I'm having major computer problems (repeatedly crashing) & am trying to fix it so I'll have to be brief. IMO that's dh!!!!!
If you had been gluten-free when the biopsy was done then OF COURSE it would come back inconclusive or negative. If the biopsy was taken directly ON a lesion then it was done wrong & OF COURSE it would not be positive for dh. Damn doctors who don't get it!!!
For most of us, iodine makes the rash go bonkers. It's like throwing lighter fluid on hot coals. The soy most likely has carageenan in it which is insane with iodine & milk has a lot of iodine too. Try a low iodine diet for two weeks. See http://www.thyca.org.../lowiodinediet/ for low iodine diet (of course cut the gluten).
The rash can present anytime until all the antibodies are out from the skin. The antibodies get deposited under the skin for those of us with dh. So she can have the rash until they all get gone. Also, you need to be rabid about cross contamination b/c the rash is ultra sensitive to the tiniest amount of gluten.
Read a whole bunch of threads on here & that will be your best source of info.
NSAID's make the rash flare too.
If I don't crash into oblivion & can get this thing fixed then I'll be back in the next few days.
Thank you so much for replying , thats all great information.
We have been Gluten free but I have only recently learnt about Iodine so we are going to try that too.
Reading all the info on here I know now that her biopsy was a joke as they took a sample from a young blister, we were gluten-free....and now she has a scar on her arm for nothing :-(
How long do you think it takes the Antibodies to get out of the skin ?
Has anyone tried topical Dapson? is it worth trying on her ? at the moment I'm using a strong steroid cream on the very inflamed spots.
reading the horrible side effects i don't think i will ever put her on the drug but maybe try the topical, is it just as bad ?
We are also about to receive the results of a stool test and the dr said there is something not right going on there (our appointment is on Tuesday)
Thank you all again for replying and for the wealth of information you are sharing