Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Is Gluten The Reason For Anxiety, Depression, Fatigue And Panic Attacks
0

16 posts in this topic

In 2009 I was diagnosed with Celiacs Disease and have been on a gluten free diet ever since. Right after the first few months, I saw considerable improvement. All of my health issues went away, and for the most part I felt like a brand new person. But in the past year, something has gone wrong. I have always dealt with anxiety issues, but in the past year it feels like I have suffered anxiety worse than ever before. along with this I have experienced alot of depression, extreme fatigue, brain fog, being unable to focus, struggles in social situations and struggles to have fun, and even panic attacks. For some reason, all of these things came onto me like a tidal wave, and beat me down to a point of feeling like I have no hope, where I hate myself, making me feel so depressed a lot of the time. Sometimes I would cry uncontrollably, I would feel like I couldn't breathe, and I was so scared of almost every situation in my life. I hated myself because I felt like I could not "come alive" to say, meaning I felt like I could never be energetic or happy enough to have fun, thrive in relationships, or accomplish what I wanted in life. I felt stuck in a fog, lost from reality. I felt mentally insane, and anxiety hit me from every direction. I was a train wreck at the end of high school; it was a total bummer :( These types of things mostly happen when I am under stress or in social situations, where I am with a lot of people for a long amount of time, like school.

After reading all of the posts on this forum, I can relate to so many of what you guys deal with in regards to behavioral issues and gluten. It has caused me to pay extreme attention to what I eat, because if gluten has caused me to become this much of a miserable wreck, I want to stay as far away as possible (or light every molecule of it on fire). It has caused me to think maybe i haven't been as careful as I should be. But is gluten the reason for all of my problems? Why am I suffering from them if I am already on a gluten free diet? How careful can I be when it comes to being in contact with this "poison?" What do I do to never feel like this again?

I am going to college soon. I can't feel like I did in high school, I just won't be able to handle it. Some one please help me figure out how to be happy again, how to come alive and not be stuck in a fog, stop the panic attacks, how to have mental and physical energy again, and how to be able to love myself and thrive in the body God gave me!

1

Share this post


Link to post
Share on other sites


Ads by Google:

I could not have written a better description of what I experienced internally most of my life. I have been gluten free for almost 2 years. I don't have those episodes, thoughts, or feelings at all anymore...unless...I have gotten traces of gluten. If what you are experiencing is related to gluten, you will have to become extremely careful about cross-contamination and trace gluten. It happens to me every time I get gluten. I'm not sure why some people get the emotional and mental symptoms more than others, but Celiac can effect you with gastrointestinal, dermatological or neurological symptoms. You described my symptoms so well that I would say this could be a neurological manifestation of Celiac. The only way to deal with it if it is gluten related is to get rid of the gluten. You have to be hypervigilant about everything you eat or put on your body or come into contact with. Read, read, read about where gluten can hide and read all labels. Be sure you take vitamins that are gluten free. Many of the B vitamin deficiencies can cause severe depression and anxiety so you must supplement if you are not absorbing properly. If you are going to college, will you be staying in a dorm? Will you be able to prepare your own food or have a fridge in your room? Will you live with gluten eaters? All of these things will be obstacles to overcome so you can stay healthy. It is possible to love yourself and thrive in the body God gave you. You just have to learn what your body needs and then the struggle is to provide it. In my opinion your symptoms are consistent with ongoing cross contamination. Sometimes medications can help. But not if you are not absorbing properly. I was put on massive doses of depression and anxiety medication to help deal with the depression. It didn't help at all because I was not absorbing, but they just kept increasing the doses. Years later I realized I had Celiac and was able to come off all medication. I have only been clean of gluten 2 years but it has been amazing and all those awful feelings are gone. I hope they will be for you too.

0

Share this post


Link to post
Share on other sites

EatMeat4good has said it all so beautifully, so I cannot add much more.

I had all of these symptoms you describe develop in me, too --a few years ago when I became very ill from celiac and the malabsorption, but after 18 months gluten-free, they have vanished and only reappear when glutened by even trace CC. I hate these feelings more than the other awful symptoms I have.

I was never shy or anxious in my entire life, and not given to depressive moods (except for the time I had miscarriages), so I was very confused as to why I was in such a state. I worried I would go mad and I worked hard to stay sane. It was frightening sometimes. My brain was deeply affected by gluten and I used to say to the doctors and my poor husband and family all the time "something is very wrong with me. I do not feel like me at all". I lived in what I call "gluten head hell". It was a nightmare.

It was the gluten.

