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Gluten Free In Washington State?!
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Hey everyone, I'm new here and live in the Seattle area. Wondering if there is anyone here from Washington. Since I've been sick and diagnosed and going through all of this, most of my friends have pretty much dropped off the face of the earth and don't really care about what's going on with me since I don't feel well enough to go out and always party anymore. So I'm reaching out to people who I feel may understand what I'm going through a little better. :)

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Hi Kristen, I'm in the Seattle area. Been a bit over a week for me being gluten free. Luckily my family and friends have been very supportive. I've only been here a day but all I see here so far is support, advice, knowledge and lots of people going what we're going through. So glad I found this forum.

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Welcome people of Seattle! I'm from Kansas City so no where near you.

Rick - is that your dog?Looks a bit like the African Wild Dog at our zoo! Or a German Shep and a Great Dane?

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Hi Karen, yeppers, that's one of my kids. Her and her brother are German Shepherd/Akita mutts. She's about 75 lbs and her brother is a bull in a china shop, about 125lbs. But she runs the show when I'm not around, talk about a bossy B! Both smart as whips and keep me on my toes. I'm a dog nut, wouldn't have it any other way! :D

Love your avatar and comment below it! Made me LOL.

Speaking of Dane's, is yours in the avatar pic a Dane? Always wanted a Great Dane, but I really don't think I can deal with the heartache of the short lifespan. I might bite the bullet though, I have heard they are fantastic pets and companions and worth the shorter lifespan.

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Hi Karen, yeppers, that's one of my kids. Her and her brother are German Shepherd/Akita mutts. She's about 75 lbs and her brother is a bull in a china shop, about 125lbs. But she runs the show when I'm not around, talk about a bossy B! Both smart as whips and keep me on my toes. I'm a dog nut, wouldn't have it any other way! :D

Love your avatar and comment below it! Made me LOL.

Speaking of Dane's, is yours in the avatar pic a Dane? Always wanted a Great Dane, but I really don't think I can deal with the heartache of the short lifespan. I might bite the bullet though, I have heard they are fantastic pets and companions and worth the shorter lifespan.

It's an odd pic of a lab. I sent that pic to my son at college and he said, " you can just smell the salmon breath"

I have known a few Danes ( the dogs) and they were nice but didn't seem too bright.

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Hey everyone, I'm new here and live in the Seattle area. Wondering if there is anyone here from Washington. Since I've been sick and diagnosed and going through all of this, most of my friends have pretty much dropped off the face of the earth and don't really care about what's going on with me since I don't feel well enough to go out and always party anymore. So I'm reaching out to people who I feel may understand what I'm going through a little better. :)

Hi Kristen, I'm in the Seattle area. Been a bit over a week for me being gluten free. Luckily my family and friends have been very supportive. I've only been here a day but all I see here so far is support, advice, knowledge and lots of people going what we're going through. So glad I found this forum.

Hi, Seattle-ites!

I was in Spokane for a long time, now just south of you across the Oregon border. DH travels to Seattle area a lot. Beautiful up there.

Lots of wonderful people here, glad you found us!

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I'm on the other side of the state, in Spokane Valley. I recently discovered a Celiac / gluten intolerance group nearby on Meetup, but I haven't attended any of the monthly meetings yet, I have gotten a few emails. I hope to attend one sometime soon! If you're on meetup, you might want to do a search on there. And, welcome to the forum!

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Hey Seattleites! The mountains are out today! Very nice here in Seattle. Just in time for rain this weekend though.

One thing I do like so far about our lack of summer, I don't feel guilty crashed on the couch all weekend resting up for another week of work when it's raining and crappy out. As long as I get the dog poop cleaned up the fuzzybutts and I are happy.

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I'm new to the Tacoma area, not really many friends made but would love to connect with some people to bounce stories, ideas, feelings etc with! I'm in my early 20's, been gluten free for about 2 months and getting a really good grip on food alternatives and my vegi's! I work at a grocery store so I research a lot, study, have been eating and studying natural for a couple years. Let's get a group together for coffee!

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Hey Seattleites! The mountains are out today! Very nice here in Seattle. Just in time for rain this weekend though.

One thing I do like so far about our lack of summer, I don't feel guilty crashed on the couch all weekend resting up for another week of work when it's raining and crappy out. As long as I get the dog poop cleaned up the fuzzybutts and I are happy.

Hey! I think it reached 72 here in Bothell! And we saw the sun.

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I'm new to the Tacoma area, not really many friends made but would love to connect with some people to bounce stories, ideas, feelings etc with! I'm in my early 20's, been gluten free for about 2 months and getting a really good grip on food alternatives and my vegi's! I work at a grocery store so I research a lot, study, have been eating and studying natural for a couple years. Let's get a group together for coffee!

Hey, I'm around your age. I was diagnosed/gluten free in April. It would be great to have a gluten free friend around :) I'm in Renton.

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*bump bump* Just for anyone who happens to be newer and around the Seattle area. You are not alone!

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Hi there fellow Washingtonians :)

I'm Dani and I live in Roy right now, but soon moving to an even smaller town down by Centralia. I hav been dealing with lots of health probs for the past 18 years, was diagnosed with Fibromyalgia and later the docs told me I have IBS, due to my stomach problems. They got worse and worse over the years, until I finally had daily bouts with masive cramps which would last for hours. A friend suggested looking into Gluten sensitivity and I was shocked! As soon as I started cutting out wheat from my diet, I started feeling better. I have been Gluten free for several weeks now, other than when I accidentally had some steaksauce at a restaurant a while back. That one really made me check EVERYTHING in the food I eat! Now it seems to be good. Had no cramps for 3 weeks -yay-.

 

Wort part is going out to eat. I start off telling the waitress about my allergy. Can't believe there are so many unknowing people in the food business!!!! I get the weirdest responses. However yesterday we went to a little Thai restaurant in Eatonville and the owner cut me off in midsentence to tell me, she could prepare whatever I wanted GLUTEN FREE!!!!! I was so so happy!!!! The food was delicious and not expensive either. And I didn't have to hold my breath as usual, waiting to see if something I ate would affect me.

 

Ok, so there's a little about me......oh yeah, I'm 54......I work as a live in caregiver on weekends and don't get to come here that oftne, but check in whenever I get a chance. Hope to see more folks from the area here soon :)

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I know this is an old post, but would anyone here in WA be interested in being part of a documentary about Celiac Disease that I am working on? I would be interviewing you about your diagnosis and your life with Celiac Disease. Send me a message if you're interested. Thanks!

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    • Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
    • SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then I did notice a huge improvement in both my rash and itch. I no longer have any active rashes and my itching isn't completely gone but it's very minimal. I have been getting weekly blood tests done and will soon be moving to monthly.  My DH skin biopsy was done before the gluten free diet and Dapsone. My results for the skin biopsy came back as inconclusive, but even with those results, my doctor was convinced I had DH. I specifically asked her about the fact that she took the biopsy directly from the lesion rather than next to it and if that affects the result. Her explanation was that if it's a fresh enough lesion that isn't scratched, there should be IgA antibodies present. But she said that an inconclusive result isn't surprising because the IgA antibodies come and go from the skin so quickly that it can be very difficult to get a positive result, even in someone who is positive.  That's when she decided to run the celiac blood panel on me. And even though those results came back positive for the deamidated gliadin and negative for tTg, she still is very convinced that I have DH. I am happy that my doctor seems to be certain, but I would just feel better if the results were more definitive. The one other thing I am waiting on is I have been asked to attend grand rounds at the local academic hospital in 2 weeks. I guess grand rounds is where all of the academic dermatologists and dermatopathologists get together to review certain complicated cases. They will meet with me, review all of my pictures, biopsies and blood tests. My situation has been so complicated so they asked me to come. I am hoping maybe then I will get some more answers. 
    • It sure is, it really is. 
    • shellyb, I have info. for you & you may yet be able to get an official dx from your dermatologist as she sounds like she would be willing to learn. If you are dx'd with dh it is definitive & no other testing is needed. You don't need to see a GI. Im in FL & have had a long day watching Tropical Storm Hermine & making preparations for it's track which is over where I live. I'm tired! I will have links for you to reputable medical info. on the rash but it make take me till tomorrow or even longer if we lose power.  I'll be back as soon as I can. Question: You're on Dapsone now? How long have you been on it? How is it working for you? Are you getting the proper testing at regular intervals to make sure it isn't doing bad things to you? Were you gluten free before the skin biopsy?
    • Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of  yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish I would have known to see a GI before going gluten free but I was so desperate to get any relief that I started that and Dapsone as soon as my doctor mentioned it to me.  My rash is definitely symmetrical and I have it in all of the "classic" DH spots although it basically spread over my entire body. As much as I'd like a more formal diagnosis, I really don't think I can go through all of that again. It was so bad that not only was I getting no sleep but I had to change my sheets every morning because there was blood all over them. Sorry, TMI. The worst part is that this all developed during my ninth month of pregnancy and got much worse after I delivered my baby. So not only was I dealing with this insanely itchy rash but I had a newborn and a toddler to take care of.  My daughters' pediatrician did mention doing DNA testing on me first and then my daughters to see if there's any concern that they may be susceptible. I may just go that route for now. I was just curious if others have had similar test results to mine and how did their doctors treat it? Thanks again!
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