Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

DH Photo Bank
1 1

134 posts in this topic

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/images/external/20120524_065253.jpg

http://rainytown.se/images/external/20120524_065311.jpg

http://rainytown.se/images/external/20120524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

3

Share this post


Link to post
Share on other sites


Ads by Google:

Great idea!

Here's some of mine:

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png (emerging)

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png#!oZZ3QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-05-31at101025PM.png (older part of rash)

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png (this is what it looks like when it's 'inflamed')

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-06-17at54924PM.png (deflated and healing. sorry about the quality)

Brief history: I went gluten free Feb. '12 in an attempt to help relieve my GI 'issues'. Through the process I have discovered that being gluten-free has resolved *many* seemingly unrelated symptoms for me. I developed this rash after my first exposure to gluten (while gluten-free, approx. March '12). I get the rash in 3 different areas - it seems to be symmetrical. Responds well to low iodine and gluten-free.

I am not formally diagnosed as I am still searching for a competent doctor. I've got a lead on one (yay!) and plan to get the genetic testing done sometime in the near future. :)

Edited to add associated symptoms: the rash is *extremely* itchy - wakes me up! It tends to appear all at once - like a volcano eruption. Triggers that I am aware of: gluten, gluten cc, iodine, nighttime, hot water and hot weather.

Edited by Aerial
1

Share this post


Link to post
Share on other sites

Here are my pics. (And let me also add I haven't been officially diagnosed either so I wasn't sure if I should post or not but since the above two posters are in the same boat I decided to go ahead. I do hope someone with a positive biopsy will post.)

Some of these are rather gross, sorry!!

http://i1172.photobucket.com/albums/r571/janerane/IMG_2637.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2475.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2444.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2441.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2298-1.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2244.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2342.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2601.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2435.jpg

These were taken at various stages of my rash, I'm not sure what was taken when.

Features:

Started out with one small itch on the back of my neck, took two months for it to go elsewhere and when it did it really did!!

Jumped from neck to both elbows, both hips, back of both knees.

Severe uncontrollable itching, would come in bursts. I would have to scratch and scratch for 15 mintues, then it would get better until the next burst. Would wake in night and scratch.

Burning feeling 1-2 days before breakout.

Skin was very prickly and burned, did not like having anything touch it. Taking a shower was very uncomfortable, did not like water or the washcloth on my skin.

At times it would feel like hives. After scratching an area over and over it would become very inflamed

After a couple weeks of rash on elbows, hips and knees it spread to lower back, slowly going up spine and then spreading outwards. The elbow rash spread up and down my arms about 3 inches both ways. Then the front of thighs broke out, then the front and back of shoulders broke out, then the hip and back rash spread into my stomach. Hundreds of little dots.

Then the whole thing started going away. Total time - 6 months. It is now almost entirely gone, just a bit in one spot.

Edited to add - I've been gluten free for 2+ years and think I had some cc whch caused the rash. I stopped eating the one food I thought may be giving me this. Also started taking loratadine. Rash started to go away. I then reintroduced an oreo a week (as a test to see what would happen and also because I had an appt with dermo and didn't want it to disappear entirely before I met with him). Rash came back a bit and hung around but nowhere near as severe as before. Stopped the oreo after my appt and rash continued to disappear.

Edited by JaneWhoLovesRain
1

Share this post


Link to post
Share on other sites

Dani - not sure if it's just me and my computer or everyone, but I can't access your pictures.

Jane

0

Share this post


Link to post
Share on other sites

I saw Dani's photos fine so it must be your computer Jane.

Jane, you failed to state if the rash cleared all on it's own or if the rash cleared in response to a gluten-free. diet for 6 months.

0

Share this post


Link to post
Share on other sites




Jane, IMG_2601 looks exactly like mine does now, except mine gets more dry skin around it.

0

Share this post


Link to post
Share on other sites

These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.

http://rainytown.se/images/external/dh_si/DSC00864.JPG

http://rainytown.se/images/external/dh_si/DSC00866.JPG

http://rainytown.se/images/external/dh_si/DSC00868.JPG

http://rainytown.se/images/external/dh_si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.