There is a clear link between depression, anxiety, panic disorder and other neuropsychiatric symptoms and gluten/celiac and the malabsorption it creates.

We lose essential vitamins, minerals, fatty acids, amino acids and we cannot function at top speed.

Look here:

https://sites.google.com/site/jccglutenfree/depression%2Canxiety%2Cpanic

Honey, if you still feel this way, I have to agree with EatMeat4Good---are you getting glutened somehow??

I hope you feel better soon.

1

Share this post


Link to post
Share on other sites

I was so deficient from years of celiac malabsorption that I had to take a really high-powered "includes everything" supplement to get my mental health to improve. I take EMPowerPlus from http://www.truehope.com and some fish oil.

0

Share this post


Link to post
Share on other sites

Great point, Sky!!

I forgot to mention that I take supps that include these ingredients, too and EFAs. I also take amino acids. Works well to help replenish!

0

Share this post


Link to post
Share on other sites




I've been gluten-free for over a year and having major issues with mood swings and fatigue, depression, anxiety, etc. I also keep wondering if it's accidental ingestion of gluten or something else. (Vitamin deficiency, hormones, etc.)

Just wanted to tell you that you're not alone! Keep coming back to this forum, that's what I do. You will get a lot of support and help here. Hang in there!

0

Share this post


Link to post
Share on other sites

In 2009 I was diagnosed with Celiacs Disease and have been on a gluten free diet ever since. Right after the first few months, I saw considerable improvement. All of my health issues went away, and for the most part I felt like a brand new person. But in the past year, something has gone wrong. I have always dealt with anxiety issues, but in the past year it feels like I have suffered anxiety worse than ever before. along with this I have experienced alot of depression, extreme fatigue, brain fog, being unable to focus, struggles in social situations and struggles to have fun, and even panic attacks. For some reason, all of these things came onto me like a tidal wave, and beat me down to a point of feeling like I have no hope, where I hate myself, making me feel so depressed a lot of the time. Sometimes I would cry uncontrollably, I would feel like I couldn't breathe, and I was so scared of almost every situation in my life. I hated myself because I felt like I could not "come alive" to say, meaning I felt like I could never be energetic or happy enough to have fun, thrive in relationships, or accomplish what I wanted in life. I felt stuck in a fog, lost from reality. I felt mentally insane, and anxiety hit me from every direction. I was a train wreck at the end of high school; it was a total bummer :( These types of things mostly happen when I am under stress or in social situations, where I am with a lot of people for a long amount of time, like school.

After reading all of the posts on this forum, I can relate to so many of what you guys deal with in regards to behavioral issues and gluten. It has caused me to pay extreme attention to what I eat, because if gluten has caused me to become this much of a miserable wreck, I want to stay as far away as possible (or light every molecule of it on fire). It has caused me to think maybe i haven't been as careful as I should be. But is gluten the reason for all of my problems? Why am I suffering from them if I am already on a gluten free diet? How careful can I be when it comes to being in contact with this "poison?" What do I do to never feel like this again?

I am going to college soon. I can't feel like I did in high school, I just won't be able to handle it. Some one please help me figure out how to be happy again, how to come alive and not be stuck in a fog, stop the panic attacks, how to have mental and physical energy again, and how to be able to love myself and thrive in the body God gave me!

Have you had your thyroid tested recently? Sometimes people with celiac also have thyroid problems that come and go. My first dance with thyroid issues was around the time I was 20. A lot of your issues go along with thyroid problems. I highly recommend looking into that soon. If it is thyroid, you'll want to get that settled down before starting college!

Are you attending a college near your home? Or are you traveling to a school more distant?

0

Share this post


Link to post
Share on other sites

The way I understand it, our noodles( brains) are mostly made of fatty tissue and nerves. So ifn' that be true, it makes sense that if you can't absorb fats correctly, or at all, that your noodle might be affected. So, it seems like celiac could definitely cause mental symptoms. Not to mention there is a lot of research showing it does. Try a saerach on celiac and pschisophrenia or something spelled similar to that, and celiac and gluten ataxia or celiac and depression. There are lots of articles about how gluten can affect the brain and personality.

There is a possibility you are reacting to another food also. It is not unusual for celiacs to develop additional food intolerances beyond gluten IMHO. Check out some of the member signatures to see what I mean. If it is another food intoelrance (check for gluten first of course) then an eliminaiton diet is a good way to proceed.

