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What Do You All Think About Idea That All Grains Must Go For Many To Heal?


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23 replies to this topic

#16 GFinDC

 
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Posted 17 June 2012 - 06:44 AM

I am basically grain free ,except rice and occasionally corn.
I was considering switching to brown rice until I read this :P


Honestly I dont know anymore , some times I feel like food is trying to kill me :ph34r:

My PCP wants me to limit my carbs (possible insulin resistance ) for the next 3 months . So depending on my labs I may go totally grain free.


Ha Ha Chili, there are so many possible problems with grains! :D Well, anyway, here is a link to a short news story about the brown rice and arsenic link. There are lots of hits on it you search on brown rice and arsenic.

Brown rice may contain toxic arsenic levels, study shows

Brown rice -- and anything made with brown rice syrup --could be a source of potentially toxic arsenic, according to research by scientists at Dartmouth College.
...
The research team found that dangerous amounts of arsenic were in organic powdered toddler formula whose top ingredient was brown rice syrup, ABC reported. The formula contained six times more arsenic than the Environmental Protection Agency considers safe for the water supply, they reported.
...
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

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#17 IrishHeart

 
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Posted 17 June 2012 - 07:14 AM

I have to say that I read that report when it came out and I am a bit skeptical.

The report uses words like "may contain" and "can".

There was no follow up and I did not see a sudden recall of brown rice products or infant formulas.

So, how can we really know? :unsure:
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#18 rustycat

 
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Posted 17 June 2012 - 08:25 AM

Count me in as another one who has had to give up all grains. It's disappointing, to say the least, but I can't seem to keep my energy levels up or my hormones in order while eating any grains. I've been paleo for almost a month and my emotions are also the most stable they have ever been in my life. Who knew?
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Rickets (severe Vitamin D deficiency) shortly after birth
First trip to Dr with severe C, age 7
Infertility, multiple miscarriages, eventually adopted 2 boys (not related)
2010: Negative celiac blood test, but staying on gluten free diet due to vast improvement in all symptoms
2011: June - started low salicylate diet to improve rosacea - it worked really well!
2012: May - started Paleo way of eating. Emotions and blood sugar seem to have evened out. Brain fog vanished.

2013: May - after 4 month elimination diet, was able to add back dairy, but nightshades are gone for good (my arthritis is gone, too!!!)


#19 dreacakes

 
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Posted 18 June 2012 - 04:58 PM

Yes! Going grain free is a must, IMO.

I didn't start to see any significant improvement until I went on a paleo diet. It was so quick and so dramatic when I did. My brain fog was GONE, and my muscle spasms and joint pain soon followed.

This supplement was also helpful: RepairVite
And recently I just started taking cod liver oil and liquid chlorophyll, which has helped even more.

After being on the diet for about a year, I've been able to "cheat" some of the time and have some wine, sugar, goat cheese (but never cow!) However, I am never going to touch grains again. When I eat them I feel foggy-brained, gassy, and my body starts to hurt again.

Best of luck to you, I hope the diet helps!
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Debilitating tendonitis in both arms in 2003, at age 23, declared "permanent and stationary" by workman's comp doctors.
Fibromyalgia diagnosis in 2010.
Mild hyperthyroidism diagnosis 2011.
Disc Degeneration diagnosis 2012.
Life long battle with hypoglycemia.
Gluten Free since 2010. On Paleo-type diet since May 2011.
Suffered years of brain fog, back spasms, nausea, and recurring connective tissue pain and injuries. After years of misdiagnosis, I did my own elimination diet and discovered a severe reaction to wheat gluten and casein. After going on a grain free, nightshade free, Paleo-ish diet, my symptoms are nearly gone, and I FINALLY KICKED THE BRAIN FOG!
Cheers to health! <3

#20 Marie1976

 
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Posted 19 June 2012 - 09:57 AM

This thread just makes me want to cry. I am vegan already (no meat, no dairy, no eggs). And I'm thinking of cutting out soy to see if it's bothering me.

