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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Home Testing Kits For Celiac?
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13 posts in this topic

So I have being feeling a little rubbish (like death!!) recently, and after comparing my list of symptoms with those of celiac disease sufferers, I decided to buy a home-testing kit and I got a positive result. I have done a blood test at the doctors, but am still waiting for results. Also, I am going for an endoscopy in two weeks. I was just wondering, how reliable do you guys think these testing kits are? Thanks in advance!

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So I have being feeling a little rubbish (like death!!) recently, and after comparing my list of symptoms with those of celiac disease sufferers, I decided to buy a home-testing kit and I got a positive result. I have done a blood test at the doctors, but am still waiting for results. Also, I am going for an endoscopy in two weeks. I was just wondering, how reliable do you guys think these testing kits are? Thanks in advance!

Jenni - what is the home testing kit? I've never heard of it but sounds like something I would like to try (since no doctor believes I have celiac.) Is it something for which you have to eat gluten in order for it to work right?

Jane

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Hi Jane! It is called a 'bio-card', which works in a similar way to a pregnancy test, but instead of pee, you take blood from your finger with a small device provided with the pack. You prick your finger, and that goes is the designated window on the card, then add a diluting solution, also provided, and watch the test window. Takes 10 minutes, doesn't hurt, and confirmed to myself that I wasn't imagining things. It tests for IgA an IgG in your blood, which only appear in your blood if you have been taking gluten. So I guess you have to suck it up ad get some toast!! Always a down-side, eh?! But they do have high claims of accuracy.

They sell for around

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Intersting... does not look like it is sold in America though... anyone know how accurate it is?

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I just took the Ani Biotech Biocard Celiac test (by 2G Pharma Inc.) this weekend and it gave me a positive result too :unsure: ... I just joined the forum to ask about this. I've got a doctor appointment tomorrow and then (probably) blood tests early next week so I imagine that I'll know how accurate it is by... July?

I'm in Canada. The company is out of Finland. The test has been endorsed by Health Canada and the Canadian Celiac association so Canadians seem to think it's a good indicator of Celiac, although the test says an "The only confirmatory test for celiac disease is a small intestinal biopsy".... sigh.

Nicole

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Hi, I am in the UK too and have seen these online, but don't know if somewhere like Boots sells them over the counter? Seriously thinking of getting one.

I had a really good appointment with my Consultant yesterday. He agrees that because all the tests so far have come back ok (abdo scan, endoscopy - although was not looking for Celiac damage as we hadnt even thought about it when they did the endoscopy!!)

He said there is a very good chance of Celiac, but if the test comes back negative has said I definitely have a gluten intolerance and should go Gluten Free after the bloods are done anyway.

He is writing to my family doctor to ask for them to do full Celiac screen, but I may have to wait 2 weeks.... I just want to start feeling better and I felt a huge improvement after 10 days going gluten free, but of course am now eating the evil stuff and feel like poo again!

It was so nice talking to a doctor who didnt think I am crazy or a hypochondriac, which is how I felt!

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Anyone know of an American store I can get this from? I would like to try it before my son goes to long gluten-free for it to matter and ordering from UK/etc will just take to long in shipping. I am not putting my son back on gluten for this, but do want to try it. :)

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Intersting... does not look like it is sold in America though... anyone know how accurate it is?

You can buy it from an online Canadian pharmacy because the US doesn't have an equivalent home test. I suggest that you squeeze the tip of your finger, though, so a lot of blood will collect there. I did not and couldn't squeeze out enough blood to save my life. Just an FYI

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You can buy it from an online Canadian pharmacy because the US doesn't have an equivalent home test. I suggest that you squeeze the tip of your finger, though, so a lot of blood will collect there. I did not and couldn't squeeze out enough blood to save my life. Just an FYI

Do you know of a respectable one I could order from?

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Do you know of a respectable one I could order from?

Health Canada and the Canadian Celiac Association both endorse the Ani Biotech Biocard Celiac test (by 2G Pharma Inc.). It's the test that I took and got a positive tTg test on (I only squeezed out about 75% of the blood needed for the test too). I have also taken a blood test (in a lab) but I haven't got my results back yet so i can't personnally attest to it's reliability yet.

Anyway, if you google that product you might find results. I bought mine from Amaranth Whole Foods Market but I have no idea if they would ship one down there.

Nicole S

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You order a Celiacsure home kit from here. They will ship to individuals in the US. It is a TTG test with the same risk of false negatives as any TTG blood test.

http://www.glutenpro.com/

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I just took this and got a negative, I have been gluten free for two weeks but have been eating gluten since last night (and think I accidentally did a few times in the two weeks). Should the test be accurate if I have been eating it since last night, or was I too quick, do I still need to wait two weeks, or can I say it's intolerance now not celiac?

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I just took this and got a negative, I have been gluten free for two weeks but have been eating gluten since last night (and think I accidentally did a few times in the two weeks). Should the test be accurate if I have been eating it since last night, or was I too quick, do I still need to wait two weeks, or can I say it's intolerance now not celiac?

The home tests are better for finding celiac than for ruling it out. TTG tests are 80% accurate. There is still a 20% chance that you are celiac so no, you shouldn't assume you are intolerant.

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    • Gluten ataxia...?
      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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