1

Share this post


Link to post
Share on other sites

The way I understand it, our noodles( brains) are mostly made of fatty tissue and nerves. So ifn' that be true, it makes sense that if you can't absorb fats correctly, or at all, that your noodle might be affected. So, it seems like celiac could definitely cause mental symptoms. Not to mention there is a lot of research showing it does. Try a saerach on celiac and pschisophrenia or something spelled similar to that, and celiac and gluten ataxia or celiac and depression. There are lots of articles about how gluten can affect the brain and personality.

There is a possibility you are reacting to another food also. It is not unusual for celiacs to develop additional food intolerances beyond gluten IMHO. Check out some of the member signatures to see what I mean. If it is another food intoelrance (check for gluten first of course) then an eliminaiton diet is a good way to proceed.

Yes it could be dairy products. The casein can be a big problem for a lot of people plus there is a ton of hormones in dairy.

Here is a list of the bad things in commercial milk.

http://home.iae.nl/users/lightnet/health/messages/milk/milk.html

0

Share this post


Link to post
Share on other sites

EatMeat4good has said it all so beautifully, so I cannot add much more.

I had all of these symptoms you describe develop in me, too --a few years ago when I became very ill from celiac and the malabsorption, but after 18 months gluten-free, they have vanished and only reappear when glutened by even trace CC. I hate these feelings more than the other awful symptoms I have.

I was never shy or anxious in my entire life, and not given to depressive moods (except for the time I had miscarriages), so I was very confused as to why I was in such a state. I worried I would go mad and I worked hard to stay sane. It was frightening sometimes. My brain was deeply affected by gluten and I used to say to the doctors and my poor husband and family all the time "something is very wrong with me. I do not feel like me at all". I lived in what I call "gluten head hell". It was a nightmare.

It was the gluten.

There is a clear link between depression, anxiety, panic disorder and other neuropsychiatric symptoms and gluten/celiac and the malabsorption it creates.

We lose essential vitamins, minerals, fatty acids, amino acids and we cannot function at top speed.

Look here:

https://sites.google...n,anxiety,panic

Honey, if you still feel this way, I have to agree with EatMeat4Good---are you getting glutened somehow??

I hope you feel better soon.

I have felt like this for SO long.... I only get bad anxiety, depression, etc. when I have been glutenized. It is so nice to not be alone :)

0

Share this post


Link to post
Share on other sites

I feel fatigue and fogginess if I don't get enough Vitamin B 12.

Di

0

Share this post


Link to post
Share on other sites

i was diagnosed with Celiac Disease in 2008. But ive suffered from it since i was a little girl.Growin up i could never understand why i would get so depressed at the drop of a dime. Even as im typing this, im having an episode of depression but when i was diagnosed i was never informed that Celiac could effect me neurologically, i was just told about the stomach pain. Reading these forums have help me realize that i need to truly stick to a gluten free diet. im newly engaged to a wonderful man who is currently in Afghanistan. He doesnt know how severe my depression and mood swings are but he has gotten a taste of my anxiety but i dont want to start a new life with him feeling the way that ive felt my whole life. sometimes i really think that its getting worse as the years go on. im not sure i even know where to start with changing my diet around but somethings gotta happen.

0

Share this post


Link to post
Share on other sites

i was diagnosed with Celiac Disease in 2008. But ive suffered from it since i was a little girl.Growin up i could never understand why i would get so depressed at the drop of a dime. Even as im typing this, im having an episode of depression but when i was diagnosed i was never informed that Celiac could effect me neurologically, i was just told about the stomach pain. Reading these forums have help me realize that i need to truly stick to a gluten free diet. im newly engaged to a wonderful man who is currently in Afghanistan. He doesnt know how severe my depression and mood swings are but he has gotten a taste of my anxiety but i dont want to start a new life with him feeling the way that ive felt my whole life. sometimes i really think that its getting worse as the years go on. im not sure i even know where to start with changing my diet around but somethings gotta happen.

Hi alexzandryamcnea,

Welcome to the forum! You are right, sticking to the gluten-free diet 100% of the time is very important. The immune system reaction lasts for 10 days or more when triggered by gluten, and that is all time your body is being damaged. So if you are eating gluten or getting cross-contaminated twice a monthj, you are never really past the damage. Over time that continuing inflammation and damage can cause other symptoms to develop, or even other auto-immune diseases. So staying 100% gluten-free is very important to prevent that from happening. In some rare cases peoepl develop cancer even.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

0

Share this post


Link to post
Share on other sites

One thing I can add is that it's very important to have a positive support system for you. I have been struggling with what you have, as well but have found that a combination of suppliments, gluten-free diet and transformative psychological work has really helped. More importantly though, who you surround yourself with is almost just as important. I've had people I've thought were my friends doubt that my severe anxiety was linked to diet and I've had to muster the strength to no longer surround myself with them. I hope you have people you can rely on in your truth and that you are seeking councelling.

1

Share this post


Link to post
Share on other sites

One thing I can add is that it's very important to have a positive support system for you.

I've had people I've thought were my friends doubt that my severe anxiety was linked to diet and I've had to muster the strength to no longer surround myself with them.

I agree, As we heal from the damage from celiac, a positive attitude is essential.

No "Debbie Downers", doubters or angry/negative people allowed around me anymore. Works for me! :)

0

Share this post


Link to post
Share on other sites

I am sorry Ì don`t have much to offer, as I am so new to this ... but May I suggest that along with the great advice i have read, you may be stressing?

From what I read, you may be (only speculating here) working yourself up a bit over the possibilities of problems, nervousness about starting college (and all that goes with it), fear of being sick again, fear that you will hav esetbacks by cross contamination... etc... all this could be combining so that you feel overwhelmed by it all. See, your brain and body are intricately linked.

I suggest you take it one step at a time, one day at a time, and try to first get in the right frame of mind.

Our thoughts and feelings work with or against our bodies. Problems with one lead to problems with the other and so on. In my experience, the best place to start is with our heart. Take a breath. Relax.

Exodus 33;14

First, work on letting go of the stress and the fears; then work on the body.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,336
    • Total Posts
      920,446
  • Topics

  • Posts

    • It starts as a piercing itch and the skin turns reddish with a few tiny red bumps. Then tiny watery vesicles appear and itch like crazy. The whole process from start to finish is about 3 weeks and the lesions leave a purplish skin tone and scab. I get them on the back side of both knees near the bend.  Sometimes it's just a few scattered vesicles in the same area. I've had Drs say eczema or herpes. My next step is to find a dermatologist familiar with dh. Thanks for the input.
    • DH can look like that but other things can as well. It would help if you described the way it acts/presents. You can get a dh biopsy. Read threads in this section to find out how the biopsy is done correctly. 
    • my celiac was triggered by pregnancy.  had no clue.  symptoms creeped up (started with indigestion, deemed as 'colitis' or 'ibs') but eventually all the ones you mentioned above all joined the party.  sounds like you are headed in the right direction.  one of the points of diagnosis is the reaction to the gluten-free diet.  keep digging.  half the people on here don't have a firm diagnosis (science really needs to catch up with this disease)  and a false negative blood test is fairly common, for whatever reason - if you've not been eating gluten every day for like 8 weeks, it may not detect antibodies, which is what these tests are measuring.  sorry you're having this dilemma!  hope you find some answers.
    • tom & chee!  good to know   they grill the sandwich on a separate pan?  or do you just order soup and salad.  so cool to find more places to eat out!!
    • Hi everybody,  I have had symptoms of Celiac since mid pregnancy and they have gotten worse over the last 5 months post partum. I have constipation, periods stopped, extreme fatigue,  joint pain, weak muscles, dizzyness, migraines, light sensitivity,  pins and needles in hands and feet, elevated TSH, depreason and anxiety. Was put on thyroid meds but it didn't help any of my symptoms. My doctor told me to try gluten free and reintroduce it. I tried it for 2 weeks and started feeling quite a bit better, then reintroduced it and felt worse than ever! It's definitely a gluten problem. She suggested I get the Celiac panel run so I got tested for Ttg iga, DGP igg and EMA all came back NEGATIVE! by this point I had only reintroduced gluten for a few days. She said my antibodies shouldn't go down by much in this time frame. Should I push for a referral to a GI doctor? I don't know why I feel the need for diagnosis? Probably my mother in law laughing when I said I can't eat gluten anymore and she tried to offer me things like donuts, saying it's just a little.  She just doesn't get it. So now, do I suffer for 6 weeks to get the biopsy or just stop eating gluten and be done with it.  I have also noticed while introducing new foods to my baby that he throws up whenever I give him anything wheat based. I doubt they can diagnose a baby and I refuse to damage his intestines for a diagnosis.  Maybe I should get my daughter tested as well? She is 3 and has been complaining of upset tummy and is frequently constipated. She is growing well though but is also quite thin. She is not a big eater. She may be constipated because she holds it. She is afraid to poop on the potty. Since I have had symptoms for only about 10 months, could there not be much damage yet? Sorry for the long post! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,395
    • Most Online
      1,763

    Newest Member
    olenalrz
    Joined