Cutting out all grains?? No rice? No rice noodles? No quinoa or quinoa noodles? No gluten free breads or gluten free waffles or gluten free baked goods? No gluten free pizza?

I would be down to fruits, vegetables, and well, that's it. Fruits and vegetables. And beans. I admit I can see how this would probably eliminate any reactions. But I would feel deprived and hungry.

Anyone else tried this diet? Fruits, veggies, beans only?
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#21 Gemini

 
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Posted 19 June 2012 - 10:21 AM

This thread just makes me want to cry. I am vegan already (no meat, no dairy, no eggs). And I'm thinking of cutting out soy to see if it's bothering me.

Cutting out all grains?? No rice? No rice noodles? No quinoa or quinoa noodles? No gluten free breads or gluten free waffles or gluten free baked goods? No gluten free pizza?

I would be down to fruits, vegetables, and well, that's it. Fruits and vegetables. And beans. I admit I can see how this would probably eliminate any reactions. But I would feel deprived and hungry.

Anyone else tried this diet? Fruits, veggies, beans only?


Unless you have an added allergy to a particular grain or have noticed reactions after eating grains, there is no need to give up all grains to heal. It is most definitely NOT a requirement to healing and anyone who tells you that is wrong. Some people need to do so but you can have gluten-free pizza or bread when first diagnosed and have it not be a problem. I think the worst thing one can do is obsess about that to the point where they feel deprived. Relax and eat what you want in your diet that fits your particular needs. If you try something new and have a problem, then cut it out and try again down the road. You'll be fine...really! :D
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#22 AVR1962

 
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Posted 20 June 2012 - 05:12 AM

Hi all,

Interested to hear how others are feeling about eliminating ALL grains from diet to truly heal and stay healthy as a Celiac - I'm 9 months into diagnosis and am beginning to run across lots of information pointing in this direction. Began reading this in articles when I was researching the SCD diet (which isn't right for me, I don't have the classic GI symptoms), and then the resulting run down the Paleo/Primal path (which I am now doing).....began to run across articles and sites that are touting ALL grains being potential culprit, and that to just eliminate wheat isn't going to always be effective. (forget source, sorry, but one article talked about only 8% of adult celiacs showing healing to gut tissues after 2 yrs gluten free, even though daily symptoms were improved).

My head is sort of swimming from all this (especially after finding videos from Dr Peter Osborne), and I'm wondering what other Celiacs might think about all this. I'm sure many of you here have been researching FAR longer than I, so you might have a different take on this level of info?

Thanks for weighing in....

I am grain-free......had been gluten-free a year and still having random issues and was tired of being sick.....it was like their was a fire in my body and one part of my body was being attacked at a time. I knew my diet was clean, kitchen clean, I wasn't eating out and I took all the steps for CC at home. I also knew I was sensative to sugars so I went 8 weeks without sugar and grains to get my body a chance to heal and it worked. I felt amazingly better.

Giving up gluten was the hard one for me but giving up grains and sugar really was not hard. I am now almost 4 months into this. I will allow an occasional french fry and I will eat tortilla chips with salsa if I am out so if I take in any grains now, it is in very limited amounts and I am doing very well.
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Yesterday is not ours to recover but today is ours to win or lose!

Miscarriage, Kidney stones, Anemia, Pneumonia, Migraines, Restless leg, Bone fractures, Blurred/Double vision, Extreme fatigue, Bone & Joint Pain, Thyroid nodule, Celiac diagnosed 2011, Spine and leg bone loss, GERD, Vitamin deficiencies, Malabsorbtion, Neuropathy issues, Ataxia, Raynaud's Syndrome. Currently on diet with limited grain and sugar.

#23 slee11211

 
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Posted 20 June 2012 - 06:41 AM

I'm curious how this was tested.



have a talented acupuncturist who adapted NAOT to her work (she has had incredible success curing food allergies)....uses muscle test for sensitivity. More than anything, I wanted to know how much worse it was than my allergy panel was showing (what about all the "pre allergy" sensitivities if i had THAT many allergies? I had a ton). Turned out, I was sensitive to every single grain she could test, so taking them all out made sense for me.

To everyone else - I probably should have indicated that this is being looked into when gluten-free diet does NOT work for people. I think there is a camp of believers that feel that all Celiacs should probably be off all grains, but I think they are jumping the gun ahead of the hard research (which is slow in coming, as we all know). Definitely some of us are finding this to be true, but if others are healing on grains, more power to them! (have an Udi's muffin for me!!) For now, I think it's something to be aware of, maybe look into if your symptoms are not alleviating and you think you could do it....but I don't think every Celiac should stop eating grains! (although, keep an open mind of you are not symptom free yet - if you would have told me I'd be doing this one year ago I would have broken a rib laughing so hard - and I didn't have all the regular GI symptoms that are easy to track, and Celiac went undiagnosed into my 40's with all the autoimmune stuff that's more elusive and hard to stop, and I am feeling a difference finally)

And for those who want to try, I've found no information that implies that grains are necessary to the human body (humans systems evolved NOT eating them, so it could be the predominance of processed and engineered grains in our diet since young age that could be the issue). So for those who feel they need to cut them, but worry about idea that they are hurting their health - the research I am currently finding would indicate that the human liver provides MORE than enough glucose to cover the daily needs of the brain...and the introduction of a LOT more in a grain heavy diet causes such an insulin reaction in the body, there is just as big an argument that it is bad for you. But we do tend to hear what we want to hear, so there may be other studies debunking this out there that I'm overlooking. ha.

Also interesting, is that I was only a "healthy grain" eater for the last 10 yrs or more....and that's when celiac kicked into high gear for me. So it wasn't just going from Wonder bread diet to Paleo...I switched from an already incredibly healthy and rounded diet with healthy meats, whole grains, fruits and veg, and felt a difference right away, so go figure.
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#24 slee11211

 
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Posted 20 June 2012 - 06:55 AM

I am grain-free......had been gluten-free a year and still having random issues and was tired of being sick.....it was like their was a fire in my body and one part of my body was being attacked at a time. I knew my diet was clean, kitchen clean, I wasn't eating out and I took all the steps for CC at home. I also knew I was sensative to sugars so I went 8 weeks without sugar and grains to get my body a chance to heal and it worked. I felt amazingly better.

Giving up gluten was the hard one for me but giving up grains and sugar really was not hard. I am now almost 4 months into this. I will allow an occasional french fry and I will eat tortilla chips with salsa if I am out so if I take in any grains now, it is in very limited amounts and I am doing very well.


This is so good to hear!! I'm so glad you've had that kind of luck!

I've been at this only 2 months, but can feel already that this was the correct road, and I started down it with intention of it being for the rest of my life - not a diet, not a fad. I've not been able to give up the sugar completely (and it's only hidden sugar in stuff like coconut milk and dark chocolate)...but am working on that, and was hoping I could kind of sidestep the strictness there (time will tell if that has to go too). What you just wrote gives me so much encouragement to look forward to a time when it doesn't need to be so strict!

But yes, strangely, the first 9 month of being gluten free were MUCH more difficult to do that Paleo....it was like eating was all about what you "couldn't" have. What "replacements" to make for "IT." I started to get depressed, even though some symptoms were lessening. Now, I'm enjoying food so much more...it's all about this amazing quality, and really FEEDING my body. Nothing that goes in should bring anything but health and joy - I think I cook more like a chef now, buy everything fresh and local and look for new ways to enjoy and prepare it. I have an indulgent treat (macaroons or dark choc) when I need so I don't feel like a total caveman... That's a huge change from the sugar and carb loving human I used to be. Maybe I'm enjoying some of those benefits that are supposed to come with age? ha. Hope so.

Thanks for the post!
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