Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Newb From Sd
0

6 posts in this topic

Hi everyone!

I've been haunting the forum the last couple of months, ever since I realized I needed to go gluten free. I'm finally jumping in and hoping to join the conversation. I live in the Black Hills of SD. My health has been going down the tubes the last few years and when I finally reached my breaking point and saw a doctor, it all spiraled into thyroid ultrasounds, a specialist, and finally autoimmune Dx of Hashi's and celiac. At least now I know why I have felt so bad for so long. It's been a real challenge learning how to keep my kitchen safe, with my gluten-eating husband and 4 yr old sharing it with me, and starting all over on the basics of cooking and eating out.

I've already learned so much from reading here, so THANK YOU, and I look forward to getting to know everyone and learning even more!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ellystar, I just wrote to you in the other thread you have posted on, but I forgot to say, "WELCOME!!" I'm sorry you had to join our "club", but it's good to know I have a neighbor I can actually meet up with sometime. I LOVE Spearfish! Not just the beautiful canyon, but the town is great too. You guys have some great restaurants. I used to really enjoy Roma's. Of course I doubt THEY have a gluten-free menu, being an Italian restaurant.

You guys have a Safeway up there, don't you? The one by Bakken Park in Rapid has a HUGE organic section and they carry a ton of gluten-free items, so if your local one doesn't have much, it's worth a trip down. I never used to like grocery shopping, but when I go there I have a ball. "LOOK!!! I can EAT this!!"

Let's stay in touch.

0

Share this post


Link to post
Share on other sites

Yes, I used to enjoy Roma's now and then, but I really don't think I should go near the place now! Even though they do a few non-pasta things.

Barbacoas was a pleasant surprise last week. Almost the full menu is gluten free, and the two guys who worked on my food went through about 5 pairs of gloves, and even threw away the first bowl of rice and beans. They must have realized they CC'd it somehow, but I didn't catch it, as I was busy perusing all the veggie toppings at that moment.

The Bay Leaf went above and beyond to ensure me a gluten-free bison ribeye with vegetables, caramelized onions, and chilled gazpacho as well. I am going to team up with a local blogging friend of mine who is Primal and gluten-free. We are going to line up interviews with the managers, try to get a quick tour of the kitchens, and then eat a meal, and blog all about it. So I'll be sure to share with you when we do. We hope to do the same all around the Hills!

We do have Safeway but I have heard the one in Rapid City is way better. I was just there today on a whirlwind trip with DS and couldn't stop in. I'll be going back soon though. With a cooler and ice packs!

I actually work at the health food store here so I'm pretty spoiled, I get a nice discount and they really take my suggestions for products.

0

Share this post


Link to post
Share on other sites

Hello Elleystar! I am pretty new around here but I'd like to welcome you nonetheless. That's really cool that you work at a health food store, I'm jealous.

I can definitely understand the difficulties of staying gluten free in a household that consumes gluten. I live with two roommates, both of which eat gluten. Before them I lived with my ex girlfriend who actually worked at a bakery. Patience is easily spread thin in that environment until you find your own methods of keeping everything safe. I hope your efforts are going more smoothly than mine did.

0

Share this post


Link to post
Share on other sites

Ellystar, I just wrote to you in the other thread you have posted on, but I forgot to say, "WELCOME!!" I'm sorry you had to join our "club", but it's good to know I have a neighbor I can actually meet up with sometime. I LOVE Spearfish! Not just the beautiful canyon, but the town is great too. You guys have some great restaurants. I used to really enjoy Roma's. Of course I doubt THEY have a gluten-free menu, being an Italian restaurant.

You guys have a Safeway up there, don't you? The one by Bakken Park in Rapid has a HUGE organic section and they carry a ton of gluten-free items, so if your local one doesn't have much, it's worth a trip down. I never used to like grocery shopping, but when I go there I have a ball. "LOOK!!! I can EAT this!!"

Let's stay in touch.

You mentioned the gluten-free fest in Rapid City in your other thread, and I wanted to tell you. My endocrinologist in Rapid is great. He is very knowledgeable and kind of specializes in celiac. He travels around to med schools trying to educate them on it and teach them how to look for it. My cousin's husband (a dr. getting his endo specialisation right now, who lives in NH right now!) actually knew the name as soon as I told him, he'd met him and really respected him. Anyway I know the celiacs group in Rapid works with him and tries to get him to participate in events like these. I wonder if he had the time this go-round.

Hello Elleystar! I am pretty new around here but I'd like to welcome you nonetheless. That's really cool that you work at a health food store, I'm jealous.

