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Is Gluten The Reason For Anxiety, Depression, Fatigue And Panic Attacks
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In 2009 I was diagnosed with Celiacs Disease and have been on a gluten free diet ever since. Right after the first few months, I saw considerable improvement. All of my health issues went away, and for the most part I felt like a brand new person. But in the past year, something has gone wrong. I have always dealt with anxiety issues, but in the past year it feels like I have suffered anxiety worse than ever before. along with this I have experienced alot of depression, extreme fatigue, brain fog, being unable to focus, struggles in social situations and struggles to have fun, and even panic attacks. For some reason, all of these things came onto me like a tidal wave, and beat me down to a point of feeling like I have no hope, where I hate myself, making me feel so depressed a lot of the time. Sometimes I would cry uncontrollably, I would feel like I couldn't breathe, and I was so scared of almost every situation in my life. I hated myself because I felt like I could not "come alive" to say, meaning I felt like I could never be energetic or happy enough to have fun, thrive in relationships, or accomplish what I wanted in life. I felt stuck in a fog, lost from reality. I felt mentally insane, and anxiety hit me from every direction. I was a train wreck at the end of high school; it was a total bummer :( These types of things mostly happen when I am under stress or in social situations, where I am with a lot of people for a long amount of time, like school.

After reading all of the posts on this forum, I can relate to so many of what you guys deal with in regards to behavioral issues and gluten. It has caused me to pay extreme attention to what I eat, because if gluten has caused me to become this much of a miserable wreck, I want to stay as far away as possible (or light every molecule of it on fire). It has caused me to think maybe i haven't been as careful as I should be. But is gluten the reason for all of my problems? Why am I suffering from them if I am already on a gluten free diet? How careful can I be when it comes to being in contact with this "poison?" What do I do to never feel like this again?

I am going to college soon. I can't feel like I did in high school, I just won't be able to handle it. Some one please help me figure out how to be happy again, how to come alive and not be stuck in a fog, stop the panic attacks, how to have mental and physical energy again, and how to be able to love myself and thrive in the body God gave me!

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I could not have written a better description of what I experienced internally most of my life. I have been gluten free for almost 2 years. I don't have those episodes, thoughts, or feelings at all anymore...unless...I have gotten traces of gluten. If what you are experiencing is related to gluten, you will have to become extremely careful about cross-contamination and trace gluten. It happens to me every time I get gluten. I'm not sure why some people get the emotional and mental symptoms more than others, but Celiac can effect you with gastrointestinal, dermatological or neurological symptoms. You described my symptoms so well that I would say this could be a neurological manifestation of Celiac. The only way to deal with it if it is gluten related is to get rid of the gluten. You have to be hypervigilant about everything you eat or put on your body or come into contact with. Read, read, read about where gluten can hide and read all labels. Be sure you take vitamins that are gluten free. Many of the B vitamin deficiencies can cause severe depression and anxiety so you must supplement if you are not absorbing properly. If you are going to college, will you be staying in a dorm? Will you be able to prepare your own food or have a fridge in your room? Will you live with gluten eaters? All of these things will be obstacles to overcome so you can stay healthy. It is possible to love yourself and thrive in the body God gave you. You just have to learn what your body needs and then the struggle is to provide it. In my opinion your symptoms are consistent with ongoing cross contamination. Sometimes medications can help. But not if you are not absorbing properly. I was put on massive doses of depression and anxiety medication to help deal with the depression. It didn't help at all because I was not absorbing, but they just kept increasing the doses. Years later I realized I had Celiac and was able to come off all medication. I have only been clean of gluten 2 years but it has been amazing and all those awful feelings are gone. I hope they will be for you too.

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EatMeat4good has said it all so beautifully, so I cannot add much more.

I had all of these symptoms you describe develop in me, too --a few years ago when I became very ill from celiac and the malabsorption, but after 18 months gluten-free, they have vanished and only reappear when glutened by even trace CC. I hate these feelings more than the other awful symptoms I have.

I was never shy or anxious in my entire life, and not given to depressive moods (except for the time I had miscarriages), so I was very confused as to why I was in such a state. I worried I would go mad and I worked hard to stay sane. It was frightening sometimes. My brain was deeply affected by gluten and I used to say to the doctors and my poor husband and family all the time "something is very wrong with me. I do not feel like me at all". I lived in what I call "gluten head hell". It was a nightmare.

It was the gluten.

There is a clear link between depression, anxiety, panic disorder and other neuropsychiatric symptoms and gluten/celiac and the malabsorption it creates.

We lose essential vitamins, minerals, fatty acids, amino acids and we cannot function at top speed.

Look here:

https://sites.google.com/site/jccglutenfree/depression%2Canxiety%2Cpanic

Honey, if you still feel this way, I have to agree with EatMeat4Good---are you getting glutened somehow??

I hope you feel better soon.

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I was so deficient from years of celiac malabsorption that I had to take a really high-powered "includes everything" supplement to get my mental health to improve. I take EMPowerPlus from http://www.truehope.com and some fish oil.

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Great point, Sky!!

I forgot to mention that I take supps that include these ingredients, too and EFAs. I also take amino acids. Works well to help replenish!

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I've been gluten-free for over a year and having major issues with mood swings and fatigue, depression, anxiety, etc. I also keep wondering if it's accidental ingestion of gluten or something else. (Vitamin deficiency, hormones, etc.)

Just wanted to tell you that you're not alone! Keep coming back to this forum, that's what I do. You will get a lot of support and help here. Hang in there!

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In 2009 I was diagnosed with Celiacs Disease and have been on a gluten free diet ever since. Right after the first few months, I saw considerable improvement. All of my health issues went away, and for the most part I felt like a brand new person. But in the past year, something has gone wrong. I have always dealt with anxiety issues, but in the past year it feels like I have suffered anxiety worse than ever before. along with this I have experienced alot of depression, extreme fatigue, brain fog, being unable to focus, struggles in social situations and struggles to have fun, and even panic attacks. For some reason, all of these things came onto me like a tidal wave, and beat me down to a point of feeling like I have no hope, where I hate myself, making me feel so depressed a lot of the time. Sometimes I would cry uncontrollably, I would feel like I couldn't breathe, and I was so scared of almost every situation in my life. I hated myself because I felt like I could not "come alive" to say, meaning I felt like I could never be energetic or happy enough to have fun, thrive in relationships, or accomplish what I wanted in life. I felt stuck in a fog, lost from reality. I felt mentally insane, and anxiety hit me from every direction. I was a train wreck at the end of high school; it was a total bummer :( These types of things mostly happen when I am under stress or in social situations, where I am with a lot of people for a long amount of time, like school.

After reading all of the posts on this forum, I can relate to so many of what you guys deal with in regards to behavioral issues and gluten. It has caused me to pay extreme attention to what I eat, because if gluten has caused me to become this much of a miserable wreck, I want to stay as far away as possible (or light every molecule of it on fire). It has caused me to think maybe i haven't been as careful as I should be. But is gluten the reason for all of my problems? Why am I suffering from them if I am already on a gluten free diet? How careful can I be when it comes to being in contact with this "poison?" What do I do to never feel like this again?

I am going to college soon. I can't feel like I did in high school, I just won't be able to handle it. Some one please help me figure out how to be happy again, how to come alive and not be stuck in a fog, stop the panic attacks, how to have mental and physical energy again, and how to be able to love myself and thrive in the body God gave me!

Have you had your thyroid tested recently? Sometimes people with celiac also have thyroid problems that come and go. My first dance with thyroid issues was around the time I was 20. A lot of your issues go along with thyroid problems. I highly recommend looking into that soon. If it is thyroid, you'll want to get that settled down before starting college!

Are you attending a college near your home? Or are you traveling to a school more distant?

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The way I understand it, our noodles( brains) are mostly made of fatty tissue and nerves. So ifn' that be true, it makes sense that if you can't absorb fats correctly, or at all, that your noodle might be affected. So, it seems like celiac could definitely cause mental symptoms. Not to mention there is a lot of research showing it does. Try a saerach on celiac and pschisophrenia or something spelled similar to that, and celiac and gluten ataxia or celiac and depression. There are lots of articles about how gluten can affect the brain and personality.

There is a possibility you are reacting to another food also. It is not unusual for celiacs to develop additional food intolerances beyond gluten IMHO. Check out some of the member signatures to see what I mean. If it is another food intoelrance (check for gluten first of course) then an eliminaiton diet is a good way to proceed.

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The way I understand it, our noodles( brains) are mostly made of fatty tissue and nerves. So ifn' that be true, it makes sense that if you can't absorb fats correctly, or at all, that your noodle might be affected. So, it seems like celiac could definitely cause mental symptoms. Not to mention there is a lot of research showing it does. Try a saerach on celiac and pschisophrenia or something spelled similar to that, and celiac and gluten ataxia or celiac and depression. There are lots of articles about how gluten can affect the brain and personality.

There is a possibility you are reacting to another food also. It is not unusual for celiacs to develop additional food intolerances beyond gluten IMHO. Check out some of the member signatures to see what I mean. If it is another food intoelrance (check for gluten first of course) then an eliminaiton diet is a good way to proceed.

Yes it could be dairy products. The casein can be a big problem for a lot of people plus there is a ton of hormones in dairy.

Here is a list of the bad things in commercial milk.

http://home.iae.nl/users/lightnet/health/messages/milk/milk.html

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EatMeat4good has said it all so beautifully, so I cannot add much more.

I had all of these symptoms you describe develop in me, too --a few years ago when I became very ill from celiac and the malabsorption, but after 18 months gluten-free, they have vanished and only reappear when glutened by even trace CC. I hate these feelings more than the other awful symptoms I have.