The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.

http://rainytown.se/images/external/dh_si/DSC02919.JPG

http://rainytown.se/images/external/dh_si/DSC02922.JPG

http://rainytown.se/images/external/dh_si/DSC02923.JPG

http://rainytown.se/images/external/dh_si/DSC02926.JPG

http://rainytown.se/images/external/dh_si/DSC02927.JPG

http://rainytown.se/images/external/dh_si/DSC02929.JPG Shows the scars on the back of my leg from earlier.

http://rainytown.se/images/external/dh_si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.

http://rainytown.se/images/external/dh_si/DSC02938.JPG

http://rainytown.se/images/external/dh_si/DSC02940.JPG Blister on lower abdomen - just formed.

http://rainytown.se/images/external/dh_si/DSC02945.JPG Brand new blister in crook of arm.

http://rainytown.se/images/external/dh_si/DSC02967.JPG

http://rainytown.se/images/external/dh_si/DSC02969.JPG

http://rainytown.se/images/external/dh_si/DSC02980.JPG

http://rainytown.se/images/external/dh_si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.

The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.

1

Share this post


Link to post
Share on other sites

dani nero -

I had the same looking rash on my hands ten years ago. Back then it spread to the sides and backs of all my fingers. I remember it itching and burning so bad I thought i'd go crazy. It took three months of calamine lotion to get rid of it. I could run pretty hot water on my hands and it seemed to make it get worse. Ever since then I might see one or two and get worried only to have them disappear. I've never thought it was connected to gluten. Thanks for pic.

1

Share this post


Link to post
Share on other sites

These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.

http://rainytown.se/images/external/dh_si/DSC00864.JPG

http://rainytown.se/images/external/dh_si/DSC00866.JPG

http://rainytown.se/images/external/dh_si/DSC00868.JPG

http://rainytown.se/images/external/dh_si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.

The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.

http://rainytown.se/images/external/dh_si/DSC02919.JPG

http://rainytown.se/images/external/dh_si/DSC02922.JPG

http://rainytown.se/images/external/dh_si/DSC02923.JPG

http://rainytown.se/images/external/dh_si/DSC02926.JPG

http://rainytown.se/images/external/dh_si/DSC02927.JPG

http://rainytown.se/images/external/dh_si/DSC02929.JPG Shows the scars on the back of my leg from earlier.

http://rainytown.se/images/external/dh_si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.

http://rainytown.se/images/external/dh_si/DSC02938.JPG

http://rainytown.se/images/external/dh_si/DSC02940.JPG Blister on lower abdomen - just formed.

http://rainytown.se/images/external/dh_si/DSC02945.JPG Brand new blister in crook of arm.

http://rainytown.se/images/external/dh_si/DSC02967.JPG

http://rainytown.se/images/external/dh_si/DSC02969.JPG

http://rainytown.se/images/external/dh_si/DSC02980.JPG

http://rainytown.se/images/external/dh_si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.

The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.

Oh My! Squirm, that look so painful!

A few months ago I got a terrible rash on the same places..on my neck, behind my ears, and all over my chest. It looked EXACTLY like that. The itching wouldnt stop. I was waking up in the middle of the night scratching, waking up with blood all over my chest. Had a few blisters that were oozing. It was gross and embarassing. After a few weeks, it went away and I havent seen it since...

I could have sworn I had a picture around here somewhere though...

0

Share this post


Link to post
Share on other sites

I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.

I certainly hope your never comes back again! NEVER!

0

Share this post


Link to post
Share on other sites

I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.

I certainly hope your never comes back again! NEVER!

I really dont know what it was. I dont know if it was/is DH. This was way before I suspected gluten to be a problem, so I never made the connection. 2 of my 3 kids have pretty severe eczema. We have been to regular drs, dermatologists and allergists. When the flare ups get really bad, the allergist prescribes some steroids and antibiotics and thats it.

One of my daughters, however, have a different kind of eczema that looks so much like the pics of DH I see. very bumpy/spotty, with clearish-yellowish oozing spots. Both areas are on the insides of her elbows and she just scratches and scratches and nothing makes it better. It looks exactly like what I had on my chest and neck...not like the eczema the other kids usually have.

I had one daughter tested for celiac and the blood test came back negative, like mine. We all have hypothyroidism, except one daughter...the one with the elbow rashes.