I can definitely understand the difficulties of staying gluten free in a household that consumes gluten. I live with two roommates, both of which eat gluten. Before them I lived with my ex girlfriend who actually worked at a bakery. Patience is easily spread thin in that environment until you find your own methods of keeping everything safe. I hope your efforts are going more smoothly than mine did.

She worked in a bakery? I don't know how you survived. Truly.

I used to bake so much, OH MAN I loved to bake. I could make anything. Now I can't do it anymore, not like I used to, know what I mean? It's sad but I try not to dwell on it. I can't give away my cookbooks yet though.

0

Share this post


Link to post
Share on other sites




She worked in a bakery? I don't know how you survived. Truly.

I used to bake so much, OH MAN I loved to bake. I could make anything. Now I can't do it anymore, not like I used to, know what I mean? It's sad but I try not to dwell on it. I can't give away my cookbooks yet though.

It was extremely challenging, everyday she made a beeline for the shower. I'm sure I was glutened more than once from it, but she took every precaution she could. Sometimes she was even more careful than I was. I would keep the cookbooks, you could always substitute! I know it's not the SAME but I have had a few times where it actually improved a recipe.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,651
    • Total Posts
      921,611
  • Topics

  • Posts

    • How about reaching out to your local celiac disease support group? http://www.houstonceliacs.org
    • Yes, I am in Houston, TX. Can anyone recommend a good GI in Houston, lots of experience with celiac?  
    • I am sorry to hear about your mother.   It is not so hard to get a medical doctor to order a celiac panel -- especially if your father was diagnosed with celiac disease.  Our family GP did not blink an eye when I first asked my daughter to be tested.    If you think your doctor will disregard your legitimate request, you can either fire him or put the request in writing and send it certified (attorneys love documentation!)  I agree that our doctors should support us.  I have a great GI, but my GP  is pretty clueless when it comes to celiac disease, but she admits it.    She does always order all the lab tests I request.  Perhaps it is because I come in with supporting medical documentation and evidence.  If she was not supportive to my satisfaction, I would find a new doctor.   Again, you can go gluten free in your own.   Chance are you have celiac disease.    But it is hard.  Really hard if you do not have the support of your family.  That is my concern.   Are you in the US?  
    • I've just read SO MUCH about the long, arduous process of getting a positive diagnosis through traditional medicine - I'm not sure I want to put myself through all that. Since my father WAS positively diagnosed - I carry the celiac gene and another gene that predisposes me to gluten sensitivity - and my fecal tests for gliadin were SO elevated - there are enough reasons for me to go to a gluten free diet. The true medical diagnosis would just make it easier for my family/friends to believe the necessity of it. My children are adults and not particularly health care nuts. I doubt they would take their own risk seriously without a medical diagnosis. I'm afraid my husband, while he is trying to be supportive at this point, will grow weary of all the things I no longer serve at meals and all the places we will no longer go to because there are not gluten free alternatives on the menu. A medical diagnosis would make it easier for him, long term, I think.  I don't have much faith in general in our western health care system. My mother died 6 months ago at age 82 after 4-5 years of many different health issues. She had given up the keys to her car in her late 70's after getting lost several times. I became her designated driver to all doctor appointments, procedures, hospital stays, etc. The incompetence and disregard I saw blew me away. I'm surprised any elderly people survive our health care system once they get on that revolving door. The reason I started seeing a naturopath is that I am looking for an alternative to medical doctors for most of my health issues as I age. I know there are some things I still have to see them for - and of course, they are essential in trauma and emergency situations. But I am on a quest to follow a more holistic approach to my health care. If this is the path I am choosing, then I have to follow my gut (no pun intended) in situations like this. I think the only reason I would go through the medical testing would be for other people - not me. It seems to me, that with so many people being gluten intolerant these days, a decent M.D. would listen to a patient that was adamant about their intent to live gluten free - positive celiac diagnosis or not (and especially with the gene and stool test results). I mean, they don't tell vegetarians they have to eat meat ... and vegetarianism is a personal choice. Sorry if I seem to be rambling ... this is all so new, and I'm trying to find my way.    
    • This subject is often raised on this site, especially by women.  I am prompted to raise it again today, having spoken to my doctor who has said that she has noticed that celiacs often have thin hair, especially in later years.   Rather than just accept what she thinks is just the inevitable I would really like to hear from anyone who really has seen great improvement in their own hair and what they did. There are lots of tips on line but I am particularly interested in hearing from someone who has actually been there, done that, and now has better hair!  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,653
    • Most Online
      3,093

    Newest Member
    KerryO
    Joined