My Story

5 posts in this topic

-----s. Back from nowhere!

In my second year of college (at 19 That would be 1982)., I fell ill with mono-nucleosis. I slept for up to 20 hours a day and was still tired. Months later, my blood tested normal and I tried to return to college. Sleep still did not refresh me.

Then, I came down with pleurosy ("The old lady's diesease) and spent more time on the couch. My lungs were so painful and I so weak that I could not

open the door of the medical clinic. My sister told me that I was not good for much right then, but that God loved me anyway. I returned to college foggy and fatigued for the second quarter of the year and finished out the year with my usual grades.

I tried a physical conditioning class hoping

that intense excercise could pull me out of my slump, but I remained tired and foggy. Excercise just further exhausted me and there was no improvement. I noticed I had sensitivities to smoke and perfume smells. My

lungs would feel painful if I took them in. I also noticed my abdomen swelling up and down. I just thought maybe I was putting on some weight. I would sometimes eat my lunch from home and eat another lunch. I would just select a new group of friends withwhich to share the second lunch.

The next year I began to school at a the U of M. The walks between classes were longer and I had a hard time to make it to classes on time. My inner fog continued. But yet I managed to pull out a 3.8 grade average.

A couple of years after mono, I heard comments that Diana is just not the same after her illness. I left college unfinished and pursued a job as a nursing assistant. I hoped the active labor would help clear up the fog and fatigue. I spent much of the weekends in bed with my feet up.

Meanwhile, my husband and I married and began to long for children. My pregnancies caused extreme nausea, so I felt like a martyr, but five of them

ended very well with the birth of a healthy child. After my third child was born my mother said that she could run circles around me. Everything I did,

I did with a feeling of lethargy.

After my forth child was born. I remember home schooling, while lying on the couch. I usually could stay awake, but felt too weak to sit or stand to

do school work. I continued getting meals and doing work, but it was difficult to sit and stay awake. The fogginess was continuously upon me. I worked more and more stringent with my diet and tried some supplements, butI could not get my energy up.

I prayed to meet a certain chiropractor (That is a whole story in itself)as I passed by her office. I wondered if they might have any help for me there. I would not go in. However, after she and I met at homeschool gym and became friends, I discovered that she may be able to help me.

The first time I was tested she discovered my metabolism more out of whack than those she had tested after chemotherapy. Many people would be unbalanced on 3/5 scales, but my inbalances totaled 5. On my new program I

went from a size extra large to small dress in one week. I felt like a bird free from its cage. I began

accomplishing things I had been wanting to do for years. I soon had my fifth child after 3 years longing for her to come. I did not always abound in energy, but sometimes I did and I grew steadily more clear headed. I had always even in elementary school felt shaky, but liquid magnesium took that away. Once, I even heard a woman exclaiming that Diana was such an energetic

young woman!

My friend the chiropractor had her own family and I wanted her to have her time for them especially since she had a new baby. She had her husband chiropractor take over my work, but I really wanted a woman doctor. The cost of the needed supplements was high and insurance will not cover it. There seemed no hope for me to ever get off them. I quit going hoping that what we had done in two years could carry me and I could handle the rest. We continued eating an organic, natural food diet from scratch. We even started raising our own chickens and dairy goats.

I can't say when fatigue really overtook me again. I even remember sometime in the past `10 years when I felt mysteriously energetic for a while. I got more and more into organic foods, growing my own food, and natural remedies. However, I went through life trying to conserve energy, dragging my feet, and we never had the 6th child we so desired. Three years ago I really began to despair. I would fall asleep between words when I was

giving a spelling test. "There is nothing left" became my constant refrain.

Inspite of this, I and my 5 children managed a large garden in the summer and homeschooled in the winter. That summer two years ago (2007) I mostly despaired while the children worked. My dentist told me that people with as many dental problems as I , usually had a chronic diesease. Any natural remedies which had worked in the past, would not work anymore. After this

very unhappy summer my husband finally said that I better get help from a chiropractor again.

So ten years older I returned to my friend. My imbalances totaled three. My body had difficulties handling sugar. The cells within were not absorbing oxygen freely from the blood stream. The potassium and sodium levels were not in good proportions. I changed my diet slightly, I ate a little more protein spread evenly over my three meals, less carbohydrates,

and a bit more fat a little per meal. I also began to take the chiropractor's supplements. I had hope, and my family had hope, and my life was returning to me.

Sometimes I have so much energy that I do not know what to do with it. My overall energy improved and the fog cleared out of my head. No, It isn't all perfect and I am extra sensitive and prone to set backs, but compared to "there is nothing left" this is exciting. Yet, I grieve for lost years, which aren't exactly lost. The children are growing up nice and having their own ambitions and accomplishments. I know the Lord has a plan to restore those years and use it for the good of all of us.

These lines were all written before we discovered by genetic testing that I have Celiac and intolerance genes. I am much better with the supplements, but still some piece seemed to be missing. Well, now we think we found it. I am so glad to be able to make a big difference in my own health by avoiding gluten. I only wish my family would help me with it.

I recently learned that my blood pressure had been in 2007 as high as 180/115, My pulse was almost undetectable at times. I remember a nurse having trouble with that in my tiny second grade arm. Other symptoms included heavy periods, fluctuating weight gain and loss, water retention, intestinal irritablility, frequent urination, extreme thirst, skin numbness and temperature flushes. My blood pressure would plummet when I went from laying down to standing. In other words I was in serious trouble physically.

Now, I think we are really to the root of all of that. I expect that I will have some ineviditable consequences of living with 30 years of gluten intolerance or more. I expect to be amazed at the design of the body going forward and heal as best I can.

I hope you will all experience hope and healing. But mostly that you will turn to the Creator in your troubles and find eternal lfe.



Share this post

Link to post
Share on other sites

Ads by Google:

Congratulations Diana, I think you have found your answer! The path to finding out out about celiac is kind of slow for many of us. It seems like doctors often don't think to test for it although the symptoms seem obvious in hindsight. Maybe that will change in the future. Awareness is slowly growing. It seems often enough we are "diagnosed' by someone other than a doctor. My sister figured out my celiac, not my doctor.


Share this post

Link to post
Share on other sites

My tests were negative but there is no doubting that I look and feel better than I did two months ago. Most doctors will not take the time to look at your records and see how it all adds up. I agree, GFinDC. It took talking to my Grandma and aunt who are probably sufferers themselves, while visiting my cousin who has Crohn's at the hospital, for me to even consider gluten intolerance being my problem. That was at the height of my sickness.


Share this post

Link to post
Share on other sites

My tests were negative but there is no doubting that I look and feel better than I did two months ago. Most doctors will not take the time to look at your records and see how it all adds up. I agree, GFinDC. It took talking to my Grandma and aunt who are probably sufferers themselves, while visiting my cousin who has Crohn's at the hospital, for me to even consider gluten intolerance being my problem. That was at the height of my sickness.

Yep, family history should be looked at for sure. One of my younger brothers died of Crohn's complications, and had celiac as well. Two uncles with colon cancer also. Two sisters probably have celiac or NCGI. Darn genes sure do have an effect! Some of the celiac genes are associated with other autoimmune diseases too.


Share this post

Link to post
Share on other sites

Your story really affected me because the start of it is eerily similar to mine. I got mono my senior year of high school and going into college was always tired and had GI issues. Luckily I was diagnosed last summer, only about a year into my symptoms.

You will see your energy improve so much on a gluten-free diet. You'll be amazed.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Seeing as the flu shot will stimulate your immune system, it stands to reason that it could make symptoms flare.  I have never had a flu shot because I am low risk for catching it.  Now, I am nervous to try having one in case the above happens. I am not against vaccines, either, but I have never had the flu and just do not want a flare of symptoms......which can happen at any stage of recovery. I have been under stress for awhile after a few deaths in my family and sure enough, for the first time in 11 years, I have been having some subtle symptoms again and I have not been glutened at all. The docs tell me this is completely normal for those with AI diseases.  Trying to keep the immune system calm and happy can be challenging at times!
    • There's a gluten sniffing dog?????????????  I WANT ONE!  That way, as a service dog, I could take the pup into a restaurant and not be kicked out.  I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!
    • So, if this supposed damage cannot be seen under a microscope, how does Dr. Fine state with any amount of credibility that the damage is there?  He also needs to distinguish between NCGI and actual Celiac Disease because there is a huge difference. Regardless of what he claims, it is a well established fact that only in Celiac Disease is there villi damage. I am in no way dismissing the very severe symptoms of some with NCGI or its existence as an illness but people without Celiac do not usually have anemia, malabsorption and the resultant vitamin/mineral deficiencies. Their villi do not curl up and die. If there were damage done to a person with NCGI, then if on biopsy, the doctor hits a sweet spot, they would be able to see the damage under microscopic exam. I am also in no way defending the mainstream medical establishment because they certainly nearly killed me with their ignorance.  I know no doctor was looking for Celiac 30 years ago when I was sick but I presented with classic Celiac and they still got it wrong. So, I do hear you on that point but in today's world, we do understand Celiac much better and what Dr. Ford comes out with does not match known science. The problem we have is finding a sure fire way of diagnosing people before their guts are totally trashed.  I am sure testing will become much better and more sensitive for people in the early stages of the disease. I have a very open mind on medical issues and my doctor is a functional medicine MD. They have helped me more than most. But if Dr. Fine wants to be taken seriously, he needs to publish his findings for review by others in the medical field. He should be working with the current medical establishment to enlighten them if he has discovered things they haven't. But when he makes statements like the one I quoted, its hard to take him seriously. BTW....I encourage anyone who becomes ill from eating gluten to be tested for Celiac and if that cannot be proved, then by all means go strictly gluten-free. I know there are people who fall through the cracks but when someone states they need to be gluten-free for health reasons, I believe them!  You don't have to have a diagnosis to want to improve your health with a dietary change.  I am glad your husband has become well on the diet!  That really is the bottom line......  
    • I'm going to hope for a gluten-sniffing dog!  Funny, my 5th grader's science project was about cancer sniffing dogs.  During her presentation, she used our labrador to demonstrate.  She trained our dog to identify food masking as "cancer cells".  It was hilarious!  Our dog actually did it!   Anyway, I can't agree more with Gemini about the TTG measuring dietary compliance.  I continue to test negative to the TTG.   I think the DGP should be included in helping to determine dietary compliance.   Finally, I was saddened to hear that Dr. Fasano's recent research showed that some 20% of children are not experiencing intestinal healing.  We know from other studies that some 2/3 of  adult celiac patients never heal.  It is disheartening!  More post-diagnosis research and better tools to manage celiac disease are desperately needed.  
    • The flu vaccines can also be a bit of a gamble with what strains they put in each year. I've been OK with them generally but one year I had a really bad reaction to it and ended up feeling like someone was shoving razor blades down my throat for the best part of a week 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Carolyn Clark