I am so sick of going to drs already. I just am. No one believes me and I feel like a hypochondriac. :(

0

Share this post


Link to post
Share on other sites

So far none of the picture posters have been diagnosed DH, right?

It's a "probable DH photo bank" then...

How can you be 100% sure it is DH and use it as an example for other people?

There is still a (although maybe slight) chance it is something else

3

Share this post


Link to post
Share on other sites

Here is a collection of DH photos.

They seem to represent the ways DH can "morph"

http://www.dermnet.com/images/dermatitis-herpetiformis/photos/1

Many of the pictures you have posted seem to be consistent with these pictures of diagnosed DH.

This does not mean it IS DH, it just means...it sure seems to resemble it.

I had many blistery sores on my scalp, face, in my mouth when I was very ill from unDXed celiac ---and while it may not have been DH per se, my very celiac-savvy GI calls any type of eruption "celiac sores".

FWIW, ladies. :)

2

Share this post


Link to post
Share on other sites

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/images/external/20120524_065253.jpg

http://rainytown.se/images/external/20120524_065311.jpg

http://rainytown.se/images/external/20120524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/images/external/20120622_135205.jpg

0

Share this post


Link to post
Share on other sites

Dani! ihave that all over my fingers right now! They are pale at the moment but 2 days ago.they were red and blistery. are you diagnosed?

0

Share this post


Link to post
Share on other sites

This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/images/external/20120622_135205.jpg

Just a thought. I get a rash similar to this. It seems to come after a 'trigger' of some sort and is mostly worse in warmer months (the sun tends to make it worse). If it only occurring on your hands and feet, or just hands, it could be dyshidrotic eczema. The first time I got it, I was about 21 and it took YEARS to clear up. Here are some links to pics:

http://www.skinsight.com/adult/dyshidroticDermatitis.htm

http://dermnetnz.org/dermatitis/pompholyx.html

0

Share this post


Link to post
Share on other sites

Just a thought. I get a rash similar to this. It seems to come after a 'trigger' of some sort and is mostly worse in warmer months (the sun tends to make it worse). If it only occurring on your hands and feet, or just hands, it could be dyshidrotic eczema. The first time I got it, I was about 21 and it took YEARS to clear up. Here are some links to pics:

http://www.skinsight.com/adult/dyshidroticDermatitis.htm

http://dermnetnz.org/dermatitis/pompholyx.html

Some of the pics look a lot like mine! I also get them in my scalp though, not my feet.. My blisters don't join either and can surface even in the winter.. It also burns when exposed to sals. It's scary to be confused once again, but thanks for the reference (i'll keep it in mind if my rash develops into something else)

0

Share this post


Link to post
Share on other sites

Aren't there any diagnosed members who wish to post pictures ;-( I feel that this thread might be causing more speculation than a point of reference.

0

Share this post


Link to post
Share on other sites

This is a great thread, and you all have done a great job with your pictures. It is so helpful to compare notes on this, word descriptions just don't convey the idea as well as pictures.

It can be difficult to distinguish between dishydrotic eczema and DH. I had a conversation with a doctor acquaintance about this many months ago, his opinion was to give dapsone. Apparently it is one way to make the distinction between the two because dapsone won't affect dishydrotic eczema but DH supposedly responds to it.

For you who are not "officially" diagnosed, are your rashes improving gluten free? I had some outbreaks of rash on arms and legs (didn't take pics...darn!) that might have been DH, and my husband said I was scratching myself raw in my sleep the itching was so bad. I feel for your misery if you are still struggling with it!

0

Share this post


Link to post
Share on other sites

Some of the pics look a lot like mine! I also get them in my scalp though, not my feet.. My blisters don't join either and can surface even in the winter.. It also burns when exposed to sals. It's scary to be confused once again, but thanks for the reference (i'll keep it in mind if my rash develops into something else)

My blisters do not join together either. They just 'erupt' and cause dry, cracked hands and then start to blister again. I also had it through the winter. At one point I had it chronically for about 3 years. Steroid creams were supposed to help, but unfortunately did not for me. Water makes it worse, for example I cannot do dishes without gloves or it will show up. I also got a rash on my scalp at the same time, but it wasn't the same as the blistering hands.

