Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

DH Photo Bank
1 1

134 posts in this topic

I am dx'd since October 2012 with DH via skin biopsy, and gluten free since mid-October {don't even ask about Sandy's impact on my crazy life} .... {we lost our home}

I am uncertain if I can post any photos, since I'm new to this forum.

I was initially treated in September with prednisone for 3 weeks, which mostly cleared the rash; it quickly rebounded, though, when the prednisone was stopped. I have a very painful, sometimes itchy, mostly very painful rash on both elbows, both hips, upper thighs [front and rear], and buttocks, plus some minor spots along my arms and my hairline. The rash is always symmetrical and, like I stated, very painful. I believe the underlying antibodies attack nerve cells, thus the pain, and for others the severe itch.

I am finally in good hands, medically speaking, at a university clinic where the latest cutting edge science is being studied; I am actually a part of the study there, as the MDs don't see too many cases of DH.

Dapsone may be in my near future if the rash persists.

Edited by moneek
0

Share this post


Link to post
Share on other sites


Ads by Google:

Welcome to the board moneek! And to the club none of us ever wanted to be members of. :o Tealiemonster is new here too. If you read the threads she has posted on then it will help you to learn.

I am so sorry to hear you lost your home to Sandy. I come from hurricane territory myself having lived most of my life in southeastern coastal Fl. so i know full well what you are going through. It's rougher than rough. :unsure:

Keep us posted on the research please. I believe you are right on the underlying antibodies attacking nerve cells. My hubs & I have discussed this often.

You are allowed to post photos. If you can figure out how to! :lol: :lol: :lol:

The best thing any newbie can do here is to read as much as you can of the forums & threads --- not just this dh forum --- you will learn fast that way.

0

Share this post


Link to post
Share on other sites

I was able to post my photos to photobucket .... unfortunately, they are in reverse order, the first ones, the majority of the pix, are from December 2012; the last ones are of the initial manifestation of the rash back in July 2012, plus a few in between from November, when I actually thought I was getting a bit better. take a look:

http://s1272.beta.ph...lamb/library/DH

My case is complicated by a Dx of Hashimotos during the same time period (August 2012), so I have this conflict regarding Iodine - it appears dietary Iodine can aggrevate the DH rash, but Iodine is needed for healthy thyroid function. So, I am trying to balance all of this and learning more every day.

I use no cosmetics at all, with the exception of gluten-free lipstick (Gabriel's), I lubricate the rash with a combination of pure coconut oil and borage oil lotion (shikai children's lotion, gluten-free, per the manufacturer: http://pics1.ds-static.com/prodimg/75483/300.jpg )

I'm also avoiding the majority of gluten-free food products out there - they are loaded with corn and tapioca and lots of ingredients that I have never heard of. I am eating mostly whole foods, fruits, veggies, meats, chicken, etc.

Best of luck to everyone.

M

0

Share this post


Link to post
Share on other sites

I only eat at home as well after getting cross-contaminated twice (I think so, anyway); it's difficult socially as most folks just don't really understand. They think, just a little bread, just one cookie, or whatever. I find it's easier to just be a bit isolated at the moment until I feel stronger.

.... m

When we go out to have dinner, I ask for their allergy menu. Red Lobster cleaned a grill for me, wore gloves and prepared salmon along with a salad. I had to wait a little longer than usual but it was worth it to know I wouldn't be cc'd. I don't even try to eat at the fast food place anymore. :rolleyes:

0

Share this post


Link to post
Share on other sites

can you please clarify?

we posted photos and are comparing notes; why is there an issue with that?

Yes, moneek. The dh photo bank is pretty much so that people coming on the site can go directly to it to see photos of dh in it's many, & varied presentations. It was not intended for a discussion thread other than a short comment here or there. New people wanting to look at or compare photos would have to wade through a whole bunch of discussion in order to get to the next photos posted. Also, discussions such as iodine or thyroid meds affecting dh or anything else would be well served in threads with the subject in the subject line to make them easier for people to access when they are wanting to know about that aspect. Also then, it makes things easier to search. If one put iodine or thyroid meds into the search function it would not come up with the dh photo bank as a major hit.

Hey, I'm not trying to be a downer here. I just am trying to keep people from getting discouraged when they are looking for photos or info. on iodine or on thyroid meds or this or that. I remember all too well when I was a newbie & had gluten brain fog ---- I wanted --- NO , I NEEDED the quickest way possible to access the info. I was looking for & wading through a long discussion to get to another batch of photos would throw me off. I think we all want to help as many people as possible to not suffer with this insane itch & that is what I'm aiming at with this point.

Bottom line ---- it doesn't matter what I say. Sooner or later one of the moderators is going to come along & see all the discussion on this thread, split the discussion part out, re-title it appropriately like "managing dh & thyroid meds; a balancing act" & move the discussion part with the new title.

Example: Darkfire Ann posted photos on here when she first come on & then discussion ensued. One of the moderators came along & saw it & split it out & moved it. Too bad the photos got moved with it. I will ask Darkfire Ann to repost her photos to this thread so that ppl looking for photos can find them. See:

0

Share this post


Link to post
Share on other sites




Yes, moneek. The dh photo bank is pretty much so that people coming on the site can go directly to it to see photos of dh in it's many, & varied presentations. It was not intended for a discussion thread other than a short comment here or there. New people wanting to look at or compare photos would have to wade through a whole bunch of discussion in order to get to the next photos posted. Also, discussions such as iodine or thyroid meds affecting dh or anything else would be well served in threads with the subject in the subject line to make them easier for people to access when they are wanting to know about that aspect. Also then, it makes things easier to search. If one put iodine or thyroid meds into the search function it would not come up with the dh photo bank as a major hit.

Hey, I'm not trying to be a downer here. I just am trying to keep people from getting discouraged when they are looking for photos or info. on iodine or on thyroid meds or this or that. I remember all too well when I was a newbie & had gluten brain fog ---- I wanted --- NO , I NEEDED the quickest way possible to access the info. I was looking for & wading through a long discussion to get to another batch of photos would throw me off. I think we all want to help as many people as possible to not suffer with this insane itch & that is what I'm aiming at with this point.

Bottom line ---- it doesn't matter what I say. Sooner or later one of the moderators is going to come along & see all the discussion on this thread, split the discussion part out, re-title it appropriately like "managing dh & thyroid meds; a balancing act" & move the discussion part with the new title.

Example: Darkfire Ann posted photos on here when she first come on & then discussion ensued. One of the moderators came along & saw it & split it out & moved it. Too bad the photos got moved with it. I will ask Darkfire Ann to repost her photos to this thread so that ppl looking for photos can find them. See:

http://www.celiac.co...-skin-shedding/

thanks for squashing the conversation and alienating other memebers. (not)

I am leaving this forum, for just this reason.

I have ideas to contribute, things to discuss, photos to share, but with the obnoxious attitude that prevails here, I am not able to bear more stress.

0

Share this post


Link to post
Share on other sites

I'm really sorry you feel that way. The conversation didn't get squashed; it got moved ---- to here:

and it takes a moderator to move it. I am not a moderator.

You DO have ideas to contribute, things to discuss, photos to share & I hope you will reconsider your decision. No one said you could not do all those things. They just need to have some kind of order & not be willy nilly or no one will ever benefit from your ideas, discussions & photos.

I KNOW you are under a lot of stress; not only from dh & celiac but also from losing your home to Sandy. I REALLY DO KNOW THAT KIND OF STRESS --- been there, done that. I also suspect you are going through gluten withdrawals which can make us further stressed, angry, disoriented, confused & tend to take things personally & become irrational. Again, been there, done that. I feel so much for you hon. Honestly & from the bottom of my heart I mean that. ALL that you have been through has given you major overload.

I hope you will re-consider & stay with us. As I said before; I was enjoying the discussion & I meant that.

At any rate I send you monster hugs ((((Moneek)))) & though you may not believe it those hugs are sincere. I think you need some hugs & maybe a shoulder to cry on. We are here for you whenever.

0

Share this post


Link to post
Share on other sites

My son is not "officially" diagnosed, as we've decided to hold off on testing until he's older. My son had silent reflux and cried constantly (and I would bet part of that was itching and not being able to scratch). He had weight loss/failure to gain issues for months. He finally made it back onto the chart at 9 months and stayed in the 3rd percentile until 15 months, where he made it all the way to the 7th percentile. He's still smallish, but he's growing consistently finally.

He had a rash almost from birth. Steroid cream made it go away, but it would come back worse. We figured out very early on (2 weeks) that he had problems with dairy...couldn't even do hypo-allergenic formula (Nutramigen, which is still milk based, though very broken down). The rash got a bit better when we switched to Neocate (dairy free) and then he started getting oatmeal and it was worse again. Once we made him 100% dairy and gluten free, the rash went away. The only time it comes back now is if he gets glutened or "dairied". Even then, it hasn't been nearly as bad as it was for months. It still itches him really bad though and he digs at it constantly (it's the worst on his legs). He does gets some random spots here and there, which I believe is because we've brought small amounts of gluten into the house again lately (bread, for brothers' sandwiches, and crackers for their snacks). So the house is going gluten free again and if that doesn't do the trick, we're going to change salt and try to start limiting iodine. Anyway, if you made it through all that (I suck at narrowing things down and wanted to make sure I gave all the necessary info), here are some pictures from when he was almost 5 months old and it was pretty much at it's worst...

Embry136-1.jpg

EmbryRash003.jpg

EmbryRash004.jpg

EmbryRash012.jpg

Getting Better (fading)

EmbryRash016.jpg

0

Share this post


Link to post
Share on other sites

holy crap.....i have a rash on the inner part of my arm by my elbow that are small red dots that just appeared a couple days ago and got a little worse today. i have not been diagnosed with celiacs or been tested yet, but b/c of bloating and hive breakouts, I decided to go on a soup/salad diet, which contains salt (Iodide). My bloating went away. I've been doing the soup/salad thing and eating organic blue corn chips and salted rice cakes and fruits for about a week and a half. could this be the cause of my rash??!!

0

Share this post


Link to post
Share on other sites

Deleted pictures and my response per the request of SPJ&E

0

Share this post


Link to post
Share on other sites

The tough part is finding a doctor anywhere near our area. We live in a small town and it's not easy. We drive 1.5 hrs. (1 way) to see a good pediatrician and the specialists are a good bit further (one is a 3 hr. drive one way). We would be more than willing to put him on gluten for a time, in order to do a biopsy if we could actually find a doctor within a reasonable distance that is worth anything. We took him to his ped numerous times for this rash...she was stumped. She referred him to a local dermatologist, who basically said he had no idea...to try this steroid cream on it (that his office didn't even call in like they were supposed to). He was just...dumb, to put it nicely and it was a total waste of time (and that wasn't the only issue we had with that office).

So yes, we would love to have an official diagnosis, but that's easier said than done. Our older son's GI recommended bloodwork, but I know how unreliable the bloodwork is, especially for young kids. We are not willing to put him through blood testing at this point when keeping him gluten and dairy free keeps the rash away. A biopsy we would be totally fine with. I think the derm we seen just turned us off of trying to find another, so we have kept him gluten free and he's been fine. He started gaining weight finally and we just left it alone...stuck with it and haven't worried about getting anything "official".

If you don't mind, would you please remove my pictures from what you quoted? Please know that I don't request that to be "snarky" or "rude" in any way. I just may want to remove them from online at some point and won't be able to take them out of someone else's post. Thanks!

0

Share this post


Link to post
Share on other sites

These first 4 are from Sept. 2011 when I was on the verge of discovering this was dh.

http://rainytown.se/...si/DSC00864.JPG

http://rainytown.se/...si/DSC00866.JPG

http://rainytown.se/...si/DSC00868.JPG

http://rainytown.se/...si/DSC00867.JPG This 1 shows the clear amber fluid. The blisters were coming up so fast & bursting all by themselves.

The following ones are after 6 months gluten free & several months low salicylate & not a lot of iodine but I had been doing so well that I couldn't resist eating 4 tsp. of strawberry banana yogurt & during the night I woke itchin like mad & my neck all broken out in dh. Then other places began to break out again.

http://rainytown.se/...si/DSC02919.JPG

http://rainytown.se/...si/DSC02922.JPG

http://rainytown.se/...si/DSC02923.JPG

http://rainytown.se/...si/DSC02926.JPG

http://rainytown.se/...si/DSC02927.JPG

http://rainytown.se/...si/DSC02929.JPG Shows the scars on the back of my leg from earlier.

http://rainytown.se/...si/DSC02930.JPG Other leg. Scars will fade away after about 5 months.

http://rainytown.se/...si/DSC02938.JPG

http://rainytown.se/...si/DSC02940.JPG Blister on lower abdomen - just formed.

http://rainytown.se/...si/DSC02945.JPG Brand new blister in crook of arm.

http://rainytown.se/...si/DSC02967.JPG

http://rainytown.se/...si/DSC02969.JPG

http://rainytown.se/...si/DSC02980.JPG

http://rainytown.se/...si/DSC02981.JPG

I have been adamant NOT to scratch! None of the lesions or scars are the result of scratching them. It's bad enough w/o making bad scars from scratching them. I will scratch around them but never on them. I will rub on them and press on them.

The only place I have not had them yet was on the soles of my feet. I get them horribly in my scalp & they tend to be very large there --- the size of a quarter. They look different than these photos but there is no way to seperate the hair well enough to get a good clear photo. In the scalp they generally take 6 weeks to heal. All others run a course of 2 to 4/5 weeks depending on if I was gluten free or got cc'd (only once) & if I got too much iodine or salicylates.

Oh my goodnees, I am so thankful you posted this. That is exactly how mine looked before I went gluten-free. I struggled with DH for so long before I finally went gluten-free and saw results. I was misdiagnosed several times by multiple doctors and I wish I would have seen this forum months ago! Do you notice any flare ups from Chlorine or Tylenol? I got in a chlorine pool this summer and had a terrible flare up. I even had to get a chlorine filter on my shower head. Lately, I have been taking Tylenol PM and am experiencing a flare up. That's the only thing I can really think of that would cause a flare up. Have you experienced exacerbations from Tylenol?

0

Share this post


Link to post
Share on other sites

This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/...0622_135205.jpg

Dani! This is exactly how my fingers looked!!! I dont get it anywhere else on my body but I do get eczema on the back of my neck (who knows, it could be DH), but I get those itchy, red bumps on my fingers, but they dont really look like they are filled with anything. They're definitely raised, but I dont see any puss or fluid in them. It hurts when I wash dishes (my mom thinks I'm just trying to get out of it lol) Could it be DH?

Since I'm a nursing student and need to work with people in the hospital, I went to the doctor because I didnt want the patients to see my hands and get all freaked out - plus, I didnt want any of their germs getting into open cracks in my skin!! He didnt even know what DH was - looked up some pics on google and said it was eczema on my fingers, gave me some cream, and sent me on my way. The cream mildly helped but it came back so I just gave it to someone who actually had eczema.

I havent had any gluten accidents in a while, and the bumps went away. After seeing your pic I think I may have DH, but dont want to jump to conclusions because its nowhere else on my body...your thoughts?? :)

0

Share this post


Link to post
Share on other sites

Hi all,

I'm adding more pictures now that my rash has developed some consistency. I get it on my upper back/shoulders, buttocks (not amused :ph34r: ), stomach, jaw line and hairline. Some more recent-ish photos - the rash hasn't changed much - varies in severity (these pics are medium severity). Still not dx'd but Celiac is suspected (I think?).

http://cl.ly/image/190q3e3m1A09

http://cl.ly/image/2j1M2s2E2l2b

http://cl.ly/image/2y2A0N160h29

http://cl.ly/image/1i1o1B2D1J0H

http://cl.ly/image/3j1K3i2C412g - I always always always get this "lesion" in the same spot every time I get glutened or iodined - so strange.

Still obscenely itchy, stings, doesn't like hot weather or water, etc.

Hope this helps someone! :-)

Laura

0

Share this post


Link to post
Share on other sites

does dh itch? i have a rash on the inner part of my arm by elbow but it doesn't itch. i put eucerin healing ointment on it and it seems to lighten it up a bit, but does not go away. will be seeing derm in a couple weeks.

0

Share this post


Link to post
Share on other sites

DH is called "the suicidal itch" & that's for a reason. It itches insanely, burns, stings, & the lesions can be painful & sore.

0

Share this post


Link to post
Share on other sites

DH is called "the suicidal itch" & that's for a reason. It itches insanely, burns, stings, & the lesions can be painful & sore.

ok great. thanks for the info. maybe it's just dry skin. it doesn't itch at all, but it is there. it is like little red dots.

0

Share this post


Link to post
Share on other sites

Since dh can flare at any time until all the antibodies are out of our skin, I thought it would be good to show such as well as the progression of it as it ravages the skin. I have been absolutely strict gluten-free since Dec. of 2011. We have a gluten-free household & eat 99% whole foods. Have not eaten out at all. My dh had improved greatly upon going gluten-free & even though I still had some dh; it was nothing like what began in Sept. of 2012. I have been mostly low iodine since going gluten-free since I have found iodine to make my dh flare.

In the beginning of Sept. 2012, I began to have a spontaneous flare of dh. When it began I had no idea it would continue flaring to this day & so severely.

These first 2 photos were taken on Oct. 12, 2012.

8396010613_0c60092033_z.jpg

8397101136_3c897d5c14_z.jpg

These next photos were taken on 1/13/13.

8397122688_fd540a236c_z.jpg

8396040891_f157ab80c7_z.jpg

8397124830_53a176428e_z.jpg

8396042507_5c60904ecd_z.jpg

8396043099_5c3684216d_z.jpg

8396043589_3b2901e657_z.jpg

8396044249_cc6276d95c_z.jpg

Above shows what I call the flesh eating lesions. It starts as a tiny little water blister & I don't scratch --- it just eats away at the flesh & gets bigger & bigger & bigger. You will see more photos of this same area in the next date series. You will see what it turns into from this point.

8396045721_bd281402f6.jpg

Apparently I can only post a certain # of photos on one post so I will have to make another post to put the rest of the photos on.

0

Share this post


Link to post
Share on other sites

Photos taken on 1/19/13.

8397268918_25a514e824_z.jpg

Above is the flesh eating lesions you saw earlier.

8397268656_f95f1f68df.jpg

Below is the underside of my breast.

8397268718_b204fa28b6.jpg

Lesions on my front:

8397266446_ab21f97c3b.jpg

My left side up to armpit area:

8396184979_1c4d183076_z.jpg

The flesh eaters:

8397257702_f115b8f4b5.jpg

8396184957_ea5c25aef1.jpg

My scalp has been ravaged more than anything you see here.

Clothing is sheer torture to wear.

0

Share this post


Link to post
Share on other sites

Ditto to Squirming's pics. Mine looks EXACTLY like yours.

0

Share this post


Link to post
Share on other sites

Ditto to Squirming's pics. Mine looks EXACTLY like yours.

I am sorry you both have to suffer like that; it looks incredibly painful and uncomfortable. :(

0

Share this post


Link to post
Share on other sites

Thanks Shroomie. It does suck.

0

Share this post


Link to post
Share on other sites

Thanks Mushroom. :)

0

Share this post


Link to post
Share on other sites

Thanks squirmingitch.

I am sure a friend has dh from your pictures. I will show him in a couple of weeks when I next see him. He had negative blood test, but had been gluten-free beforehand. Great thread, thanks.

0

Share this post


Link to post
Share on other sites

Thanks Shroomie. It does suck.

Oh my goodness! I had the 'flesh eating' lesions on my lower belly. I really think it was several lesions side by side that just grew into each other. They have healed and now are the dark purple color.

I know you have been so strict on being gluten-free, I want to cry for you! Do you think your doctor will order light therapy for you?

Wish you could take Dapsone or maybe the topical? I think I'll have my niece take photos of my healed skin after being on Dapsone since 10/20/12. So sorry for you. . . . :(

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      103,344
    • Total Posts
      917,402
  • Topics

  • Posts

    • Daughter with celiac- need test result help
      Thanks so much for your reply and the encouragement! She has not had the dgp test. I will ask her doctor at the next appointment in two weeks. Her doctor is out of the country now for a family emergency so I can't talk to her before her appointment. Her thyroid is good. The whole thing has been tough - logistically dealing with the dietary change and how extremely careful we have to be. Emotionally - worrying about her health and her feelings about all of this. I'm happy her number came down so much. There's hope. I'm just praying there's not more wrong and trying to prevent any possible risk of cross contamination. It seems she's very sensitive. It's also tough she's a kid at school with gluten on every surface. 
    • Newbie: mother to coeliac kids
      Wonderful news to hear that he has finally had his testing done, and can go gluten free. I understand that he is afraid of needles. Most children are. It is great that the hospital have acknowledged his and your family's suffering. Hopefully now they will give him the A1 treatment that he deserves. I am really looking forward to hearing of his improvement, as no doubt he will come along in leaps and bounds. Children are remarkably resilient, and with any luck he will enjoy a healthy and bright future with adherence to his required diet. Way to go Mum, you have been through a lot, watching your boy suffer. I hope that you are handsomely rewarded with being able to watch him flourish now. Good luck with your older boy too. Keep us posted.
    • Newbie: mother to coeliac kids
      Well thank goodness the gluten eating is over for him now & he can begin the journey back to good health! Poor fella. He was so sick! Just a heads up --- he isn't going to feel better instantly but at least he's a kid & they heal faster as a general rule. Bone broth!!!! Yaaaaaaaaaaaaaaaayyyyyyyyyyyyyyyyy mom! That's really going to help him!   Do I recall correctly that you still have the 17 yr. old to go through testing yet?
    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined