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DH Photo Bank
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I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/images/external/20120524_065253.jpg

http://rainytown.se/images/external/20120524_065311.jpg

http://rainytown.se/images/external/20120524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

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Great idea!

Here's some of mine:

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png (emerging)

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-05-31at100910PM.png#!oZZ3QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-05-31at101025PM.png (older part of rash)

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png (this is what it looks like when it's 'inflamed')

http://s1023.photobucket.com/albums/af355/pinkgiraffe5/?action=view&current=ScreenShot2012-06-17at55008PM.png#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1023.photobucket.com%2Falbums%2Faf355%2Fpinkgiraffe5%2F%3Faction%3Dview%26current%3DScreenShot2012-06-17at54924PM.png (deflated and healing. sorry about the quality)

Brief history: I went gluten free Feb. '12 in an attempt to help relieve my GI 'issues'. Through the process I have discovered that being gluten-free has resolved *many* seemingly unrelated symptoms for me. I developed this rash after my first exposure to gluten (while gluten-free, approx. March '12). I get the rash in 3 different areas - it seems to be symmetrical. Responds well to low iodine and gluten-free.

I am not formally diagnosed as I am still searching for a competent doctor. I've got a lead on one (yay!) and plan to get the genetic testing done sometime in the near future. :)

Edited to add associated symptoms: the rash is *extremely* itchy - wakes me up! It tends to appear all at once - like a volcano eruption. Triggers that I am aware of: gluten, gluten cc, iodine, nighttime, hot water and hot weather.

Edited by Aerial
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Here are my pics. (And let me also add I haven't been officially diagnosed either so I wasn't sure if I should post or not but since the above two posters are in the same boat I decided to go ahead. I do hope someone with a positive biopsy will post.)

Some of these are rather gross, sorry!!

http://i1172.photobucket.com/albums/r571/janerane/IMG_2637.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2475.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2444.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2441.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2298-1.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2244.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2342.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2601.jpg

http://i1172.photobucket.com/albums/r571/janerane/IMG_2435.jpg

These were taken at various stages of my rash, I'm not sure what was taken when.

Features:

Started out with one small itch on the back of my neck, took two months for it to go elsewhere and when it did it really did!!

Jumped from neck to both elbows, both hips, back of both knees.

Severe uncontrollable itching, would come in bursts. I would have to scratch and scratch for 15 mintues, then it would get better until the next burst. Would wake in night and scratch.

Burning feeling 1-2 days before breakout.

Skin was very prickly and burned, did not like having anything touch it. Taking a shower was very uncomfortable, did not like water or the washcloth on my skin.

At times it would feel like hives. After scratching an area over and over it would become very inflamed

After a couple weeks of rash on elbows, hips and knees it spread to lower back, slowly going up spine and then spreading outwards. The elbow rash spread up and down my arms about 3 inches both ways. Then the front of thighs broke out, then the front and back of shoulders broke out, then the hip and back rash spread into my stomach. Hundreds of little dots.

Then the whole thing started going away. Total time - 6 months. It is now almost entirely gone, just a bit in one spot.

Edited to add - I've been gluten free for 2+ years and think I had some cc whch caused the rash. I stopped eating the one food I thought may be giving me this. Also started taking loratadine. Rash started to go away. I then reintroduced an oreo a week (as a test to see what would happen and also because I had an appt with dermo and didn't want it to disappear entirely before I met with him). Rash came back a bit and hung around but nowhere near as severe as before. Stopped the oreo after my appt and rash continued to disappear.

Edited by JaneWhoLovesRain
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Dani - not sure if it's just me and my computer or everyone, but I can't access your pictures.

Jane

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I saw Dani's photos fine so it must be your computer Jane.

Jane, you failed to state if the rash cleared all on it's own or if the rash cleared in response to a gluten-free. diet for 6 months.

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Jane, IMG_2601 looks exactly like mine does now, except mine gets more dry skin around it.

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These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.

http://rainytown.se/images/external/dh_si/DSC00864.JPG

http://rainytown.se/images/external/dh_si/DSC00866.JPG

http://rainytown.se/images/external/dh_si/DSC00868.JPG

http://rainytown.se/images/external/dh_si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.

The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.

http://rainytown.se/images/external/dh_si/DSC02919.JPG

http://rainytown.se/images/external/dh_si/DSC02922.JPG

http://rainytown.se/images/external/dh_si/DSC02923.JPG

http://rainytown.se/images/external/dh_si/DSC02926.JPG

http://rainytown.se/images/external/dh_si/DSC02927.JPG

http://rainytown.se/images/external/dh_si/DSC02929.JPG Shows the scars on the back of my leg from earlier.

http://rainytown.se/images/external/dh_si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.

http://rainytown.se/images/external/dh_si/DSC02938.JPG

http://rainytown.se/images/external/dh_si/DSC02940.JPG Blister on lower abdomen - just formed.

http://rainytown.se/images/external/dh_si/DSC02945.JPG Brand new blister in crook of arm.

http://rainytown.se/images/external/dh_si/DSC02967.JPG

http://rainytown.se/images/external/dh_si/DSC02969.JPG

http://rainytown.se/images/external/dh_si/DSC02980.JPG

http://rainytown.se/images/external/dh_si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.

The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.

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dani nero -

I had the same looking rash on my hands ten years ago. Back then it spread to the sides and backs of all my fingers. I remember it itching and burning so bad I thought i'd go crazy. It took three months of calamine lotion to get rid of it. I could run pretty hot water on my hands and it seemed to make it get worse. Ever since then I might see one or two and get worried only to have them disappear. I've never thought it was connected to gluten. Thanks for pic.

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These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.

http://rainytown.se/images/external/dh_si/DSC00864.JPG

http://rainytown.se/images/external/dh_si/DSC00866.JPG

http://rainytown.se/images/external/dh_si/DSC00868.JPG

http://rainytown.se/images/external/dh_si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.

The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.

http://rainytown.se/images/external/dh_si/DSC02919.JPG

http://rainytown.se/images/external/dh_si/DSC02922.JPG

http://rainytown.se/images/external/dh_si/DSC02923.JPG

http://rainytown.se/images/external/dh_si/DSC02926.JPG

http://rainytown.se/images/external/dh_si/DSC02927.JPG

http://rainytown.se/images/external/dh_si/DSC02929.JPG Shows the scars on the back of my leg from earlier.

http://rainytown.se/images/external/dh_si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.

http://rainytown.se/images/external/dh_si/DSC02938.JPG

http://rainytown.se/images/external/dh_si/DSC02940.JPG Blister on lower abdomen - just formed.

http://rainytown.se/images/external/dh_si/DSC02945.JPG Brand new blister in crook of arm.

http://rainytown.se/images/external/dh_si/DSC02967.JPG

http://rainytown.se/images/external/dh_si/DSC02969.JPG

http://rainytown.se/images/external/dh_si/DSC02980.JPG

http://rainytown.se/images/external/dh_si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.

The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.

Oh My! Squirm, that look so painful!

A few months ago I got a terrible rash on the same places..on my neck, behind my ears, and all over my chest. It looked EXACTLY like that. The itching wouldnt stop. I was waking up in the middle of the night scratching, waking up with blood all over my chest. Had a few blisters that were oozing. It was gross and embarassing. After a few weeks, it went away and I havent seen it since...

I could have sworn I had a picture around here somewhere though...

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I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.

I certainly hope your never comes back again! NEVER!

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I never took photos of it at it's worst before I went gluten-free except those few on my neck. I could not stand to look at myself. I certainly couldn't see why I would want photos of the horror hanging around. Now I wish I had. Might be good proof to a derm one day. Hindsight 20/20.

I certainly hope your never comes back again! NEVER!

I really dont know what it was. I dont know if it was/is DH. This was way before I suspected gluten to be a problem, so I never made the connection. 2 of my 3 kids have pretty severe eczema. We have been to regular drs, dermatologists and allergists. When the flare ups get really bad, the allergist prescribes some steroids and antibiotics and thats it.

One of my daughters, however, have a different kind of eczema that looks so much like the pics of DH I see. very bumpy/spotty, with clearish-yellowish oozing spots. Both areas are on the insides of her elbows and she just scratches and scratches and nothing makes it better. It looks exactly like what I had on my chest and neck...not like the eczema the other kids usually have.

I had one daughter tested for celiac and the blood test came back negative, like mine. We all have hypothyroidism, except one daughter...the one with the elbow rashes.

I am so sick of going to drs already. I just am. No one believes me and I feel like a hypochondriac. :(

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So far none of the picture posters have been diagnosed DH, right?

It's a "probable DH photo bank" then...

How can you be 100% sure it is DH and use it as an example for other people?

There is still a (although maybe slight) chance it is something else

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Here is a collection of DH photos.

They seem to represent the ways DH can "morph"

http://www.dermnet.com/images/dermatitis-herpetiformis/photos/1

Many of the pictures you have posted seem to be consistent with these pictures of diagnosed DH.

This does not mean it IS DH, it just means...it sure seems to resemble it.

I had many blistery sores on my scalp, face, in my mouth when I was very ill from unDXed celiac ---and while it may not have been DH per se, my very celiac-savvy GI calls any type of eruption "celiac sores".

FWIW, ladies. :)

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I thought that a thread containing a collection of the different shapes and forms of DH could be helpful to people looking for something to compare their own rashes with. So go ahead and post your rashes here to help others find a point of reference. Please add associated symptoms and a short history.

I am however doubtful of this idea being a good one because some people might add photos that are not related and confuse people who are new to all this. I hope it will be ok and if it's not then it's ok to delete this thread and I apologize in advance ;-)

Since I haven't seen a rash that is milder than mine I think that it's actually a proper coincidence that mine is the first one :-)

These images were taken when the rash was in it's mildest form. It has sadly developed since these photos were taking, and gets pink swollen bumpy areas under the blisters. It is also starting to spread to the next finger and on the webbing between my fingers.

The rash used wake me up at night with a blistery, throbbing, itching, and burning finger when I used to consume gluten. Now it mostly burns whenever it shows up with very mild itching. The water in the blisters is clear.

http://rainytown.se/images/external/20120524_065253.jpg

http://rainytown.se/images/external/20120524_065311.jpg

http://rainytown.se/images/external/20120524_065505.jpg

Important: Please note that I'm self-diagnosed, meaning this rash is based on my own speculations based on my symptoms all put together.

This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/images/external/20120622_135205.jpg

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Dani! ihave that all over my fingers right now! They are pale at the moment but 2 days ago.they were red and blistery. are you diagnosed?

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This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/images/external/20120622_135205.jpg

Just a thought. I get a rash similar to this. It seems to come after a 'trigger' of some sort and is mostly worse in warmer months (the sun tends to make it worse). If it only occurring on your hands and feet, or just hands, it could be dyshidrotic eczema. The first time I got it, I was about 21 and it took YEARS to clear up. Here are some links to pics:

http://www.skinsight.com/adult/dyshidroticDermatitis.htm

http://dermnetnz.org/dermatitis/pompholyx.html

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Just a thought. I get a rash similar to this. It seems to come after a 'trigger' of some sort and is mostly worse in warmer months (the sun tends to make it worse). If it only occurring on your hands and feet, or just hands, it could be dyshidrotic eczema. The first time I got it, I was about 21 and it took YEARS to clear up. Here are some links to pics:

http://www.skinsight.com/adult/dyshidroticDermatitis.htm

http://dermnetnz.org/dermatitis/pompholyx.html

Some of the pics look a lot like mine! I also get them in my scalp though, not my feet.. My blisters don't join either and can surface even in the winter.. It also burns when exposed to sals. It's scary to be confused once again, but thanks for the reference (i'll keep it in mind if my rash develops into something else)

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Aren't there any diagnosed members who wish to post pictures ;-( I feel that this thread might be causing more speculation than a point of reference.

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This is a great thread, and you all have done a great job with your pictures. It is so helpful to compare notes on this, word descriptions just don't convey the idea as well as pictures.

It can be difficult to distinguish between dishydrotic eczema and DH. I had a conversation with a doctor acquaintance about this many months ago, his opinion was to give dapsone. Apparently it is one way to make the distinction between the two because dapsone won't affect dishydrotic eczema but DH supposedly responds to it.

For you who are not "officially" diagnosed, are your rashes improving gluten free? I had some outbreaks of rash on arms and legs (didn't take pics...darn!) that might have been DH, and my husband said I was scratching myself raw in my sleep the itching was so bad. I feel for your misery if you are still struggling with it!

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Some of the pics look a lot like mine! I also get them in my scalp though, not my feet.. My blisters don't join either and can surface even in the winter.. It also burns when exposed to sals. It's scary to be confused once again, but thanks for the reference (i'll keep it in mind if my rash develops into something else)

My blisters do not join together either. They just 'erupt' and cause dry, cracked hands and then start to blister again. I also had it through the winter. At one point I had it chronically for about 3 years. Steroid creams were supposed to help, but unfortunately did not for me. Water makes it worse, for example I cannot do dishes without gloves or it will show up. I also got a rash on my scalp at the same time, but it wasn't the same as the blistering hands.

Here is the interesting thing. I haven't had this rash in years (about 5 to be exact). We went gluten free for my son, who is allergic to wheat, but I ate garlic bread the other night. Within hours both of my hands broke out in this blistery rash. I also got cheilitis in the corner of my mouth and a cold sore (that now I am thinking is part of the cheilitis and not a cold sore after all) on my bottom lip. I am guessing that the trigger here had to be the garlic bread! I am making an appointment with an allergist on Monday!

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This is a great thread, and you all have done a great job with your pictures. It is so helpful to compare notes on this, word descriptions just don't convey the idea as well as pictures.

It can be difficult to distinguish between dishydrotic eczema and DH. I had a conversation with a doctor acquaintance about this many months ago, his opinion was to give dapsone. Apparently it is one way to make the distinction between the two because dapsone won't affect dishydrotic eczema but DH supposedly responds to it.

For you who are not "officially" diagnosed, are your rashes improving gluten free? I had some outbreaks of rash on arms and legs (didn't take pics...darn!) that might have been DH, and my husband said I was scratching myself raw in my sleep the itching was so bad. I feel for your misery if you are still struggling with it!

My rash & my husbands are improving gluten free. But one has to remember it's not always an overnight thing with dh as the IgA can take 2 years (some med. papers say up to 10 years) to work it's way out of our skin.

As to the Dapsone; many of us will not take it, it's some scary stuff, & some of us such as myself can't take it as it's in the sulfa class & I'm allergic to sulfa drugs. So we're stuck.

One sure thing though with dh is that if your dh (& most do) reacts to iodine & dh'ers go low iodine & the rash begins to clear up quickly ---- you have your answer. Unless someone can show a study of some other skin rash that responds to iodine withdrawal.

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I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?

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My rash & my husbands are improving gluten free. But one has to remember it's not always an overnight thing with dh as the IgA can take 2 years (some med. papers say up to 10 years) to work it's way out of our skin.

As to the Dapsone; many of us will not take it, it's some scary stuff, & some of us such as myself can't take it as it's in the sulfa class & I'm allergic to sulfa drugs. So we're stuck.

One sure thing though with dh is that if your dh (& most do) reacts to iodine & dh'ers go low iodine & the rash begins to clear up quickly ---- you have your answer. Unless someone can show a study of some other skin rash that responds to iodine withdrawal.

Holey moley. I never went to read about the dapsone before, I can see why most wouldn't want to take it. That is some dangerous stuff. I wouldn't take it either.

You've also explained why, though my rash is fading, it is NOT gone. I'm only 6 weeks gluten free. I guess I expected an instant response. Thanks for sharing that.

I'm thinking of testing with iodine. I was reading about the iodine patch test, I also think I'll get with my son and we'll both do some high iodine foods. We don't use iodized salt, I've avoided a lot of iodine because I was told it would aggravate my Hashimoto's by increasing thyroid antibodies. Not having had biopsies means we don't really know for sure, but maybe the iodine thing would answer questions for DS and me. Do you know much about the patch test?

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I'd like to upload a photo of my current (and severe) DH outbreak on my face and neck to show what the scarring can look like, but I don't know how to upload photos. How is this done? The photo is on my iPhone and filed in my download file on my computer. Any help?

You can set up a free photo storage account at a place like photobucket or flickr. You then upload the pictures to your account, and after they are stored you can capture a link suitable for posting into a message here. You can make an entire album public for sharing, or individual pictures.

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    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
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