Here is the interesting thing. I haven't had this rash in years (about 5 to be exact). We went gluten free for my son, who is allergic to wheat, but I ate garlic bread the other night. Within hours both of my hands broke out in this blistery rash. I also got cheilitis in the corner of my mouth and a cold sore (that now I am thinking is part of the cheilitis and not a cold sore after all) on my bottom lip. I am guessing that the trigger here had to be the garlic bread! I am making an appointment with an allergist on Monday!

0

Share this post


Link to post
Share on other sites

This is a great thread, and you all have done a great job with your pictures. It is so helpful to compare notes on this, word descriptions just don't convey the idea as well as pictures.

It can be difficult to distinguish between dishydrotic eczema and DH. I had a conversation with a doctor acquaintance about this many months ago, his opinion was to give dapsone. Apparently it is one way to make the distinction between the two because dapsone won't affect dishydrotic eczema but DH supposedly responds to it.

For you who are not "officially" diagnosed, are your rashes improving gluten free? I had some outbreaks of rash on arms and legs (didn't take pics...darn!) that might have been DH, and my husband said I was scratching myself raw in my sleep the itching was so bad. I feel for your misery if you are still struggling with it!

My rash & my husbands are improving gluten free. But one has to remember it's not always an overnight thing with dh as the IgA can take 2 years (some med. papers say up to 10 years) to work it's way out of our skin.

As to the Dapsone; many of us will not take it, it's some scary stuff, & some of us such as myself can't take it as it's in the sulfa class & I'm allergic to sulfa drugs. So we're stuck.

One sure thing though with dh is that if your dh (& most do) reacts to iodine & dh'ers go low iodine & the rash begins to clear up quickly ---- you have your answer. Unless someone can show a study of some other skin rash that responds to iodine withdrawal.

0

Share this post


Link to post
Share on other sites

I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?

0

Share this post


Link to post
Share on other sites

My rash & my husbands are improving gluten free. But one has to remember it's not always an overnight thing with dh as the IgA can take 2 years (some med. papers say up to 10 years) to work it's way out of our skin.

As to the Dapsone; many of us will not take it, it's some scary stuff, & some of us such as myself can't take it as it's in the sulfa class & I'm allergic to sulfa drugs. So we're stuck.

One sure thing though with dh is that if your dh (& most do) reacts to iodine & dh'ers go low iodine & the rash begins to clear up quickly ---- you have your answer. Unless someone can show a study of some other skin rash that responds to iodine withdrawal.

Holey moley. I never went to read about the dapsone before, I can see why most wouldn't want to take it. That is some dangerous stuff. I wouldn't take it either.

You've also explained why, though my rash is fading, it is NOT gone. I'm only 6 weeks gluten free. I guess I expected an instant response. Thanks for sharing that.

I'm thinking of testing with iodine. I was reading about the iodine patch test, I also think I'll get with my son and we'll both do some high iodine foods. We don't use iodized salt, I've avoided a lot of iodine because I was told it would aggravate my Hashimoto's by increasing thyroid antibodies. Not having had biopsies means we don't really know for sure, but maybe the iodine thing would answer questions for DS and me. Do you know much about the patch test?

0

Share this post


Link to post
Share on other sites

I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?

You can set up a free photo storage account at a place like photobucket or flickr. You then upload the pictures to your account, and after they are stored you can capture a link suitable for posting into a message here. You can make an entire album public for sharing, or individual pictures.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,518
  • Topics

  • Posts

    • Need help with "positive" blood test results
      You'll want to keep an eye on all your vitamin levels, as absorption problems are quite common with gastritis. You've probably already looked it up, but this is the WebMD page on gastritis. http://www.webmd.com/digestive-disorders/digestive-diseases-gastritis  It's not the best article as they mention 'treating' it with antacids which is pretty much the opposite of helpful. (https://www.sciencedaily.com/releases/2002/01/020115074441.htm) If the medication they were going to prescribe is an antibiotic, you might want to reconsider. If you have H. pylori, an antibiotic is the only sure way to get rid of it. If you don't get rid of the bacteria, the B12 deficiency will worsen.  
    • 9 year Old going through testing
      Yes, ATTITUDE, in all caps, and i am in the field of health care...!
    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined