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DH Photo Bank


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#1 dani nero

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Posted 17 June 2012 - 02:19 PM

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.
The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/...0524_065253.jpg
http://rainytown.se/...0524_065311.jpg
http://rainytown.se/...0524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.
  • 2
Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

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#2 Ninja

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Posted 17 June 2012 - 07:58 PM

Great idea!

Here's some of mine:

http://s1023.photobu...1at100910PM.png (emerging)
http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png#!oZZ3QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-05-31at101025PM.png (older part of rash)
http://s1023.photobu...17at55008PM.png (this is what it looks like when it's 'inflamed')
http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-06-17at54924PM.png (deflated and healing. sorry about the quality)

Brief history: I went gluten free Feb. '12 in an attempt to help relieve my GI 'issues'. Through the process I have discovered that being gluten-free has resolved *many* seemingly unrelated symptoms for me. I developed this rash after my first exposure to gluten (while gluten-free, approx. March '12). I get the rash in 3 different areas - it seems to be symmetrical. Responds well to low iodine and gluten-free.

I am not formally diagnosed as I am still searching for a competent doctor. I've got a lead on one (yay!) and plan to get the genetic testing done sometime in the near future. :)

Edited to add associated symptoms: the rash is *extremely* itchy - wakes me up! It tends to appear all at once - like a volcano eruption. Triggers that I am aware of: gluten, gluten cc, iodine, nighttime, hot water and hot weather.

Edited by Aerial, 18 June 2012 - 06:37 PM.

  • 2

Gluten Free 2/12 

 

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#3 JaneWhoLovesRain

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Posted 19 June 2012 - 02:47 PM

Here are my pics. (And let me also add I haven't been officially diagnosed either so I wasn't sure if I should post or not but since the above two posters are in the same boat I decided to go ahead. I do hope someone with a positive biopsy will post.)

Some of these are rather gross, sorry!!

http://i1172.photobu...ne/IMG_2637.jpg
http://i1172.photobu...ne/IMG_2475.jpg
http://i1172.photobu...ne/IMG_2444.jpg
http://i1172.photobu...ne/IMG_2441.jpg
http://i1172.photobu.../IMG_2298-1.jpg
http://i1172.photobu...ne/IMG_2244.jpg
http://i1172.photobu...ne/IMG_2342.jpg
http://i1172.photobu...ne/IMG_2601.jpg
http://i1172.photobu...ne/IMG_2435.jpg

These were taken at various stages of my rash, I'm not sure what was taken when.

Features:

Started out with one small itch on the back of my neck, took two months for it to go elsewhere and when it did it really did!!

Jumped from neck to both elbows, both hips, back of both knees.

Severe uncontrollable itching, would come in bursts. I would have to scratch and scratch for 15 mintues, then it would get better until the next burst. Would wake in night and scratch.

Burning feeling 1-2 days before breakout.

Skin was very prickly and burned, did not like having anything touch it. Taking a shower was very uncomfortable, did not like water or the washcloth on my skin.

At times it would feel like hives. After scratching an area over and over it would become very inflamed

After a couple weeks of rash on elbows, hips and knees it spread to lower back, slowly going up spine and then spreading outwards. The elbow rash spread up and down my arms about 3 inches both ways. Then the front of thighs broke out, then the front and back of shoulders broke out, then the hip and back rash spread into my stomach. Hundreds of little dots.

Then the whole thing started going away. Total time - 6 months. It is now almost entirely gone, just a bit in one spot.

Edited to add - I've been gluten free for 2+ years and think I had some cc whch caused the rash. I stopped eating the one food I thought may be giving me this. Also started taking loratadine. Rash started to go away. I then reintroduced an oreo a week (as a test to see what would happen and also because I had an appt with dermo and didn't want it to disappear entirely before I met with him). Rash came back a bit and hung around but nowhere near as severe as before. Stopped the oreo after my appt and rash continued to disappear.

Edited by JaneWhoLovesRain, 19 June 2012 - 05:34 PM.

  • 1
Gluten free since 2010 when it was suggested that my vertigo/dizzy problems may be from gluten. Tested negative for DH in April of 2012. However I'm not convinced I don't have DH as pictures and description pretty much match what I have.
11/2012 tested positve for 1 of the 2 celiac genes

#4 JaneWhoLovesRain

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Posted 19 June 2012 - 02:50 PM

Dani - not sure if it's just me and my computer or everyone, but I can't access your pictures.

Jane
  • 0
Gluten free since 2010 when it was suggested that my vertigo/dizzy problems may be from gluten. Tested negative for DH in April of 2012. However I'm not convinced I don't have DH as pictures and description pretty much match what I have.
11/2012 tested positve for 1 of the 2 celiac genes

#5 squirmingitch

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Posted 19 June 2012 - 05:02 PM

I saw Dani's photos fine so it must be your computer Jane.