I was never shy or anxious in my entire life, and not given to depressive moods (except for the time I had miscarriages), so I was very confused as to why I was in such a state. I worried I would go mad and I worked hard to stay sane. It was frightening sometimes. My brain was deeply affected by gluten and I used to say to the doctors and my poor husband and family all the time "something is very wrong with me. I do not feel like me at all". I lived in what I call "gluten head hell". It was a nightmare.

It was the gluten.

There is a clear link between depression, anxiety, panic disorder and other neuropsychiatric symptoms and gluten/celiac and the malabsorption it creates.

We lose essential vitamins, minerals, fatty acids, amino acids and we cannot function at top speed.

Look here:

https://sites.google...n,anxiety,panic

Honey, if you still feel this way, I have to agree with EatMeat4Good---are you getting glutened somehow??

I hope you feel better soon.

I have felt like this for SO long.... I only get bad anxiety, depression, etc. when I have been glutenized. It is so nice to not be alone :)

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I feel fatigue and fogginess if I don't get enough Vitamin B 12.

Di

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i was diagnosed with Celiac Disease in 2008. But ive suffered from it since i was a little girl.Growin up i could never understand why i would get so depressed at the drop of a dime. Even as im typing this, im having an episode of depression but when i was diagnosed i was never informed that Celiac could effect me neurologically, i was just told about the stomach pain. Reading these forums have help me realize that i need to truly stick to a gluten free diet. im newly engaged to a wonderful man who is currently in Afghanistan. He doesnt know how severe my depression and mood swings are but he has gotten a taste of my anxiety but i dont want to start a new life with him feeling the way that ive felt my whole life. sometimes i really think that its getting worse as the years go on. im not sure i even know where to start with changing my diet around but somethings gotta happen.

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i was diagnosed with Celiac Disease in 2008. But ive suffered from it since i was a little girl.Growin up i could never understand why i would get so depressed at the drop of a dime. Even as im typing this, im having an episode of depression but when i was diagnosed i was never informed that Celiac could effect me neurologically, i was just told about the stomach pain. Reading these forums have help me realize that i need to truly stick to a gluten free diet. im newly engaged to a wonderful man who is currently in Afghanistan. He doesnt know how severe my depression and mood swings are but he has gotten a taste of my anxiety but i dont want to start a new life with him feeling the way that ive felt my whole life. sometimes i really think that its getting worse as the years go on. im not sure i even know where to start with changing my diet around but somethings gotta happen.

Hi alexzandryamcnea,

Welcome to the forum! You are right, sticking to the gluten-free diet 100% of the time is very important. The immune system reaction lasts for 10 days or more when triggered by gluten, and that is all time your body is being damaged. So if you are eating gluten or getting cross-contaminated twice a monthj, you are never really past the damage. Over time that continuing inflammation and damage can cause other symptoms to develop, or even other auto-immune diseases. So staying 100% gluten-free is very important to prevent that from happening. In some rare cases peoepl develop cancer even.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

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One thing I can add is that it's very important to have a positive support system for you. I have been struggling with what you have, as well but have found that a combination of suppliments, gluten-free diet and transformative psychological work has really helped. More importantly though, who you surround yourself with is almost just as important. I've had people I've thought were my friends doubt that my severe anxiety was linked to diet and I've had to muster the strength to no longer surround myself with them. I hope you have people you can rely on in your truth and that you are seeking councelling.

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One thing I can add is that it's very important to have a positive support system for you.

I've had people I've thought were my friends doubt that my severe anxiety was linked to diet and I've had to muster the strength to no longer surround myself with them.

I agree, As we heal from the damage from celiac, a positive attitude is essential.

No "Debbie Downers", doubters or angry/negative people allowed around me anymore. Works for me! :)

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I am sorry Ì don`t have much to offer, as I am so new to this ... but May I suggest that along with the great advice i have read, you may be stressing?

From what I read, you may be (only speculating here) working yourself up a bit over the possibilities of problems, nervousness about starting college (and all that goes with it), fear of being sick again, fear that you will hav esetbacks by cross contamination... etc... all this could be combining so that you feel overwhelmed by it all. See, your brain and body are intricately linked.

I suggest you take it one step at a time, one day at a time, and try to first get in the right frame of mind.

Our thoughts and feelings work with or against our bodies. Problems with one lead to problems with the other and so on. In my experience, the best place to start is with our heart. Take a breath. Relax.

Exodus 33;14

First, work on letting go of the stress and the fears; then work on the body.

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    • I havent used it, not much of a baker tbh, but this one looks good: http://alittleinsanity.com/gluten-free-pie-crust-recipe/
    • As you say, there's no test, it's diagnosed by exclusion, so there's no metrics to check to assess compliance other than anecdotal response to symptoms. Conversely, I've not seen anything that says that NCGI can resolved or be cured either.  This paper gives a good summation.  Basically, there's not much research period! That is changing though, I think there's research underway which could help give answers.
    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
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