me figure it out, and then with the Clomid allowed me to ovulate, we were able to finally conceive.

0

Share this post


Link to post
Share on other sites

I liked Zita West on fertility. She is based in London, so not sure how widely her books are available. She is an expert in combining complimentary and conventional medicine, including nutrition and supplements. I think she advises some of the top fertility clinics here.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,666
    • Total Posts
      921,666
  • Topics

  • Posts

    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)
       
    • Excellent point, GFinDC!!! I just assumed that Steph had the endoscopy and not just the antibodies tests.    
    • She (your PCP)  can order a celiac blood panel.  It might not be a complete panel, but it's a start.  Any medical doctor can order one.  A GI is needed for the endoscopy (ulcers, Celiac disease, h.pylori, etc.), HIDA scan (gallbladder)  or colonoscopy (IBS).   Since you just saw her, email/call/write a letter and ask her to order (lab) the celiac panel.  You could go to the lab before or after work.  Pretty easy!  
    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,663
    • Most Online
      3,093

    Newest Member
    Steph0903
    Joined