Jane, you failed to state if the rash cleared all on it's own or if the rash cleared in response to a gluten-free. diet for 6 months.
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#6 dani nero

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Posted 20 June 2012 - 12:18 AM

Jane, IMG_2601 looks exactly like mine does now, except mine gets more dry skin around it.
  • 0
Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#7 squirmingitch

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Posted 23 June 2012 - 09:44 AM

These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.
http://rainytown.se/...si/DSC00864.JPG
http://rainytown.se/...si/DSC00866.JPG
http://rainytown.se/...si/DSC00868.JPG
http://rainytown.se/...si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.
The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.
http://rainytown.se/...si/DSC02919.JPG
http://rainytown.se/...si/DSC02922.JPG
http://rainytown.se/...si/DSC02923.JPG
http://rainytown.se/...si/DSC02926.JPG
http://rainytown.se/...si/DSC02927.JPG
http://rainytown.se/...si/DSC02929.JPG Shows the scars on the back of my leg from earlier.
http://rainytown.se/...si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.
http://rainytown.se/...si/DSC02938.JPG
http://rainytown.se/...si/DSC02940.JPG Blister on lower abdomen - just formed.
http://rainytown.se/...si/DSC02945.JPG Brand new blister in crook of arm.
http://rainytown.se/...si/DSC02967.JPG
http://rainytown.se/...si/DSC02969.JPG
http://rainytown.se/...si/DSC02980.JPG
http://rainytown.se/...si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.
The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.
  • 2

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#8 gfreejz

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Posted 24 June 2012 - 07:16 PM

dani nero -

I had the same looking rash on my hands ten years ago. Back then it spread to the sides and backs of all my fingers. I remember it itching and burning so bad I thought i'd go crazy. It took three months of calamine lotion to get rid of it. I could run pretty hot water on my hands and it seemed to make it get worse. Ever since then I might see one or two and get worried only to have them disappear. I've never thought it was connected to gluten. Thanks for pic.
  • 1

#9 KMMO320

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Posted 28 June 2012 - 12:13 PM

These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.
http://rainytown.se/...si/DSC00864.JPG
http://rainytown.se/...si/DSC00866.JPG
http://rainytown.se/...si/DSC00868.JPG
http://rainytown.se/...si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.
The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.
http://rainytown.se/...si/DSC02919.JPG
http://rainytown.se/...si/DSC02922.JPG
http://rainytown.se/...si/DSC02923.JPG
http://rainytown.se/...si/DSC02926.JPG
http://rainytown.se/...si/DSC02927.JPG
http://rainytown.se/...si/DSC02929.JPG Shows the scars on the back of my leg from earlier.
http://rainytown.se/...si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.
http://rainytown.se/...si/DSC02938.JPG
http://rainytown.se/...si/DSC02940.JPG Blister on lower abdomen - just formed.
http://rainytown.se/...si/DSC02945.JPG Brand new blister in crook of arm.
http://rainytown.se/...si/DSC02967.JPG
http://rainytown.se/...si/DSC02969.JPG
http://rainytown.se/...si/DSC02980.JPG
http://rainytown.se/...si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.
The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.


Oh My! Squirm, that look so painful!
A few months ago I got a terrible rash on the same places..on my neck, behind my ears, and all over my chest. It looked EXACTLY like that. The itching wouldnt stop. I was waking up in the middle of the night scratching, waking up with blood all over my chest. Had a few blisters that were oozing. It was gross and embarassing. After a few weeks, it went away and I havent seen it since...

I could have sworn I had a picture around here somewhere though...
  • 0

#10 squirmingitch

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Posted 28 June 2012 - 12:37 PM

I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.
I certainly hope your never comes back again! NEVER!
  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#11 KMMO320

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Posted 28 June 2012 - 12:55 PM

I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.
I certainly hope your never comes back again! NEVER!



I really dont know what it was. I dont know if it was/is DH. This was way before I suspected gluten to be a problem, so I never made the connection. 2 of my 3 kids have pretty severe eczema. We have been to regular drs, dermatologists and allergists. When the flare ups get really bad, the allergist prescribes some steroids and antibiotics and thats it.
One of my daughters, however, have a different kind of eczema that looks so much like the pics of DH I see. very bumpy/spotty, with clearish-yellowish oozing spots. Both areas are on the insides of her elbows and she just scratches and scratches and nothing makes it better. It looks exactly like what I had on my chest and neck...not like the eczema the other kids usually have.

I had one daughter tested for celiac and the blood test came back negative, like mine. We all have hypothyroidism, except one daughter...the one with the elbow rashes.

I am so sick of going to drs already. I just am. No one believes me and I feel like a hypochondriac. :(
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#12 bennl1

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Posted 01 July 2012 - 04:57 AM

So far none of the picture posters have been diagnosed DH, right?
It's a "probable DH photo bank" then...

How can you be 100% sure it is DH and use it as an example for other people?
There is still a (although maybe slight) chance it is something else
  • 0
Ben (58)

Diagnosed Celiac 12-Apr-2012
Dairy intolerant, B12 malabsorption, Bile acid malabsorption.
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Lifetime of misdiagnoses.

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#13 IrishHeart

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Posted 01 July 2012 - 03:08 PM

Here is a collection of DH photos.

They seem to represent the ways DH can "morph"

http://www.dermnet.c...formis/photos/1


Many of the pictures you have posted seem to be consistent with these pictures of diagnosed DH.

This does not mean it IS DH, it just means...it sure seems to resemble it.

I had many blistery sores on my scalp, face, in my mouth when I was very ill from unDXed celiac ---and while it may not have been DH per se, my very celiac-savvy GI calls any type of eruption "celiac sores".

FWIW, ladies. :)
  • 1

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#14 dani nero

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Posted 01 July 2012 - 10:46 PM

I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.
The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/...0524_065253.jpg
http://rainytown.se/...0524_065311.jpg
http://rainytown.se/...0524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.



This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/...0622_135205.jpg
  • 0
Self diagnosed January 2012, and on elimination, low-salicylate & low-iodine diet.
Also G6PD

#15 KMMO320

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Posted 02 July 2012 - 11:45 AM

Dani! ihave that all over my fingers right now! They are pale at the moment but 2 days ago.they were red and blistery. are you diagnosed?
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