Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


Photo
- - - - -

DH Photo Bank


  • Please log in to reply

132 replies to this topic

#121 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,372 posts
 

Posted 29 January 2014 - 10:22 AM

I hear that!


  • 1

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


Celiac.com Sponsor:

#122 Juniper2080

 
Juniper2080

    New Community Member

  • Members
  • Pip
  • 8 posts
 

Posted 25 March 2014 - 08:29 AM

Here are some photos of my rash..let me know what you all think :)  https://www.flickr.c.../121374728@N03/


  • 0

#123 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,372 posts
 

Posted 25 March 2014 - 09:42 AM

It's sometimes very hard to tell from photos but I'm saying it's certainly possible. Considering what else you have said, that adds weight toward the side of dh but there are many skin issues & other rashes associated with celiac disease. However, I'm still going to say it seems like you tip the scales on the side of dh.


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#124 bluewhitesky

 
bluewhitesky

    Community Member

  • Advanced Members
  • PipPipPip
  • 38 posts
 

Posted 15 May 2014 - 03:54 PM

I found some pictures online that so far look closest to what my DS (age 6) has experienced. They might be helpful to someone else, especially a parent. The boy in the pictures is 11 years old.

 

Here is the link:

 

http://www.globalski...ID=3208&did=458


  • 0

#125 danniee

 
danniee

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 22 June 2014 - 12:08 PM


This is a more recent picture of how the rash developed since the previous pictures. I now get reddish patches with dry flaky skin that appear before, with, and after the blisters. They don't show very well in the pic however due to being lubricated:

http://rainytown.se/...0622_135205.jpg

I don't think posts like these are very helpfully coming from people who have not been clinically diagnosed and that write about their undiagnosed rashes as if they were fact. I bet there are many hypochondriacs out there googling symtoms and may come across a photo such as yours and are now 100% sure they are gluten intolerant and thus starts have to go through a WIDE range of tests causing even more angst and anxiety since many here also talk about how hard it is supposed to be to diagnose celiac disease.

 

Your rash looks exactly like Dyshidrotic eczema by the way which tends to develope on that exact place and the cause of that is not gluten. I think that's the problem on boards like this that gluten is the cause of EVERY problem.

 

Just be careful about making conclusions. It does not benefit anyone and may make it harder to take coeliacs seriously.


  • 0

#126 danniee

 
danniee

    New Community Member

  • Members
  • Pip
  • 2 posts
 

Posted 22 June 2014 - 12:10 PM

A photo of Dyshidrotic eczema

 

http://nationaleczem...ic_3.jpg?c82144


  • 0

#127 IrishHeart

 
IrishHeart

    Warrior Princess

  • Advanced Members
  • PipPipPipPipPipPip
  • 10,558 posts
 

Posted 22 June 2014 - 04:30 PM

A photo of Dyshidrotic eczema

 

http://nationaleczem...ic_3.jpg?c82144

danniee,

thanks for your input, but I am fairly certain that the person you are replying to (Dani) is no longer participating on the forum. I have not 'seen her" in quite some time. 

Best regards,

IH


  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#128 Rita L

 
Rita L

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts
 

Posted 28 September 2014 - 12:57 PM

Here are my pics. (And let me also add I haven't been officially diagnosed either so I wasn't sure if I should post or not but since the above two posters are in the same boat I decided to go ahead. I do hope someone with a positive biopsy will post.)

Some of these are rather gross, sorry!!

http://i1172.photobu...ne/IMG_2637.jpg
http://i1172.photobu...ne/IMG_2475.jpg
http://i1172.photobu...ne/IMG_2444.jpg
http://i1172.photobu...ne/IMG_2441.jpg
http://i1172.photobu.../IMG_2298-1.jpg
http://i1172.photobu...ne/IMG_2244.jpg
http://i1172.photobu...ne/IMG_2342.jpg
http://i1172.photobu...ne/IMG_2601.jpg
http://i1172.photobu...ne/IMG_2435.jpg

These were taken at various stages of my rash, I'm not sure what was taken when.

Features:

Started out with one small itch on the back of my neck, took two months for it to go elsewhere and when it did it really did!!

Jumped from neck to both elbows, both hips, back of both knees.

Severe uncontrollable itching, would come in bursts. I would have to scratch and scratch for 15 mintues, then it would get better until the next burst. Would wake in night and scratch.

Burning feeling 1-2 days before breakout.

Skin was very prickly and burned, did not like having anything touch it. Taking a shower was very uncomfortable, did not like water or the washcloth on my skin.

At times it would feel like hives. After scratching an area over and over it would become very inflamed

After a couple weeks of rash on elbows, hips and knees it spread to lower back, slowly going up spine and then spreading outwards. The elbow rash spread up and down my arms about 3 inches both ways. Then the front of thighs broke out, then the front and back of shoulders broke out, then the hip and back rash spread into my stomach. Hundreds of little dots.

Then the whole thing started going away. Total time - 6 months. It is now almost entirely gone, just a bit in one spot.

Edited to add - I've been gluten free for 2+ years and think I had some cc whch caused the rash. I stopped eating the one food I thought may be giving me this. Also started taking loratadine. Rash started to go away. I then reintroduced an oreo a week (as a test to see what would happen and also because I had an appt with dermo and didn't want it to disappear entirely before I met with him). Rash came back a bit and hung around but nowhere near as severe as before. Stopped the oreo after my appt and rash continued to disappear.

Yay! BACK of both knees.... Not celebrating it but that's where my rash is right now Mainly (which I haven't read elsewhere YET)... I have been gluten free for a very long time... 10 years or so due to Celiac. For 2 years I was treating my psoriasis on my heel as a foot fungus. BAD doctor diagnosis because my other doc was on vacation. But I had to take a medrol dose of steroids recently to fight an infection and low and behold my heel cleared up. She said that's not a fungus if it cleared up that fast. She said it was from my Celiac. I was on my 3rd bout of poison ivy this year when I got suspicious about that. She has put me on Dapsone. I have scratched the back of my knee so hard that I now have bruise marks there. Trying not to scratch but I wake myself up with the scratching. Mind you this is all from cross contaimination. I NEVER cheat. It's just not worth it to me. My rash looks the same as yours. My first one so resembled poison ivy but I didn't scratch it and it didn't spread. It was on my chest and horribly red, big blotches with blisters. I also noticed that another spot that I inadvertently shaved (on my leg) came back with the 2nd poison ivy. But thru this whole process it doesn't spread if I scratched. Just scabbed up. My 2nd bout was on my neck and chin. Just severe swellling and itching but no blisters. I started with cortison cream thinking it was poison ivy again. The itching is driving me crazy and I'm wondering how long the Dapsone takes to help with the rash?


  • 0

#129 squirmingitch

 
squirmingitch

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,372 posts
 

Posted 28 September 2014 - 03:20 PM

We haven't heard from JaneWhoLovesRain in years now so I imagine she won't see your post.

 

As far as how long the Dapsone takes to give you some relief; I have never been on it (allergic to sulfa drugs) but from what others say it should start giving you relief in just days.

 

BTW, I've had on the back of both knees. In fact, I had it there long before I had it actually ON my knees.


  • 0

Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#130 JaneWhoLovesRain

 
JaneWhoLovesRain

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 116 posts
 

Posted 29 September 2014 - 02:39 PM

Hi - I just happened to log in today!  When I told the GI doctor I saw (which wasn't unitl a couple of years after going gluten-free) all of my symptoms, he said he was 85% sure I had celiac based on my symptoms alone.  He said the only one that didn't fit was the rash BEHIND the knees, he said it should be in the front of the knees.  I personally don't think it makes much difference if it is front or back, my rash was very symmetrical and the itching was horrendous and all my other itchy spots fit celiac to a t.

 

Dapsone is supposed to help right away from what I understand, within a couple of days there should be definite improvement.  I've never taken it though, so I can't speak from experience, just from what I've heard others say.

 

Jane


  • 0
Gluten free since 2010 when it was suggested that my vertigo/dizzy problems may be from gluten. Tested negative for DH in April of 2012. However I'm not convinced I don't have DH as pictures and description pretty much match what I have.
11/2012 tested positve for 1 of the 2 celiac genes

#131 Rita L

 
Rita L

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts
 

Posted 29 September 2014 - 02:58 PM

These are pictures of my 4 year olds blisters 

Do they look like DH?

We have seen many Dermatologists and Allergists who said they don't know what it is but it looks like DH so we had a biopsy which came back inconclusive.

We have been Gluten free for 18 months but the spots keep coming, When she has Dairy or Soy she scratched all night even with Antihistamines.

 

http://www.flickr.co...bs/10848312076/

http://www.flickr.co...bs/10848415764/

 

 

I have been reading many posts and it seems the members here know more than the doctors we have been seeing.

 

if anyone can help me identify these spots I would be so grateful and relieved as the past 2 years have been super hard living with the night scratching and bleeding. 

 

worried mom 

The night itching is what got my attention. It's horrible. I just want to climb out of my skin! Looks like mine... I've been scratching so hard that I have bruises but mostly in my sleep. :(


  • 0

#132 Rita L

 
Rita L

    New Community Member

  • Advanced Members
  • Pip
  • 14 posts
 

Posted 29 September 2014 - 03:18 PM

Hi - I just happened to log in today!  When I told the GI doctor I saw (which wasn't unitl a couple of years after going gluten-free) all of my symptoms, he said he was 85% sure I had celiac based on my symptoms alone.  He said the only one that didn't fit was the rash BEHIND the knees, he said it should be in the front of the knees.  I personally don't think it makes much difference if it is front or back, my rash was very symmetrical and the itching was horrendous and all my other itchy spots fit celiac to a t.

 

Dapsone is supposed to help right away from what I understand, within a couple of days there should be definite improvement.  I've never taken it though, so I can't speak from experience, just from what I've heard others say.

 

Jane

I guess it's slowly reducing the huge red patch with blisters. I think the inflammation is from me scratching. The other side doesn't look half as bad. I was painting a ceiling and wearing yoga pants and I think sweating there so perhaps that's why it is worse than my arms. I have one little spot on both forearms that I manage to leave alone. Last night was my third night on Dapsone. Have seen just the slightest reduction in size but the itching is just as bad with the burning sensation as well. Thanks


  • 0

#133 mendylou

 
mendylou

    Community Member

  • Advanced Members
  • PipPipPip
  • 47 posts
 

Posted 30 September 2014 - 02:13 PM

I have been gluten free for four years , I still have DH outbreaks but they are not as extensive as they used to be.  I do still wake up every nite with terrible itching which causes scratching to excess. The hot humid weather of summer makes it all the worse.  My worst areas are buttocks and forearms.  I have not had clear skin for at least 7 years.  I figure this had been building for so many years that it will take many years to disappear.  It does not seem to matter what I apply to my skin, nothing really helps.  I have never taken dapsone.


  • 0




1 user(s) are reading this topic

0 members, 1 guests, 0 anonymous users

Celiac.com Sponsors: