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Has Anyone With Dermatitis Herpetiformis Tried Terrasil?


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#1 ncallier

 
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Posted 13 June 2012 - 04:01 PM

Has anyone with dermatitis herpetiformis tried Terrasil? I am suffering horribly from some skin problem that I think is associated with my Celiac Disease, but I really don't know what it is because I can't get any of my doctors to examine it. They just suggest that I hand it off to someone else

Sorry, but I must vent a little bit! I have unresponsive doctors whose only advise is to adopt a gluten free lifestyle and see another specialist for my symptoms. They ALL obviously think that I am too stupid or something on that order to understand what that means, because that is all they can offer in the way of relief.

Immediately upon getting my diagnosis, I did and continue to follow a gluten free lifestyle. I do not cheat; I try very hard to make sure that my family/ I do not cross contaminate any surfaces or food that I come in contact with.

I really don't know what to do at this point. I have screamed and cried and cursed and fumed at the lack of care from the doctors that I have loved and admired over the years.

Please respond! I need some support and don't feel that I am getting any from my doctors, i.e. allergist, gastroenterologist, endocrinologist, general practiticioner, dermatologist...

Also, please forgive my pity party, but I feel so lost and alone. (I even hate that I admitted that!)

Thanks so much for addressing my issues!! ;)
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#2 saintmaybe

 
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Posted 13 June 2012 - 06:55 PM

Has anyone with dermatitis herpetiformis tried Terrasil? I am suffering horribly from some skin problem that I think is associated with my Celiac Disease, but I really don't know what it is because I can't get any of my doctors to examine it. They just suggest that I hand it off to someone else

Sorry, but I must vent a little bit! I have unresponsive doctors whose only advise is to adopt a gluten free lifestyle and see another specialist for my symptoms. They ALL obviously think that I am too stupid or something on that order to understand what that means, because that is all they can offer in the way of relief.

Immediately upon getting my diagnosis, I did and continue to follow a gluten free lifestyle. I do not cheat; I try very hard to make sure that my family/ I do not cross contaminate any surfaces or food that I come in contact with.

I really don't know what to do at this point. I have screamed and cried and cursed and fumed at the lack of care from the doctors that I have loved and admired over the years.

Please respond! I need some support and don't feel that I am getting any from my doctors, i.e. allergist, gastroenterologist, endocrinologist, general practiticioner, dermatologist...

Also, please forgive my pity party, but I feel so lost and alone. (I even hate that I admitted that!)

Thanks so much for addressing my issues!! ;)


I don't have dh,but I understand about the lack of care from doctors. I went to a dermatologist and got hit for a huge bill to boot, for them to suggest using clearasil for the chronic acne on my back. Thanks, doctors, the thought had never occurred to me. /sarcasm They then also laughed at me when I asked about the connection to gluten sensitivity. I swore off that ENTIRE HOSPITAL, after that experience. There's plenty of research that makes the connection to all kinds of skin disorders. A) I don't want a doctor/doctors who aren't up to date with current research and B. it's just f***ing rude to laugh at your patients.
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